Levo - Moral Dilemma - Should I increase my own???

[Quest2019]

Hi. I would like to get some opinions/input. I was in June seen by a Private Endo who gave me 5 months script of 100mcg Levo. This I got all from the pharmacy in one go. Upon seeing my GP a few months ago - he was updating my meds and added the Levo on my list. Now when I am ordering from pharmacy I am getting 2 boxes of 28 tablets of 100mcg.

I was going to go to the GP tomorrow to request a increase in my Levo as I am "in range " with T3/T4 and TSH however still experience symptoms.

However with this script for the next 6 months I get double the meds. So I am scared if go tomorrow and request an increase and they say "no" to the increase and then also correct the script.

However if I don't , I can get double the script - until review - therefore have my own collection AND then just up my dose myself to 125mcg...using the EXTRA meds they gave me in error?

What would you do?

[Lalatoot]

Levo is cheap not like the £205 for 28 t3 tablets. I would build up a stock. We need to have some in hand.

[Quest2019 in reply to Lalatoot]

Thank you. My question is though. If I ask GP to increase my dose he will notice the error they have made and probably won’t increase my dose.

So do I just cancel the appointment. Keep on getting the script which is an extra 28 tablets of 100 mcg a month and just increase my dose myself? As I also do the testing myself?

[Hay2016 in reply to Quest2019]

has your gp maybe given you two months worth? I get 2 months per script.

[Quest2019 in reply to Hay2016]

On the Prescription it say's

[ ] Levothyroxine sodium 100microgram tablets - One to Be Taken Daily , 56 Tablet (1/6)

I see on my patient access site for repeat meds. That I can can order again 13 November - which will be two boxes again.

[Hay2016 in reply to Quest2019]

Yes mine does that too but 1/6 to me implies 6 for the year of two boxes would be 12.

I think it’s a glitch in the system as mine says 56 at one a day lasts 28days on the online reordering system. 😂 order early, if you run out the dog could have been naughty or you lost a box.

[Quest2019 in reply to Hay2016]

lol Thank you. I have a feeling I should not go to the GP - gut instinct will be that they don't want to take the meds up from 100mcg to 124mcg because my TSH is 0.77. However that " its the right thing to do " is winning me over. Why does it have to be such a battle! Thank you for response

[Hay2016 in reply to Quest2019]

Just looked at your results. If they were mine I would increase t4 is only just in range, see if it bumps t3 up a bit. You could increase by 12.5 by taking 1/4 of 100 every 2 days. Test after 6 weeks see what it does to t3 and t4.

[Lalatoot in reply to Quest2019]

If you are sure you need a dose increase then I would.

[Quest2019 in reply to Lalatoot]

I have been on 100mcg for 2 years. There was a short period that I was on 75mcg February to June. I posted those Labs in another post. But I have just added my new labs which is my 100mcg as always. I still have many symptoms and feel that I could increase a bit more.

Any thoughts welcome on the Labs I attached.

Thank you

[helvella Administrator Thyroid UK in reply to Quest2019]

The dosing of thyroid hormones is usually in micrograms (mcg) - not milligrams (mg).

I know you got it right when you typed out the whole word!

The document linked below says it all, I hope:

dropbox.com/s/q00vyt5703f4u...

[Quest2019 in reply to helvella]

Adjusted. Thank you.