I take armour thyroid meds. My tsh got low low, but my t3 is beyond lower and t4 is lower.
Even more Than when hypo?! I am now low t3/t4 despite tsh low low now. I swear thyroid meds effect me not help me?! My Chinese dr agrees with me. Its prob meds causing all my hormone issues and edema NO dr can understand or help me with. I have had EVERY test n workup to known its not lymphedema or heart issues. Anyone else just not able take meds and or causing full body fluid retention weight-gain low heart rate/pulse and no muscle tone heavy fluid retention in butt to ankle but not feet?! Im at aloss. Every thryoid med seems to not fix yet make it worse. How can t4 be below low and t3 drop too the lower tsh gets?! Is there a diet out there to boost this crap? Without meds? T3 alone causes serious reaction in me. From
Aores in scalp to insulin resistance and huge edema elephant looking and cannot walk. IS ANYONE HERE UNABLE TAKE T3 at all because of this??? Ty in advance
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Jo1884
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I think you're going to have to give us some numbers: doses, dates, results and ranges. What you've said is all so vague that no-one has been able to comment so far.
It doesn’t allow me to show pictures of my thyroid testing and I can’t write out every single one on here there’s so many I literally get tested every 5 to 6 weeks for my thyroid and it is constantly hypo until the past two tests I have been 0.052 0.8 my T3 has been getting lower and lower every month for years my reverse T3 is now very low in is usually low never elevated my T4 has been low for eight years as far as I can look but it got even lower under range on this medication lowering my TSH
As I said before, your TSH is not low - certainly not for someone on NDT. We would expect it to be a lot lower than that on 3 grains. And, that is why I suggested that you're not absorbing it very well. Did you read that link I posted in your last thread?
Did you do the home test to see if you have low stomach acid?
You got a lot of helpful comments in your past three posts, but there are a lot of questions you don't answer, so it makes it a bit difficult to help you. I just asked you for some numbers so that we can see if there's a trend, but all you gave me are '0.052 0.8 my T3 has been getting lower' I don't even know what that is - TSH? It doesn't tell me anything. There are only 3 results that interest us per blood test: TSH, FT4and FT3. As I told you 4 days ago, TT3 and rT3 are of absolutely no interest - of course your rT3 is low, because your FT4 is low, there's nothing much to convert to rT3. But, it's irrelevant, anyway. So, I understand that you don't feel up to typing much, but keep asking the same question without any numbers to back up what you're saying, is rather using up your energy for nothing. It doesn't get us any further.
So, when did this downward trend of FT4/3 start? How much NDT were you taking at the time? Have you been increasing slowly since then - i.e. 1/4 grain every two weeks and waiting six weeks on a constant dose before testing?
my T4 has been low for eight years as far as I can look
If you have been taking NDT for eight years then this is perfectly normal. But, if that worries you, did no-one ever suggest adding some levo to your NDT?
I think I'd concentrate more on 'how you feel' with a dose than look at the numbers. I shall also give you a link from a Scientist/researcher who would never prescribe levo - only NDT or T3 for thyroid hormone resistant patients.
Also, blood tests for thyroid hormones was introduced along with levothyroxine (T4) alone. Tnerefore if we take or add any other hormones the numbers wont correlate (i.e. NDT or T3/T4). Before that we always got prescribed 'natural dessicated thyroid hormones' of which Armour is one of the popular ones.
I think you'll find the above link helpful.
He also took only one blood test for the initial diagnosis and thereafter it was all about relieving the clinical symptoms. The above link will be informative.
Both greygoose and I have commented before but I don’t know whether you’re having difficulty accessing answers to your previous posts?
I don’t think 3 grains of Armour is enough for you at the moment, not going by the blood test results you posted in your first post. And yesterday (or the day before) you said your Vit D is low. You’ve also previously said that you’re a vegan—do you eat a lot of bread and pasta? Have you tried going gluten free? Gluten sensitivity might be the reason your body isn’t absorbing your thyroid hormone replacement very well.
But in the short term, you’re going to need an increase in Armour and to do something about the low Vit D (low Vit D alone can make you feel awful).
I upped meds yesterday amd today and have extreme swelling migraine severe tight leg cramps and nausea and miseries and over heated. Heart racing. Might go er. Meds are wayyyyyy toooo high. Increasing makes me severe. I think i have pituitary issue not thyrpid and need iodine. When im off meds i have nooo issues like this
Jo, why do you think you have a pituitary problem? What do you think is happening? Explain it to me.
I very much doubt you need any more iodine. You're taking 3 grains of NDT. 3 grains of NDT contains 87 mcg iodine which is recycled in the body. If that hasn't made you better, I doubt taking more will.
In fact, as you're on thyroid hormone replacement, you need less iodine, not more, because the thyroid is no-longer making thyroid hormone.
I have been gluten-free dairy free corn free chemical free absolutely nothing in a package or processed for 16 years I drink just water and black coffee if I feel like coffee I am not a port converter nor is it ingredients in the medicine causing these issues
And just to add, TSH being very low is irrelevant when you take any thyroid medication containing T3. T3 in the bloodstream switches off the thyroid stimulating hormone (TSH) so that when TSH is tested, it hardly registers as a result—it’ll be very low. Doesn’t mean you’re on enough thyroid hormone replacement though.
No one should ever be medicated according to their TSH results once they start taking thyroid hormone replacement. FT3 is a far more important test—you need that high in range. If it isn’t, then you need more thyroid hormone replacement.
Doctors don’t know this though. Many are taught that TSH is all you need to look at. But that’s just not true.
same here . i can't take armour thyroid , levothyroxine , ndt or any such stuff as all thyroid meds cause severe mastalgia -i do'nt want to die of breast pain . what to do with undetectabe t3 t4 -pls tell me - can low t3 cause severe hair fall >?
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T4 and T3 optimal 3 hours after thyroid meds, I feel great, but suppressed TSH is throwing a spanner in the works.
Hello! I have low T4 but normal TSH. Should I be taking Levothyroxine? Thanks
Taking 60 mcg daily of T3 medication, have low TSH and low T4, FT3 is within normal range. 
Can I decide whether to go up on meds with only a TSH reading (GP won't do T4, T3)?
