This is about MS but could this apply to any au... - Thyroid UK

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This is about MS but could this apply to any autoimmune condition

penny profile image
6 Replies

I was doing my usual trawl for Vit D protocol updates and came across this from 2009. Nothing has changed in 11 years but the conclusion of the study suggests that many thousands of people could have escaped the misery of MS.

MS is a devastating neurodegenerative disease that imposes heavy burdens on patients, on families, and on health care systems throughout the world. At an estimated lifetime cost in excess of $2.2 million per MS case, the implications of the sustained increases in female cases to the world’s strained health care systems are staggering (28). In this context, it is encouraging that modifiable environmental factors appear to set the disease threshold and may hold the key to preventing the vast majority of MS cases (6). Sunlight exposure and vitamin D3 supplies appear to be those modifiable environmental risk factors (9, 13). If health care providers were to monitor serum 25-(OH)D3 levels, especially in girls and women who are genetically related to an individual with MS, and prescribe enough sunlight exposure and/or vitamin D3 supplementation to maintain >100 nmol/L of serum 25-(OH)D3 throughout the year, an estimated 90% of MS cases might be prevented (15). For men and women already afflicted with MS, intermittent 1,25-(OH)2D3 pulse dose therapy (F. E. Nashold, R. A. Derks, and C. E. Hayes, manuscript in preparation) in the context of sufficient natural E2 in young women or E2 replacement therapy in postmenopausal women might activate antiiinflammatory mechanisms that drive MS disease into remission and significantly decrease the cumulative disability. The overwhelming body of evidence suggests that these intervention strategies could dramatically reduce the impact of MS on patients, on families, and on our health care systems.

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penny
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6 Replies

Thank you penny for sending me this link as I am actually researching MS at the moment as am wanting to rule it out as I am now starting with problems with my balance and increased numbness in my legs, lower back, face and hands. Have a wonderful day and I hope your ok and keeping well. Kind regards. J😀

SlowDragon profile image
SlowDragonAdministrator in reply to

Sounds like low B12......extremely common with hashimoto’s

Have you had FULL Thyroid and vitamin testing

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Ask GP to test vitamin levels

You may need to get full Thyroid testing privately as NHS refuses to test TG antibodies if TPO antibodies are negative

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies

thyroiduk.org.uk/tuk/testin...

For thyroid including antibodies and vitamins

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

in reply toSlowDragon

Thank you so much for the information I will get the blood tests done even if I have to pay for them as it may just give me some answers. I suspect thyroid as I can’t lose weight my mum had thyroid issues and I have the same symptoms. Have a wonderful evening and thank you for taking the time out to help me. Kind regards. J😀

SlowDragon profile image
SlowDragonAdministrator in reply to

If antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).

About 90% of all primary hypothyroidism in Uk is due to Hashimoto's. So highly likely your Mum has hashimoto’s

Low vitamins are especially common with Hashimoto's. Food intolerances are very common too, especially gluten.

So it's important to get TPO and TG thyroid antibodies tested at least once .

Link about thyroid blood tests

thyroiduk.org/tuk/testing/t...

Link about antibodies and Hashimoto's

thyroiduk.org.uk/tuk/about_...

thyroiduk.org.uk/tuk/about_...

List of hypothyroid symptoms

thyroiduk.org.uk/tuk/about_...

in reply toSlowDragon

Thanks again I will write down everything you have told me and will get the tests done. Yes I am highly food intolerant especially gluten. Just looked at the symptoms I tick every box so off to the drs I go. This is what I love about this site the people on it are more experienced In various health issues and know more than drs. 😂Cheers. J😀

penny profile image
penny

You might like to look at the Coimbra Protocol. I have a friend with PPMS but he was too disabled to start the protocol.

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