Recently started taking Levothyroxine, started on 25mg, just had it increased to 50mg 2weeks ago (too soon for blood tests to show changes). I am being treated for Subclinical Hypothyroidism (probably auto immune related despite no serum antibodies).
I have suffered serious headaches since being a teenager, but they have in the last 6-8 years become longer lasting ( 3 days). Just thought it might be worth knowing if this is common and whether it has been researched.
Headaches have been a massive symptom of my thyroid condition, I honestly felt like I had one for 2months straight, once the levo kicked properly in they got a lot better however my dose is too low and they’ve started to return 😔 hope yours improve xx
Thank you, and I hope you too get your dose increased so you get some relief as it is a really underestimated symptom. X
Looking at previous post your TSH was 17
Standard starter dose of levothyroxine is 50mcg (unless very elderly)
Headache is extremely common hypothyroid symptom
List of hypothyroid symptoms
thyroiduk.org.uk/tuk/about_...
Likely to need further increases in levothyroxine
Bloods should be retested 6-8 weeks after each dose increase
Many people find Levothyroxine brands are not interchangeable.
Once you find a brand that suits you, best to make sure to only get that one at each prescription.
Watch out for brand change when dose is increased or at repeat prescription.
Many patients do NOT get on well with Teva brand of Levothyroxine. Though it is the only one for lactose intolerant patients. Teva is the only brand that makes 75mcg tablet.
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)
Thank you, and yes will make a note for next appointment with dr. The penny is just starting to drop about these symptoms and to look for them until the dosage is correct.
I had three day headaches for years before being diagnosed with Hashi and they continued after when I was on Levo( dose starting at 50 and then bit by bit to 100)after 3 years on Levo I decided to go gluten free and have never had those 3 day headaches/migranes again, Im now on NDT and still headache free.
Thanks for your response, and interesting that you had 3 day ones too. Wonderful that you’ve managed to get rid of those 🤞. And you seem to put it down to going gluten free? Did anything else change?
Within 3 days of going completely gluten free I started to feel miles better than before, my upper arms stopped aching,I began to sleep better among other things and after a couple of weeks I suddenly realised that Id not had a headache, that was the best for me as they were so bad I could hard
Sorry I was saying...I could hardly function. At that time I changed nothing else so think it must have been the GF. My endo wanted to give me a celiac test but I was terrified that the headaches would come back if I ate gluten for the test.Three years later I was seriously glutened and got Dermatitis Herpetiformis so my doc classes me as celiac now.
Yes you have to try to get to the root cause or causes. I think it’s one thing then another and it might be lots of things. And to other people it looks like I’m cranky.
Well done for finding out what triggers your system. I’m trying gluten free at the moment, after various dietary changes. We shall see.
Have you thought that it could be due to high histamine levels. Look at the foods you are having and try a low histamine diet.
Thank you for your reply. I did wonder about that and took antihistamine on the last one along with the ibuprofen but it didn’t change the nature of the headache. I have to say I am more allergic these days, and have to steer clear of a lot of food and drink.
Histamine tablets triggering mast cell activation with me and make it worse. Doing the lower histamine diet even stopping my 5 year struggling with restless legs. The herx effect the first few days must be toughed out
Has anyone else had a rocky road taking t3?
Has anyone else experienced this 
Anyone else had this? 
Has anyone had this test?
Anyone else had intolerance to fillers in Levothyroxine tablets?
