Hope to all Hypothyroid sufferers: Hi I want to... - Thyroid UK

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Hope to all Hypothyroid sufferers

10 Replies

Hi I want to say that I suffered for years with hypothyroidism. I had pouts of times to where it was devastating. I lost a lot of years and relationships but I can say it was in a sense for all the best. I had started taking Tirosint for about under a year. I can see it a cleaner and free of any type of fillers in regular thyroid hormone. I know there many men and women on this forum who I know from reading forum are suffering for years. I know your struggles and I felt my prayers where answered with Tirosint I took a picture below of the blister pack and liquid pill of Tirosint (levothyroxine). The irony with my health however I have suffered gastritis for a several months. I had anemia which it gradually become only iron deficiency. I know whatever higher power you believe in might led you to consider talking with your doctor a out Tirosint. I am not an employee or have any stocks or equity in IBSA pharma the makers of Tirosint located in Switzerland. I am doing better than I have in years I am working on my PH.D and I still taking my vitamin code supplement to help with the iron deficiency. I pray Tirosint is an option for those suffers who want to try something different! I am currently on 50mcg of Tirosint and 5mcg of cytomel. God Bless loves!

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10 Replies
Lora7again profile image
Lora7again

Thank you for sharing this with us and I am sure other members will take this on board and your experience of this drug. However you do realise a lot of members still cannot take levothyroxine and find that NDT works better for them. As I said before I have taken both Levothyroxine and NDT and did get on better with the NDT but every thyroid patient is different.

in reply to Lora7again

Lora7again You have helped me a great deal and you have a great point on the medicine is not a panacea to all thyroid sufferers. I hope people can have hope that they can find options to help. I know you have greatly helped me with gathering more information on tirosint and IBSA pharma. I will do anything I can to help with telling my personal experience with Tirosint. Love you Lora7again,

Morgan! Xoxo

Lora7again profile image
Lora7again in reply to

That is what this site is for and I hope we can help and support each other by sharing our experiences and any helpful information about thyroid disease. For years I have searched the internet looking for information and even any drug trials I could take part in to try and cure my disease but there are none at the moment. I don't believe there is any cure yet because my own immune system is attacking my thyroid and I don't know how to stop it. They are using immunotherapy to cure cancer so hopefully one day they will find out how stop this happening but until then I am taking advice from other people with this horrible disease and trying everything I can to try and keep myself as well as possible.

in reply to Lora7again

Lora7again I know you’re pain because I am dealing with it too! I want you to know that I share in your due diligence to find answers! A wise person once said doing the same thing over again and expecting the different results is insanity! We might not be able to summarily cure and have a definitive answer but we can work to at least control it better! I am with you Sis, not against you!

SlowDragon profile image
SlowDragonAdministrator

In the UK the NHS will only usually prescribe Levothyroxine that has been granted licence. Very difficult and expensive to be prescribed anything not on the regular list of brands

Getting vitamins optimal helps thousands of patients

Plus strictly gluten free diet frequently helps too

in reply to SlowDragon

Yes I had bought something called vitamin code and I know helps me out a lot!

Sweeneythyca profile image
Sweeneythyca

Please can you tell me how you get tirosint? I have been on it for 8 months and it has been a blessing, i got my prescription when i was living in cyprus Europe but i am unablento get it anywhere in uk, and i will run out in a few weeks... i am faced with the depressive idea of standard levothyroxine which i know will make me sick, but my endo won't help.

Many thanks

helvella profile image
helvellaAdministratorThyroid UK in reply to Sweeneythyca

I don't think it is available in the UK at all - other than as a "special" where a pharmacy orders it from a specialist importer speicifally for you. The cost, as you can imagine is high.

It might be possible to purchase in one of the other European countries in which it is already available - and there are many. However, it is unclear at present whether anyone will continue to recognise UK prescriptions after 31/01/2020. Therefore, you might have to resort to seeking out a source which supplies without prescription.

Sweeneythyca profile image
Sweeneythyca in reply to helvella

Thanks for your reply, my only available option at the moment is to fly to greece to get it from a pharmacy there which as you can imagine is costly and time consuming. I can not find an online pharmacy that ships to uk... i am at my wits end.

LivingWithHT profile image
LivingWithHT

By the way, I recently heard the same company has come out with a liquid form of Tirosint, it’s called Tirosint-sol.

goodrx.com/blog/tirosint-so...

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