I have just had bloods done to look at my thyroid (out of this bloods they forgot to do my TSH)
I am hyperthyroid with Graves disease and Padgets disease. I was previously on carbimozole which was stopped in August after being told I was stable. I am on vitamin D 1000 a day. I feel awful flushing again, aching all over, brain fog and feeling very low.
The blood they did take shows
Serum parathyroid hormone 11.1pmol/1
Range (1.6 - 7.2)
Had TSH done on Friday awaiting results
Written by
beesting1966
To view profiles and participate in discussions please or .
Did you ever get TSI or TRab antibodies test results?
Very high TPO antibodies strongly suggests Hashimoto's
You can have a Graves and Hashimoto's (but that's relatively rare)
We see many, many early stage Hashimoto's patients misdiagnosed as having Graves. Hashimoto's frequently starts with transient hyperthyroid symptoms that can last some months, before becoming increasingly hypothyroid
All your vitamin levels were terrible in previous post
Obviously you have had vitamin D prescribed. This can cause high PTH. Raising vitamin D naturally increases calcium levels. That's why it's recommended to take vitamin K2 mk7. This helps direct extra calcium to the bones
Gluten free diet helps thousands of patients with Graves or Hashimoto's
approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies
While still eating high gluten diet ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first
Assuming test is negative you can immediately go on strictly gluten free diet
(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)
Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse
Recommend you get FULL Thyroid and vitamin testing to see EXACTLY what has improved/got worse
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)
Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies
Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random
Cheapest option for just TSH, FT4 and FT3 £29 (via NHS private service )
B vitamins best taken in the morning after breakfast
Igennus Super B complex are nice small tablets. Often only need one tablet per day, not two. Certainly only start with one tablet per day after breakfast. Retesting levels in 6-8 weeks
Or Thorne Basic B or jarrow B-right are other options that contain folate, but both are large capsules
If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before any blood tests, as biotin can falsely affect test results
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.