High parathyroid hormone

[beesting1966]

I have just had bloods done to look at my thyroid (out of this bloods they forgot to do my TSH)

I am hyperthyroid with Graves disease and Padgets disease. I was previously on carbimozole which was stopped in August after being told I was stable. I am on vitamin D 1000 a day. I feel awful flushing again, aching all over, brain fog and feeling very low.

The blood they did take shows

Serum parathyroid hormone 11.1pmol/1

Range (1.6 - 7.2)

Had TSH done on Friday awaiting results

[SlowDragon Administrator]

Looking at previous post

It looks far more like you have Hashimoto's.....NOT Graves

healthunlocked.com/thyroidu...

Did you ever get TSI or TRab antibodies test results?

Very high TPO antibodies strongly suggests Hashimoto's

You can have a Graves and Hashimoto's (but that's relatively rare)

We see many, many early stage Hashimoto's patients misdiagnosed as having Graves. Hashimoto's frequently starts with transient hyperthyroid symptoms that can last some months, before becoming increasingly hypothyroid

All your vitamin levels were terrible in previous post

Obviously you have had vitamin D prescribed. This can cause high PTH. Raising vitamin D naturally increases calcium levels. That's why it's recommended to take vitamin K2 mk7. This helps direct extra calcium to the bones

Vitamin K2 mk7

betterbones.com/bone-nutrit...

intechopen.com/books/cell-s...

Better You vitamin D mouth spray is available with vitamin K2 mk7 included

What was your latest vitamin D result?

GP will only prescribe to bring vitamin D up to 50nmol. Aiming to improve by self supplementing to at least 80nmol and around 100nmol may be better .

Once you Improve level, very likely you will need on going maintenance dose to keep it there.

Test twice yearly via vitamindtest.org.uk

If vitamin D is low, B vitamins may be too. As explained by Dr Gominack

drgominak.com/sleep/vitamin...

B12 and folate were very low a year ago.

Have you been supplementing?

Are you on strictly gluten free diet?

Gluten free diet helps thousands of patients with Graves or Hashimoto's

approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

While still eating high gluten diet ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first

Assuming test is negative you can immediately go on strictly gluten free diet




(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)




Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

drknews.com/changing-your-d...

Hashimoto's (and Graves) are strongly genetic. Your daughter needs full testing for autoimmune thyroid disease (Hashimoto's)

[SlowDragon Administrator]

Recommend you get FULL Thyroid and vitamin testing to see EXACTLY what has improved/got worse

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies

thyroiduk.org.uk/tuk/testin...

For thyroid including antibodies and vitamins

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

Cheapest option for just TSH, FT4 and FT3 £29 (via NHS private service )

monitormyhealth.org.uk/thyr...

Private testing for suspected Graves - TSI or TRab antibodies

medichecks.com/thyroid-func...

Come back with new post once you get results

Previous B12 and folate were extremely low. If your daughter has Pernicious Anaemia, then you will need testing for PA

Most hypothyroid patients have low B12 rather than PA

Do NOT start any B vitamins before further testing

Supplementing a good quality daily vitamin B complex, one with folate in not folic acid may be beneficial.

chriskresser.com/folate-vs-...

B vitamins best taken in the morning after breakfast

Igennus Super B complex are nice small tablets. Often only need one tablet per day, not two. Certainly only start with one tablet per day after breakfast. Retesting levels in 6-8 weeks

Or Thorne Basic B or jarrow B-right are other options that contain folate, but both are large capsules

If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before any blood tests, as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

Low B12 symptoms

b12deficiency.info/signs-an...

If getting B12 injections its recommended to also take daily good quality vitamin B complex too