HRT, Adrenals and thyroid meds? Please can anyone help?

[Jeppy]

Hi

I hope you enjoying your weekends as can. Has anyone experience of this please?

Well I should be better than this, Iv been on here a good time.

I had finally got tsh to 3.4 which is great from 6, as had quite a way to go to repairing long abused system, and learning it all, It does take time though to be fair, Dr P said to expect slow responses

Adrenals held it up mostly, they don't bounce back for sure and especially as feel genetically this way, even as a child I had dark circles and anxiety in tummy

I presume this is the cause.

Do we still rate the saliva testing please rather than urine testing?

Anyway I took plunge and taking bio identical yam HRT, as Iv been told I have osteopenia

I felt I'd do it for a couple of years as assured by Prof Studd it rebuilds bone density, this seemed a good plan

However the plus is I've more of the old me back in mind sharpness, I really was a flat mess before, half empty glass, I think it's a plus anyway, skin so much better too, I've got some woomoh back so to speak, I used to have a lot

The downside is, I feel kind of wired, and my tsh has risen to 4.5 🙈

I've got myself in a bit of a muddle, Shall I stop taking it is my first thought?, or shall I just Up the levo best I can to keep up? , but I'm worrying also if adrenals will cope .

I'm obviously undermedicated but don t know what to do

Has anyone experienced this kind of scenario please?

I'm only on levo 75/100 alternate as I can't manage higher to date, hence tsh still being over 2

Any thoughts really appreciated

Yes in hindsight I should have firstly got thyroid sorted, but a part of me at the time believed it may be linked to the sex hormones too..... I was so fed up I took the leap of faith esp with the bone loss that became apparent

Maybe I should get a saliva test this week, see how land lies?

Maybe I should go to ndt, Dr P said to stay natural, I did take his Metwvive advice but had no wellness from it, that is when I reverted to levo as felt worse on metwvive

(Is there info that levo isn't good long term? If so il do the swop)

Any thoughts, advice really appreciated Thankyou

I can't think straight, very hypo this week

I dont cry anymore

I do feel some anger which I never ever did, this I think stems from frustration and let down (14 yrs undiagnosed ) affected a lot in my life and I walk alone

Also my groin pain is feeling worse, keeping me awake, slows me so much

I need to maybe push for a hip, I know you say to do nothing until euthyroid but one specialist said there was bone to bone, and I can't therefore see this is not hurting me, come what may, plus it slows me down and makes me depressed and impatient, I'm in my sixties, I want to play football with my grandson at 8 not 18 lol

Sorry I'm moaning now

Thanks for being here

J🦋

[silverfox7]

I don’t feel I can offer advice but were you taking it well away from your thyroid medication?

[Jeppy in reply to silverfox7]

Yes definitely

It's gel in morning, levo at night

[Chippysue]

I am a huge fan of the magazine called what doctors don’t tel you and in this months copy there is an article on bio identical hormones. They have also covered bone density too.

How is your vitamin D level?? 200 - 250nmol is what I am aiming for, for a therapeutic level.

When searching online I always add dr Josh axe to the search words - here is a brilliant article which will help ....... draxe.com/health/osteoporos...

[Jeppy in reply to Chippysue]

Hi chippysue. Lol love name

How can I get these mags pls do you know? Do they supply older copies

[Chippysue in reply to Jeppy]

thanks

wddty.magazine.co.uk/?gclsr...

[Jeppy in reply to Chippysue]

Thnx but don't think it's the bio hormone one? I saw that

Anyway, is it bad news 🙃

[Chippysue in reply to Jeppy]

it's a shame you don't attend the midlands thyroid support group as I have dozens of old copies of WDDTY magazines that members borrow and return

[Jeppy in reply to Chippysue]

Which month is it pls

[jostafford0]

Hi Jeppy, I have the same problems as you re adrenals. I had a pale face & dark circles at 12-13 years old so I think my adrenals are screwed. I’ve just tried Thyrovanz which is a natural thyroid med and my heart palps & insomnia shot through the roof. I guess I must be mega sensitive to T3 because of my adrenals. Have you gone about fixing your adrenal issue yet? I too have menstrual problems and have been diagnosed with Endometriosis. I’ve gone back to taking 100mg of Levo that I’ve been on for 13 years but I even had problems getting up to that level. Jo x

[Jeppy in reply to jostafford0]

Thankyou

Me too, I couldn't tolerate any at first

I've worked on adrenals, with Adrenavive 11. Although unsure if this is adequate. It helps though definitely, are you a worrier, or I prefer to say a thinker, I'm an overthinker when this is going on and of course it's a viscious circle?.......... meditation and mindfulness have to help. Any calming things, yoga, swimming I've read

The predisinole is I think is to give them a break which does have its appeal, although I shy from steroid, although probably unfounded as read on here it's good

I think my early anxiety was adrenal overload now, and can see the pattern all through

What is your tsh

[jostafford0 in reply to Jeppy]

Thanks for the advice on adrenals. I've been on prednisolone before as I also have ulcerative colitis but I don't think it made a difference to my adrenals. I'll take a look at Adrenavive 11 as at the moment I'm just taking adaptogens. Jo x

[Jeppy in reply to jostafford0]

Which do you take? Do you feel benefit?

x

[birkie]

Hi jeppy

I'm on 50gm of Levo have graves and total thiyroid removal this may due to it being very toxic..I started to go threw the menupause when I was about 42 I'm now 57 can't take HRT as I had several blood clots ..I was diagnosed with osteoporosis about 5 years ago but was given no advice about it ...started with thiyroid problems in about 2015 also diagnosed with rhumertoid to...on painkillers for pain also have fibromyalgia 😩 My GP has not done FSH for years even after my thiyroid menupause diagnosis and ostioathuritis diagnosis I've never had a bone density scan either I have server bone pain and muscle pain like you I would like to have a better quality of life I'm struggling with Levo and my thiyroid levels are not good I reckon I need a bone scan and reivaluation of my pain meds I'm 57 but feel like 87...also need a new knee cap due to athuritis it's bone on bone the pain is so bad,,,but been told I can't have it till I'm 60 😩😩😩

[Jeppy in reply to birkie]

Hi I replied

It's under this lol

[Jeppy]

So sorry, I do understand. I ve hobbled since 2012 and I'm worn down with it and I feel muscle is weak in legs although I try to exercise

Do you mean TSH? I'm unsure what levels you look at after the operation, but it will be known here

Well I hope,you get help for bones, How did you know,you had clots?

If you are natural minded, phone Helios, they provide tissue salts for bone density increase, nothing to loose and not expensive. They post them out.

How are you with T3. I know some take it on it's own ?

[Jeppy]

Hi I can't find it

[birkie]

Hi

I went blind in my right eye a large clot developed on my retina I was in hospital on warfrin introvenis.. I had thrombosis develop it again a bout a year later was taken off the contraceptive pill and told I would not be able to take HRT... My gp will only look at TSH won't look at T3 or T4... My TSH is suppressed I've not been offered T3... My gp wants me to come off levo for six weeks... I'm unsure about this..., 🤔

[Jeppy in reply to birkie]

Which HRT was it

Poor,you, What is your tsh.

I'd write a post to ask

[birkie in reply to Jeppy]

Hi..

My TSH is 00.5...its suppressed

[birkie in reply to Jeppy]

Hi sorry I put TSH... 🙁 I've never been on HRT... ☹️

[Jeppy in reply to birkie]

Why does he want you to stop it??

[Jeppy]

Yes. Why does he want you to come off it

[birkie]

Hi

He wants to see if my TSH rises.... But Ive had my thiyroid removed so the link between my pitruitry gland and thiyroid is broken so I would think my TSH would always be low... But try telling him this it's impossible he thinks he knows best but his not qualified that's why I'm going to inquire about this with the endo.. 👍

[Jeppy in reply to birkie]

Definitely. Do that

I still think you should do a post on here

The last thing you want is to be ill.

Others (greygoose but maybe shouldn't say) have said they haven't thyroid gland. She knows ALL this please ask

[birkie in reply to Jeppy]

Hi

I have graygoose has given me some great advice and shaws to that's why I'm getting in touch with my endo.. 👍👍

[Jeppy in reply to birkie]

😃 still ask them and then can compare to endo

My endo is not up to speed sadly

[Jeppy in reply to birkie]

Worse, it's sounds like an experiment.

Please do yourself a favour and get proper support