Help interpret bloods- tsh all over place. Edocrinologist next week. Dont know what to ask or expect. Would t3 help me?

[Pooka77]

This is a never ending nightmare.

So in summary, after July when my tsh was routine tested and foundto be 0.36 the gp I didn't know reduced my levo from 150 to 125. After 6 weeks I felt awful and tsh was 4.38. Gp I know increased back up to 150. After 3 months it is now 0.32 and free t4 27.8 and so dose decreased to 125/150 alternate days.

I am due to see an endo next week. Still don't know what all this means, it all still confuses me. I have gone gluten free but I am unsure if it has made any real improvement. When I did reintroduce gluten after 3 months I have stomach pains and was very bloated so have decided to keep on being gluten free for now at least. I must say i do keep getting palpatations and funny fluttery feeling in my chest so am inclined to think the thyroxine dose is too high.

Any thoughts anyone? What should I be asking next week at endocrinologist? Does anyone understand my bloods and the way they rebound all over the place? This endo does px t3, would this apply to me?

To top it all i think i am in the menopause and only 42. I think i jave a prolapsed womb. I feel wretched. All i want to do is cry. All this and i still feel tired most of the time.... I literally dont know what to tackle first.

[SeasideSusie Remembering]

Pooka77

Does anyone understand my bloods and the way they rebound all over the place?

This is because you have Hashi's, and fluctuations with test results and symptoms are par for the course with Hashi's as and when the immune system attacks the thyroid.

It might help to re-read this previous post of yours and the responses, especially from Greygoose and SlowDragon who both gave you excellent advice and lots of information explaining tests, etc:

healthunlocked.com/thyroidu...

SlowDragon gave you some links about Hashi's, here are some more:

stopthethyroidmadness.com/h...

stopthethyroidmadness.com/h...

hypothyroidmom.com/hashimot...

thyroiduk.org.uk/tuk/about_...

[greygoose]

Decreasing and increasing your dose of levo would cause your TSH to move around. It reacts to the level of your thyroid hormones. That's its job. But that doctor was a lunkhead to have reduced your dose with a TSH of only 0.36. That is by no means too low. And, your FT4 may have been over-range, but the questions is: how much of it are you converting? As you felt unwell with the reduction in dose, I'd say not a lot. But, I don't suppose he even tested the FT3, did he? You are only over-medicated if your FT3 is over-range.

[Pooka77 in reply to greygoose]

And what about the palpitations? Would I show symptoms of being overtreated if I wasn't converting t4 to t3? And in regards to the endocrinologist, is it likely I would benefit from treatment with t3 do you think?

[greygoose in reply to Pooka77]

No, you wouldn't. You'd have hypo symptoms because it's low T3 that causes hypo symptoms. But, palpitations can be a hypo symptom.

There's no way of know if you would benefit from taking T3 without seeing your FT4 and FT3 tested at the same time.

[abibunny in reply to Pooka77]

I have a history exactly the same as yours spanning 4 years of rollercoaster symptoms and my suggestion would be get your t3 tested as well. I am in a small clinical sub group of hashis patients that can’t convert t4 into t3 so it doesn’t really matter how much t4 I take I don’t feel the benefits. I’m on a combination t4 and t3 and have been for 2 years and counting and now pretty much symptomless.

[Pooka77 in reply to abibunny]

I have been to a&e tonight. I had palpitations and felt awful. I have had it on and off for 3 weeks but tonight was worst. Lasted couple of hours. Pulse up to 130 sat down. I had to leave work early (work nights).

In Nov my levo was reduced. I had been feeling ok but they said it needed reducing. I was hoping to make it to my next app with endo consultant next month so he vouldreview it. I feel like i did b4 i was dignosed tbh. I got palpatations then too.

They did ecg and bloods in a&e tonight and all normal.

Is it possible that my hypo is undertreated? It still confuses me that it could cause palpitations.

I'm wondering whether to stick it out or to just up my dose on my own. I had bloods done on 7th but for some weird reason they still aren't back.

I'm so bloody fed up. I can't afford to miss work.

Is t3 the answer?