Can anyone explain why

[Buckley123]

Hey guys can anyone explain why I get all the symptoms of thyroid hypo but my levels are in range but my antibodies are raised ? My throat plays up a lot atm I just can’t understand it xxx

[DippyDame]

"My levels are in range", means diddly squat I'm afraid. Medics trot this out because they don't generally understand thyroid disease/test results.

If it were otherwise this forum would not exist!

What was tested?

What medication/dose are you taking?

It is quite common for patients to be undermedicated

Raised antibodies suggest Hashimoto's....

many find a gluten free diet helps.

I don't have Hashi's so hopefully someone else will pop up with advice

This might help...

thyroiduk.org.uk/tuk/about_...

We are advised to have the following tested in order to get a proper idea of what is going on...

thyroiduk.org.uk/tuk/testin...

It will help members advise if you post any results you have, including ranges.

Good luck

DD

PS. I've just looked at your profile and see that SeasideSusie has already offered lots of advice. I suggest (from personal experience) that you follow that, without advice from SS and others here I would now be very ill!

Sadly there is no instant magic pill you just need to read, learn and act with patience on the advice offered. Sorry, don't mean to be blunt but that is the way forward. It works!

[Buckley123 in reply to DippyDame]

Thanks dd

I’m not on any medication

My b12 has always been low so I have b12 shots for pa

Low vit d with I supplement for

Low iron because I’m Anaemic

My thyroid antibodies pto are raised

But my tsh are 2.65 range 0.27>4.2

T4 17.8 range 12-22

T3 5.44 range 3.1>6.8

I understand that is isn’t much compared to other people but I feel rubbish I have uctd too and I’m trying to find a way to feel better xx

[DippyDame in reply to Buckley123]

It doesn't matter about how others feel the important thing is how you feel....and clearly that is "rubbish".

I know nothing of uctd but is this of any help...

rarediseases.info.nih.gov/d...

It sounds as if you need to have a chat with your GP. Make notes of all the issues you have and take those with you. It's easy to forget things in a surgery setting

My feeling is that you would benefit from the addition of levothyroxine.

The following are a list of symptoms and some info...

thyroiduk.org.uk/tuk/about_...

thyroiduk.org.uk/tuk/about_...

I wish I could be of more help

DD

[Buckley123 in reply to DippyDame]

Thanks dd

As slow dragon says they are only

Slightly over range maybe it’s not

Because of

Thyroid xx

[DippyDame in reply to Buckley123]

I don't think you should ignore a thyroid connection.... take heed of what SlowDragon has said.

It is a lot to absorb, take time to sort and straighten out the details.

[SlowDragon Administrator]

Your TPo antibodies are only just above range

healthunlocked.com/thyroidu...

Hashimoto's frequently affects the gut and leads to low stomach acid and then low vitamin levels

Low vitamin levels affect Thyroid hormone

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

While still eating high gluten diet ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first

Assuming test is negative you can immediately go on strictly gluten free diet




(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)




Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

ncbi.nlm.nih.gov/pubmed/296...

The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported

ncbi.nlm.nih.gov/pubmed/300...

The obtained results suggest that the gluten-free diet may bring clinical benefits to women with autoimmune thyroid disease

nuclmed.gr/wp/wp-content/up...

In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

scdlifestyle.com/2014/08/th...

drknews.com/changing-your-d...

restartmed.com/hashimotos-g...

Ask GP for ultrasound scan of thyroid

[Buckley123 in reply to SlowDragon]

Thanks slow dragon 🐉

So the symptoms I have can’t be thyroid related ? Xx

[SlowDragon Administrator in reply to Buckley123]

Yes they can......and many find strictly gluten free diet helps, sometimes significantly

[Buckley123 in reply to SlowDragon]

Thanks again for your knowledge and taking the time to reply I shall look into it xx