Am I hypothyroid?: Hi all, new here. Got to the... - Thyroid UK

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Am I hypothyroid?

TasFish profile image
16 Replies

Hi all, new here.

Got to the point where I don’t know what to do!

Had ALL hypo symptoms for 8 years now, (I’m 38)

Sudden weight gain: inability to lose weight

Hair loss, dry skin, feeling cold, dry eyes, no outer eyebrows, water retention, aches and pains, brain that refuses to function, extreme fatigue and a basal body temp of 35.5. amongst other niggles.

TSH levels have been borderline for that 3 years of tests. (Gradually got worse!)

But doc says wouldn’t prescribe anything with these blood results.

Latest bloods are;

Serum TSH 4.63

Serum free T4 13.1

Thyroid antibodies <9. ??

Also white blood cell count is consistently high but I figure the doc is just looking at my latest results, not collectively.

White blood cells 10.71 (just out of normal range)

They did test for free T3 but those results are not on the printout I got from the doctors! Not sure why?

What do you think of my results?

I’m literally pulling (what’s left) of my hair out.

😞

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TasFish
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16 Replies
silverfox7 profile image
silverfox7

Could you add in the ranges for your results please? Ranges vary from lab to lab so without them we should just be guessing.

TasFish profile image
TasFish in reply to silverfox7

Hi there!

Thank you so much for replying.

The ranges are as follows;

TSH 4.63mlU/L 0.27-4.20mlU/L

Free T4. 13.1pmol/L 12.00-22.00pmol/L

Thyroid antibodies. <9 IU/mL

0.00-34.00Iu/mL

SlowDragon profile image
SlowDragonAdministrator

Can you add the ranges on FT4 result. It looks low

You need BOTH TPO and TG thyroid antibodies tested

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Ask GP to test vitamin levels

You will need to get full Thyroid testing privately as NHS refuses to test TG antibodies if TPO antibodies are negative

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water . This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or all vitamins

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

If antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).

About 90% of all primary hypothyroidism in Uk is due to Hashimoto's.

Low vitamins are especially common with Hashimoto's. Food intolerances are very common too, especially gluten. So it's important to get TPO and TG thyroid antibodies tested at least once .

Link about thyroid blood tests

thyroiduk.org/tuk/testing/t...

Link about antibodies and Hashimoto's

thyroiduk.org.uk/tuk/about_...

thyroiduk.org.uk/tuk/about_...

List of hypothyroid symptoms

thyroiduk.org.uk/tuk/about_...

Come back with new post once you get results and ranges

TasFish profile image
TasFish in reply to SlowDragon

Thank you so much for all that information!

I have one last ditch attempt at getting the doc to listen and order full antibodies or else I will get bloods through one of the company’s suggested.

I know I’m hypo! I’ve known it for years but sadly, the gps just don’t trust that patients know their bodies better than they do!

Thanks again 😁

SlowDragon profile image
SlowDragonAdministrator in reply to TasFish

GP can't/won't be able to get TG antibodies tested on NHS

He could test vitamins

Buddy195 profile image
Buddy195Administrator

Hi TasFish, welcome to the forum!

I hope the doctor provides the test results needed. If not, do them yourself on Medichecks, post on here and you will get lots of great advice. I’ve had many of your symptoms, so understand how you are feeling. I feel better for taking some vitamins- but you must get tested first ( eg on Medichecks- can get vitamins & thyroid tested together) see what you are low in, again post on here and ask for advice before heading to the shops. Have you tried going gluten free? It really does help many people with thyroid issues.

silverfox7 profile image
silverfox7

It wasa basal temperature similar to yours that shook me into sorting myself out and I still take my temperature every day on waking. Think it’s an excellent hint as to what is going on. Mine is now 36.9, sometimes drops to 36.8 so pretty good now.

I would also work on vitamins as well. I was surprised what a difference to made to get those optimal as well. I was wanting to go back onto NDT so needed to get those right first having read that it’s not always that easy to take any form of T3 until these things are sorted so having done that the switchover went without any problems. That’s something l’ve learn over the years is to get the basics right first .Sometime they can take some time but then I’ve found it takes even longer if not addressed.

LAHs profile image
LAHs

The range on your TSH is unusual but if the units are indeed mlU/L (which is what you say) then you are bound to feel ill. I would be in a coma with a TSH of 4.63 mlU/L.

Start thinking about getting your own blood tests. Get what you can on the NHS but anything they will not do, get them via Medichecks. Post your results here and get our opinions. You may then have to find a doc who will start you off on Levothyroxine, probably 50mcg to begin with. If Levo works you are lucky, it works on most people but not on many of the people who write on this forum. However, take that route first then you may have to branch out into T3 supplementation or NDT - but we'll talk about that later if the Levo doesn't work. Now, right at the beginning it is a bit expensive because of the many blood tests you will need in order to check how your medication and changes in dose are going. However, you will get to your critical dose quickly if you do your own monitoring and then you will only need one blood test per year just to keep things on track.

TasFish profile image
TasFish in reply to LAHs

Yep, that’s the correct units.

Why does doc insist on saying I’m only borderline?

I literally can’t function so to have him say that to me is really frustrating!

LAHs profile image
LAHs in reply to TasFish

I would recommend you fiddle with your dose until you feel well. Watch your blood pressure, pulse rate and body temp, do not let any of these go outside of normal ranges. Your doc will not know how to do this because they will just look at your TSH and where it is within their guidelines - which are incorrect and out of date.

vocalEK profile image
vocalEK

Yes, the range for your TSH is very strange. The entire range is only 0.2 units?

In contrast, my lab's range is 0.300 - 4.200 uIU/mL - The entire range is 3.9 units. Are you sure that the low end of your range isn't 0.400 uIU/mL?

TasFish profile image
TasFish in reply to vocalEK

I’m trying to put a picture up of my results, but can’t seem to find an option?

The results and ranges as is exactly on my printout are;

TSH 4.63 mlU/L. ranges-0.27-4.20mlU/L

FreeT4 13.1 pmol/L 12.00-22.00pmol/L

Is there a way to uploads pic to confirm please?

Thanks for your reply x

humanbean profile image
humanbean in reply to TasFish

Ah! That makes more sense. In your earlier reply to this post you typed in this :

TSH 4.63mlU/L 4.00-4.20mlU/L

not this :

TSH 4.63 mlU/L. ranges-0.27-4.20mlU/L

The second range makes sense, the first range doesn't.

TasFish profile image
TasFish in reply to humanbean

😲 that’s how well my brain works nowadays.

😆

With the correct ranges, what is your opinion pls?

vocalEK profile image
vocalEK in reply to TasFish

No question in my mind. You are hypothyroid. Only in the UK do they make you suffer horrendous symptoms as your TSH climbs up to 10. In the U.S., you would be treated already with a TSH that high. Your FT4 is also quite low. You might want to take a look at this article, which contains optimal values for thyroid function tests. restartmed.com/normal-thyro...

TasFish profile image
TasFish in reply to vocalEK

I can’t tell you how relieved I am to finally hear that!

8 years of doctors telling me otherwise and even one suggesting it’s all in my head!

Thank you so much for the resource, gonna read and take notes for the Gp.

Thanks again 😊

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