I should say I have emailed my local MP who will reply to me in 10 days. I have told her my story and the way the NHS will only test TSH for thyroid patients. I have told her that just testing TSH is not giving the doctor a full picture of the patients thyroid function and they should test TSH, T4 and T3 to get a better idea of how the thyroid is functioning. I will publish her reply on here because I have told her about this site.
Here's hoping she does something to help us.
Sorry about the massive typo pmsl it should say CONSERVATIVE! I hope admin can rectify this for me .... I am still laughing!
You may not realise that you can edit any posts or responses you have made here.
HealthUnlocked have produced a simple demonstration of how to do this. You can find this here:
support.healthunlocked.com/...
When you edit the original post in a thread, you will also have the option to add (or remove) a single image. (To replace an image, remove the existing image, then add the new one.) This is the same process as writing a new post:
support.healthunlocked.com/...
I am pointing this out purely to ensure that you know your options. 
(If you make extensive changes, it is sometimes helpful to add a comment so that people can see that you have made changes.)
Don't hold your breath waiting for a positive, pro-active reply.
Thousands have written or been to see their MP's, especially about being denied Liothyronine
See questions asked and debates in parliament here
Liothyronine
theyworkforyou.com/search/?...
Thyroid
theyworkforyou.com/search/?...
Scottish parliament debate on T3
scottishparliament.tv/meeti...
And on treatment
I have just received an email from my local MPs office asking for more details so she can address this to other ministers in Parliament. I am beyond happy and I am hoping she might actually support our cause.
Here's hoping everyone!
I have just sent her assistant some links for him to show her about the debate in the Scottish Parliament and also ours .... lets hope she does something to help our cause because I think we treated better years ago than now. Doctors then went by symptoms and you were given NDT instead of the artificial Levothyroxine.
I have just received a letter from my local MP about this and she has contacted the Rt Hon Matt Hancock MP, Secretary of State for Health and Social Care, to pass on my account of my experiences and my request for more thorough blood tests made available to GPs in order to improve the provision of care. She will keep me informed as and when she receives any update. She was also sorry to hear of my experience of falling ill at a wedding and the lack of appropriate care that I received following the incident.
I am smiling now and it is the first time for years anyone has even cared about the way I was treated by Doctors and the NHS!!
Hopefully I will get more action with this once the general election is over
I will be going to see my MP again after Christmas and see when she is going to put our cause before Parliament.
I have just had a letter from my local MP and she tells me that she has received a response from Caroline Dinenage Mp, Minister of State for Care and the only reassurances she can offer is that the approach to diagnosis and treatment of thyroid disease is kept under constant review but my MP has asked what steps the NHS may consider taking to improve in this area. She has also asked her to look into the concern some patients have about when we leave the EU about receiving their supplies of NDT through EU prescriptions. I will get a an update as soon as she gets any information about this. I will keep on asking her questions about this but as others have said these are just words which might not mean a thing.
Should I increase my Levothyroxine?
My daughter is newly diagnosed - could I have a little advice please?
Was i Hypothyroid or did i have euthyroid sick syndrome.
Please would you read this letter I have wrote to my gp...
How do I convince doctor to do something about my thyroid problem? What should I be asking her to do?
