Help with results and t3

[Cheekycharlie1981]

So yesterday I had more bloods done as I’ve not been feeling well. I’ve had a stomach bug for over a week, very low iron and problems taking t3.

So 2 days ago I stopped the t3 I was taking 2.5mcg as not coping with the full 5 and 150mcg Levo. I was having night sweats again and feeling very anxious and not sleeping with sickness. My t3 had been reduced for a week due to the stomach bug.

So I upped my Levo to 175mcg from 150mcg, then I dropped the t3 . I really did not know what to do.

Anyway I have slept a little better the last 2 nights but feel shocking as waking up. I know the Levo takes weeks to get back into my system.

Anyway I had bloods last night and today I’ve the results. I’ve already cried as they have not tested my t3 or t4 despite me been on t3, the lab refused as I’m in range. My range is a shocking results. 20 days ago I had a THS of 1.6 not awful but not great, now my TSH is 3.14. Ranges is 0.83-5.5. And my gp and some lab think that’s fine.

What do I do? stay on my Levo at 175mcg. Go back on the t3, as I was ill on top of the symptoms so not got a true result?

I’m scared of not sleeping, I’m worried my body needs the t3 to convert and the 1.6 was better than before when I just Levo.

My endocrinology department are awful, had to fight to be seen, I’ve begged for another brand of t3 but won’t give me. Plus half the consultants at Barnsley won’t see someone taking t3 even though it’s prescribed by an endo there, that has passed me to another endo who’s times don’t even fit around me or baby.

I really want to curl up and cry as I feel so unwell and no one cares. I’m losing my fight.

[Marz]

I see you have been on the Forum for three years so I'm sure you will have read that thyroid hormones do not work well when Iron is low. How are your levels of B12 - Folate - Ferritin - VitD ?

[Cheekycharlie1981 in reply to Marz]

My b12 was quite good and I supplement, but D is usually around 60 if I’m lucky I now take vitt k as well as d with fatty food.

My gp has just called and I now have the t4 and t3. Not really sure what to make of results. I’m going to create a new post for clarity. Thank you.

[SlowDragon Administrator in reply to Cheekycharlie1981]

Vitamin D is too low.

GP will only prescribe to bring vitamin D up to 50nmol. Aiming to improve by self supplementing to at least 80nmol and around 100nmol may be better .

Once you Improve level, very likely you will need on going maintenance dose to keep it there.

Retesting twice yearly via vitamindtest.org.uk

Vitamin D mouth spray by Better You is good as avoids poor gut function.

It's trial and error what dose each person needs. Frequently with Hashimoto's we need higher dose than average

Local CCG guidelines

clinox.info/clinical-suppor...

Government recommends everyone supplement October to April

gov.uk/government/news/phe-...

ncbi.nlm.nih.gov/pubmed/286...

Vitamin D deficiency is frequent in Hashimoto's thyroiditis and treatment of patients with this condition with Vitamin D may slow down the course of development of hypothyroidism and also decrease cardiovascular risks in these patients. Vitamin D measurement and replacement may be critical in these patients.

endocrine-abstracts.org/ea/...

Evidence of a link between increased level of antithyroid antibodies in hypothyroid patients with HT and 25OHD3 deficiency may suggest that this group is particularly prone to the vitamin D deficiency and can benefit from its alignment.

If vitamin D is low, B vitamins may be too. As explained by Dr Gominack

healthunlocked.com/thyroidu...

What were actual results and ranges on B12 and folate.