Just p***** off...

[Calends]

I really hate this ****

That is all.

Hope some of you got good news today.

[shaws Administrator]

It is a huge struggle for us who aren't improving on levothyroxine, and the options have all been removed by those who should know better (i.e. that all patients don't recover on levo alone).

The forum gives encouragement to those who're struggling and it is of benefit to know that others are in the same boat and also those who've now found a way through a maze to reasonable or good health..

Many, through help/advice of members can eventually recover their health - despite the guidelines and unknowledgeable doctors/endocrinologists.

Doctors, of course, have to stick to the guidelines to the detriment of many patients who could improve with an alternative thyroid hormone. i.e. NDT (natural dessicated thyroid hormones) removed from being prescribed through False Statments made by those who should know better and despite it being safely used since 1892 and saved thousands of lives worldwide and up until the present. They've also removed another lifeline which is T3 and the 'perfect' excuse i.e. the cost - but still state T4 is the 'choice' (not much of a choice if it is one only replacement hormone and patients remain unwell) - of those who are supposed to know more than the patient with the belief that levo alone will resolve symptoms. They are willing to prescribe 'other prescriptions' to try to resolve remaining symptoms - not cost and effect.

We need more compassionate doctors like Dr Skinner, Dr Peatfield, Dr Lindner (USA) plus they also knew/know how to treat patients and restore health and Dr Broda Barnes.

en.wikipedia.org/wiki/Broda...

[Ladybex in reply to shaws]

So true ... Levo isn’t helping me ... back and forth to Dr’s and Consultants ☹️

[shaws Administrator in reply to Ladybex]

The reason that many on this forum source their own (they shouldn't have to) thyoid hormone replacement is that they are not recovering their health as they should have. Many patients seem to do well on levothyroxine alone but they're not on this forum. If you've been taking levo for sometime, with increases until TSH is 1 or lower, maybe consider an option - which would be NDT or T3 added to T4. I know that T3 is very difficult to source at present.

[Ladybex in reply to shaws]

I mentioned this to my Dr and he said they don’t prescribe it ..

[shaws Administrator in reply to Ladybex]

No, they don't but they used to. To get NDT withdrawn misinformation was given in order to do so. Why???? Because some at the 'top of the tree' decided to have this life-line withdrawn. One of TUK's deceased Advisers wrote the following Rebuttal. Despite three yearly reminders before his accidental death, they never did respond. You cannot twist the 'truth' and patients who recovered on NDT had their health restored were forced to source their own. It is is more than disgraceful.

drlowe.com/thyroidscience/C...

[SlowDragon Administrator in reply to Ladybex]

Ladybex

Looking at previous posts, you seem to be still only be on 25mcg Levothyroxine, this is only half the standard starter dose

Hardly surprising you feel terribly

You need Levothyroxine dose increase.

See different GP if yours won't increase dose

[Hidden in reply to Ladybex]

Perhaps you should ask your doctor why, when both Levothyroxine and Liothyronine have never been subjected to adequate medical trials, the former is highly recommended and the latter is banned in some areas of the country precisely because of that reason. eg in all of Lancashire by the Lancashire Medicines Management Group. It certainly baffles me and makes me wonder how the Lancashire CCG's will be able to justify the removal of the ban if and when the price of Liothyronine reduces to its previous level.

[SlowDragon Administrator in reply to Ladybex]

Until you get Levothyroxine dose up near full replacement dose, (i.e. At least 100mcg) you won't know if you need T3

It is still possible to be prescribed T3 on NHS, but 3-6 month trial must be initially diagnosed as necessary by NHS endocrinologist.

[LAHs in reply to Ladybex]

Ladybex, while you are on Levo (T4) only and if increasing the dose doesn't work, take selenium. Without selenium the T4 to T3 conversion will not work. T4 to T3 needs selenium as a catalyst. Measure your level first to make sure you are deficient and if you are, start taking selenium. You should then start to generate T3 and you will feel better.

[Ladybex in reply to LAHs]

Thank you LAHs will ask my Dr 😊

[NWA6]

😢