Can the formation of a goitre after a year on T... - Thyroid UK

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Can the formation of a goitre after a year on T4 help with the argument that monotherapy is not working?

Kipsy profile image
10 Replies

Just wondering:

March 2017- Hashis diagnosis

April 2017- started levothyroxine

June 2017- NHS endo wrote to GP stating no goitre

May 2018- private endo wrote to GP stating presence of a goitre

Alongside blood results showing low T3, could this help my argument or is there a scientific reason why I shouldn't highlight the development of a goitre during a year of T4?

Thanks in advance!

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Kipsy profile image
Kipsy
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10 Replies
greygoose profile image
greygoose

Might be a good idea if you gave us the actual numbers - results and ranges. That would help people understand better what's going on. :)

Marz profile image
Marz in reply to greygoose

healthunlocked.com/thyroidu....

Results from a month ago in the above link ....

greygoose profile image
greygoose in reply to Marz

Thank you, Marz. :)

Kipsy, I'm not sure, but I don't think it's the low T3 causing your goitre, because your FT4 is high, and your TSH is low. So, the TSH isn't flogging the thyroid to make more hormone. So, I'm not sure you can use that as an argument.

Your best argument is that you are a very poor converter, as seen by your high FT4 and low FT3. And, if that doesn't convince them, I'm not sure a goitre would. :(

Kipsy profile image
Kipsy in reply to greygoose

Thank you GG- you’ve exactly hit the nail on the spot as always. I won’t be pushing that reason with the GP! Private endo has put me on T3 and has written to GP. I was just thinking ahead...

Thank you.

Kipsy profile image
Kipsy in reply to greygoose

Prefect answer Greygoose- thank you for clarifying it. Much appreciated.

greygoose profile image
greygoose in reply to Kipsy

You're welcome. :)

Kipsy profile image
Kipsy in reply to Marz

Thanks Marz. I didn’t want to trouble everyone with my results and long winded previous post again.

pffft2017 profile image
pffft2017

It sounds to me like you've got them banged to rights. Any reasonable medic would agree that T4 isn't working for you, the goitre is the evidence, but there aren't that many reasonable consultants about. Try to find one without a god complex and who prescribes T3. Good luck!

Marz profile image
Marz

Hi Kipsy - is it something you are aware of or only knew once mentioned by the Endo in the letter ? I was very aware of something in my throat when first diagnosed but it seemed to settle as treatment progressed. I think thyroids swell due to inflammation/Hashimotos - but also in an effort to produce more thyroid hormones - hopefully it will settle when your treatment is optimal ....

Give it a bit of time :-) Have you had a scan ? They routinely scan here - but not in the UK it seems. A Scan could re-assure you ....

Kipsy profile image
Kipsy in reply to Marz

Hi Marz- no i wasn’t aware of it before I saw the endo. Just wondered if it’s something I could use in my argument when I’m trying to convince GP to refer me to an NHS endo. As you know, private endo has prescribed T3 but I can’t find ace it forever unless Germany becomes easier to deal with. Then there’s all the private prescriptions I’d need etc..

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