Have your say on NICE draft guidelines on thyroid treatment and management - survey closes 30th June

[LJG84]

Hi apologies if this has already been posted but a survey link below from Improve Thyroid Treatment Campaign (ITT) on thyroid treatments and have your say on NICE draft guidelines on thyroid management and treatment:

docs.google.com/forms/d/e/1...

Survey closes on 30th June.

Thanks

[shaws Administrator]

Thanks for posting and I hope many members will respond.

[shaws Administrator]

I've responded and thank you for posting. It's about time they asked for the patients' point of view, instead of the Associations laying down the law which doesn't improve our health and withdrawing thyroid hormones that are a necessity for many, other than levo.

[Nico101 in reply to shaws]

I bet they regret asking the patients for their point of view once they see the response, lol.

[Nico101]

Just done mine. It was pretty scathing, as I'm going through it all at the point of writing and having to fund my own tests - and likely my own NDT once the results are back.

Let's just say I did not hold back.

[knitwitty in reply to Nico101]

Me neither!

[Gcart]

I responded 🤭 there will be no doubt about how I feel about the ‘care /understanding ‘ some receive re thyroid

[Kensington18]

Thanks for your post, I have just completed the survey, no holes barred as my Armour Thyroid was withdrawn because of COST!!!

We hope someone with some intelligence will read and take on board all the comments

because the Committee seem to have false evicence.

Again many thanks.

[LJG84]

Great thanks everyone for taking the time to fill in the survey. I was pretty shocked at the broad statements and recommendations they are making. Fingers crossed the information will be put to good use and not wasted.