ITT Improve Thyroid Treatment have a survey to reflect the patients' voice on the the NICE draft guideline on thyroid disease and management. It ends on 30th June.
Please complete it! forms.gle/E3kC53BdqNtJnpao8
If you have any further comments, please email them to Ittcampaign@hotmail.com
We need as many responses as we can get to truly reflect patients' views. So please..!
Thanks for posting Tara. Only a few days left for replies. Please have your day!
Completed survey
Only just seen this, but still have a few days to respond.
Starting to read the notes on Question 1 I came across this:
"Some evidence suggested that combination therapy with levothyroxine and liothyronine could be harmful because it may suppress the production of TSH. "
The key question is: "What is the documented evidence that TSH suppression in otherwise optimally treated hypothyroid patients is harmful?"
Many thanks for completing the ITT survey. And please share with whoever you can, and wherever you can! There are only a few days left now.
I am still struggling with it? There is so much I want to say, and I am so angry at some of their stupid questions!
The questions mostly refer to NICE wording. If you have more comments, or if it's easier to email them, then please do that. Address in the original post
It keeps cutting me off and returning to the starting blank page! I managed to save most of my answers but have only got as far as question 4 or 5.
Is there a word or time limit for filling it in?
Maybe I should write to them instead, as you suggested.
Oh dear I am sorry. I haven' heard of any problems like that up to now. Are you using a phone or a MAC ? Maybe they don't work so well? But I'm only guessing. Do feel free to email your comments in, as they're all being saved. It will be a shame not to get your thoughts sent in after you trying so hard.
I'm using a Windows desktop - can't type much on a phone.
I expect it's timing out - been at it since I first commented here! Almost reached the end this time, 4th attempt! At least have the answers copied into a Word document. Getting tired, try again tomorrow 
Done
Done. Now to reduce my blood pressure after reading it! The dog and cat quietly left the room as I ranted at the screen! Is it too early for glass of wine? 
NICE Guidance on Thyroid Disease - Final Guidance
NICE - patients should be more 'pushy'
ITT SURVEY - Have your say on the new NICE Guidelines 
Results of the 2017 Spring survey of hypothyroid patients – 12,146 individuals responded 
Have your say on NICE draft guidelines on thyroid treatment and management - survey closes 30th June
