So my recent post was what happened when I took liothyronine, which was really scary.
I don’t think it was an allergic response as I suffer various allergic symptoms due to high histamines levels building up in my body.
So on the day of the attack I actually spoke to the main endocrinologist consultant, I told him my symptoms. Told him that it might be the fillers in the tablets or just to higher dose of t3 for me. He said he’d arrange to see me, but 8 weeks on and he’d look at sourcing other brands of t3.
I immediately said I’m not waiting 8 weeks and I’d also looked into alternatives brands. I’ve spoke to the consultants secretary several times, she also aware of symptoms and the other brand names I’ve provided.
1 week passes and the endo consultant calls me, again asking symptoms. He said he was waiting on the hospital pharmacy to find an alternative. He also confirmed my appointment to see the nurse and trail the t3 under supervision. This taking 4hrs out of my day.
So long story short I went to my appointment yesterday on my daughters 1st birthday and with having to get childcare and my husband having to take me in. They apparently had no other dates with this time slot. So a big put out for me.
Anyway I arrive and see the same consultant, he asks my symptoms again, I say exactly the same. He says we have not found an alternative t3 brand yet and we are not prepared to use the same tablets I took before.
He said, so we can’t do anything till we find an alternative. I’ll see you in 8 weeks again.
So I’ve lowered my dose of Levothyroxine for 2 weeks did not take it yesterday. Plus had my child in care and put people out to help me. Plus they have wasted my time and at the cost to my health. I’m so upset and frustrated a phone call could of prevented this. Having been in hospital 10 minutes if that and no car or funds for taxi. I live rural not near by. The consultant said enjoy hospital till you get picked up!
So now I’m left miserable not knowing what to do, my health’s awful. The increase in Levothyroxine made my t3 conversion worse. Since having baby my thyroid gland has got smaller than it was previously, that’s after it had swelling.
How much is private scripts of Armour or t3? Is it worth seeking private treatment. I need my health but I’ve little money.
Anyway I’m so mad about yesterday, nice to know the consultant can’t remember me.
Written by
Cheekycharlie1981
To view profiles and participate in discussions please or .
I started my T3 on 1/8 th of a 25 mcg pill for first 2-3 days before going onto a 1/4. For me, even tho a tiny dose, it did feel ‘like rocket fuel’, but felt almost instant relief for totally stiffened hips. For the first 4-5 weeks bp, and pulse in particular, raised and didn’t go down till reached the full 25 mcg dose. I also got pain in ‘sternum’ ie heart going. It was as though the T3 made me super-hypo ( 50% hair also started to fall out in following months). I went on to 75 mcg of T3 and never got worse or prolonged symptoms.
Why are you not taking your levothyroxin? Lowering it to make way for T3? Even that ‘swop’ is very different from patient to patient; I removed 50 mcg of levo. ( leaving 75 mcg) to ‘make way ‘ for 25 mcg of T3 to find my FT3 went down! The combo T4:T3 treatment is not easy for some to master, not helped by TSH and FT4 declining ’out of range’. Try recording your by, pulse, basal temp, and how you feel...
Yes I can’t have lactose and I’m aware of teva and sigma Pharma t3 as been dairy free.
My Barnsley endo can’t aeem to dose me correctly as I took 175 mcg of levo on the day I 1st took t3 10mcg. The days before I took t3 I took 200mcg of levo which was increased for 8 weeks and conversion worse.
It seems Barnsley endocrinologists have not much clue on doses and how to treat me.
I’ve been told to reduce levo a lot more and introduce a very low dose of t3 to start.
I’m just lost at how stupid a specialist can be.
I’ve also just called the hospital pharmacy and found out they can source teva t3 and just need a scrip to order in. Why the hell did my endo not do this the day before I came in for my trail. Waste of my time.
I very much doubt he's a thyroid specialist. The majority of endos are diabetes specialists, with scant knowledge - and even less interest - in thyroid. I wouldn't bother with him, if I were you.
What’s bothering me is how he increased my levo to 200mcg then says reduce to 175mcg on the day I take 10mcg of t3? No wonder my body felt like it did.
I’m just worried he can’t get the dose right. I think it should be 150 mcg of levo for 2 weeks then 2.5mcg of t3. Or 125mcg levo 2 weeks and then 5mcg of t3. Not sure I even have it right.
I’m doing the leg work to get the alternative brands. Hospital chemist say no sigma Pharma on their suppliers but they fail to realise, they are the supplier. crying for health here.
Any endocrinologists in Barnsley/Sheffield/Wakefield that are competent?
Normally, we start by reducing the levo by 25 mcg and adding in 5 mcg T3. You should never reduce levo by more than that every six weeks. You can increase T3 by 5 mcg every two weeks until you reach 20 mcg, then hold for six weeks and retest. At that point, you can reduce the levo further if necessary.
No need to reduce the levo before adding in the T3, you can do it at the same time. But, 50 mcg would be too much if you're just adding in 5 mcg.
I'm afraid I have no idea what endos can be found in the UK, I don't live there.
So let me understand, long day, baby brain. I’m now taking 175mcg. So reduce this by 25mcg? But your saying do this at the same time or reduce before taking the t3?
Then increase in 5mcg every two weeks but not reducing the levo further?
Then staying at 20mcg for 6 weeks and see if levo needs reducing?
What if I present hypo symptoms upon increasing the t3 and never get to 20mcg. Reduce levo more? If so what increments would that be?
I just wanted to ask while it’s fresh in my mind, should I increase dose in morning for t3 for split dose throughout day? It’s harder in day as work and baby make getting times for meds difficult.
Whether or not you need to split your dose is a very personnel thing. Some people find they're better off taking it all in one go. Why not try taking it all in one go for the time being, see how it goes. You should do whatever is best for you.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.