Need some guidance : Hi this is the first time I... - Thyroid UK

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Need some guidance

Leahpw profile image
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Hi this is the first time I've posted but i'm completely confused with my results! My GP has said I have subclinical hypothyroidism and put me on 25mg of levothyroxine because I was symptomatic I had a bad reaction to them so they put on another levo brand same thing again so I was sent to a endo, he gave me very little time and just told me come back in four months I asked him to please tell me my ultrascan results he begrudgingly told me I have small nodules and my thyroid is like swiss cheese I also asked if I have hashimotos because of the high antibodies he said emm yes could be. So could anybody explain to me what they mean?

TSH 6.2 (Normal range 0.35-5.5)

FT4 14.3 (Normal range 10-20)

Anti-nuclear factor Abnormal

TPO 731iu/ml (Normal range 0-50iu/ml)

Sorry that its so long I'm so confused with the whole thing.

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Leahpw profile image
Leahpw
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SeasideSusie profile image
SeasideSusieRemembering

Leahpw

I wonder what the point of seeing an endo is if they don't explain things to you.

Anti-nuclear factor Abnormal

Explanation of this test - click on "What does the result mean":

labtestsonline.org.uk/tests...

In your case it possibly means:

TPO 731iu/ml (Normal range 0-50iu/ml)

This is positive for autoimmune thyroid disease aka Hashimoto's which is where the thyroid is attacked and gradually destroyed. Fluctuations in symptoms and test results are common with Hashi's.

Some members have found that adopting a strict gluten free diet can help, although there is no guarantee.

Gluten contains gliadin (a protein) which is thought to trigger autoimmune attacks so eliminating gluten can help reduce these attacks.

You don't need to be gluten sensitive or have Coeliac disease for a gluten free diet to help.

Gluten/thyroid connection: chriskresser.com/the-gluten...

stopthethyroidmadness.com/h...

stopthethyroidmadness.com/h...

hypothyroidmom.com/hashimot...

thyroiduk.org.uk/tuk/about_...

Supplementing with selenium l-selenomethionine 200mcg daily can also help reduce the antibodies, as can keeping TSH suppressed.

TSH 6.2 (Normal range 0.35-5.5)

FT4 14.3 (Normal range 10-20)

Over range TSH with normal FT4 suggests Subclinical Hypothyroidism and when raised antibodies are present then Levo can be prescribed.

What brands of Levo have you tried?

You could possibly be reacting to the excipients in the tablets, some people do find that they react to the Levo itself, they may need to start on a very low dose and build up very slowly. If all tablet versions cause you problems there are alternatives.

Are you currently taking Levo? Which brand? Are you having a reaction to this one?

Hashi's and gut absorption problems tend to go hand in hand and can very often result in low nutrient levels or deficiencies. It's essential that you have the following tested:

Vit D

B12

Folate

Ferritin

When you have the results, post them with their reference ranges and units of measurement for Vit D and B12 and members can help identify any problems and make suggestions.

Leahpw profile image
Leahpw in reply to SeasideSusie

Thank you so much for your reply and all the info!!!

I have been tested for all those deficiencies and they have all came back fine.

I can't remember which levo's I was taking but they were both caused me issues with heart pain and giving me palpitations that woke me from sleep, They raised my blood pressure and it has only started to return to normal. My Gp advised me to take 25mg every other day I did that for a couple of months but the heart pain was getting worse and more frequent. My GP thinks I might be intolerant to the levo but is unable to prescribe anything else, and the endo wont give me any kind of medication. On the bright side I should be getting my blood work done again next which will include finally checking my t3 and gluten intolerance .

SeasideSusie profile image
SeasideSusieRemembering in reply to Leahpw

I have been tested for all those deficiencies and they have all came back fine

Just to let you know, optimal levels are

Vit D - 100-150nmol/L

B12 - at least 550ng/L or pg/ml for serum B12, over 70 for Active B12

Folate - at least half way through range

Ferritin - at least 70, recommended is half way through range

If they're not at these levels they're not fine for a Hashi's patient

Rather than alternating 25mcg Levo, you could build up gradually by cutting the tablet, start with 1/4 tablet - 6.25mcg, build by by 1/4 tablet slowly.

Teva brand Levo causes problems for many, many people.

Leahpw profile image
Leahpw in reply to SeasideSusie

I just had a check yes It would seem that all but the b12 are low I will start supplementing asap. I will talk to my gp about having another go at the levo .Thank you so so much for you help!!!

shaws profile image
shawsAdministrator in reply to Leahpw

Maybe the following will be helpful:-

thyroiduk.org.uk/tuk/testin...

Frustrated2 profile image
Frustrated2 in reply to SeasideSusie

SeasideSusie~ Thank you for putting all these links up I’m also just starting to have thyroid issues and I’d like to understand them better. Even though my doctor explains it.. it’s still just hard to remember..

shaws profile image
shawsAdministrator

It is a pity that those whom we are going to consult, seem to know less than the patient. Quite discouraging I think.

LH44 profile image
LH44

'Lucky' to get Levo from a GP for subclinical, they sent me to an Endo to make that decision. Endo diagnosed me with Hashimotos/Autoimmune Thyroiditis & planned not to see me again (or rescan my thyroid - which had same result as yours). It wasn't until my Rheum had to decide whether to put me on stronger immunosuppressants he decided to trial me on Levo at my request. I've been on them since!

I'm gluten & dairy free (& also try to avoid Soya).

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