Should I start on thiamazole or not : I am 2... - Thyroid UK

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Should I start on thiamazole or not

blue-angel1001 profile image
10 Replies

I am 20 year old female,

have had multiple tests done for my symptoms (shaky, jitters, anxiety, sweats) and have normal TSH, Free T3 and free T4 levels, although my scan and uptake was 54% which is hyperthyroid (most likely graves) my doctor wants to wait a month to start any sort of medication. I am taking propranolol to help with the anxiety symptoms, but I am curious on other people’s experience with thiamazole. I would be doing a very low dose. Let me know what u guys think!

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helvella profile image
helvellaAdministrator

Some responses on your previous post assumed you are in the UK - but the mention of thiamazole suggests that you are not.

It might help for you to put your country on your profile. :-)

greygoose profile image
greygoose

So, did you get a print-out of your results? Did you get tested for Hashi's? I think you might get better, more informed replies if you posted your exact levels, with the ranges, and told us about your antibodies. Personally, I would not take anything without proper antibody testing. :)

blue-angel1001 profile image
blue-angel1001 in reply togreygoose

I will post my results

MaisieGray profile image
MaisieGray

"my scan and uptake was 54% which is hyperthyroid (most likely graves)"

You mentioned in your previous post, that you had tested negative for Graves', is this now in dispute?

blue-angel1001 profile image
blue-angel1001 in reply toMaisieGray

Yeah! She said they have tested the antibodies for graves and it was negative but she suggested that their could be antibodies they do not know how to test yet. Apparently the scan resembled patients with Graves

blue-angel1001 profile image
blue-angel1001

My levels are: free T3 is 3.1 ranging 3.0-4.7 of/mL, free T4 is 1.4 ranging from 0.8-1.4, and TSH is 0.40 ranging 0.40-4.50. I was tested for graves antibodies and the result was 2% inhibition ranging from 0-16%.

Scan and uptake 54% ranging from 7-29%

greygoose profile image
greygoose in reply toblue-angel1001

Well, those results do not suggest Grave's. Your FT4 is at the top of the range, but your FT3 is right down the bottom! You have a conversion problem, and the last thing you need is anti-thyroid meds.

Just say 'Grave's antibodies' tells us nothing. Antibodies all have names, and we need to know which antibodies were tested. However, you were 'hyper', now you have bottom of the range FT3 with a conversion problem, that is looking more and more like Hashi's, so you need the Hashi's antibodies tested. And they are called TPO antibodies and Tg antibodies. You must insist on having those tested before taking anti-thyroid meds because with those results, anti-thyroid meds will make you very ill.

When were those tests done, anyway?

blue-angel1001 profile image
blue-angel1001 in reply togreygoose

I had these tests done about two weeks ago.. I have to go in to the lab to get another blood test in a few weeks. I should call my endocrinologist and suggest a test for hashis? They have not checked that yet.

greygoose profile image
greygoose in reply toblue-angel1001

Most certainly you should, yes. It sounds more like Hashi's than Grave's to me. And, they probably won't think of it on their own. and you need the actual names of the tests that have been done. You have to question everything because their knowledge of thyroid is so limited, they make mistakes. I can't stress that enough - better sure than sorry!

blue-angel1001 profile image
blue-angel1001

Hi I’m in the US

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