Follow on from visit to hospital thread. - Thyroid UK

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Follow on from visit to hospital thread.

Cheekycharlie1981 profile image

So I’ve taken my first 10 mcg tablet of liothyronine and I’ve just had the ambulance team round as I’ve reacted to the tablet.

So I took half the tablet and within seconds of taking it my body went hot inside, a bit like when your injected with x ray solution. I felt like I was falling and going to black out.

I’ve had my vitals done all normal.

I’m now weird in the head, like I’m gonna faint, my heads weird full feeling.

Spoken to endo and he said stop taking it. I’ve thought for over a year to get t3.

Is it the binding agents rather than the t3 itself?

Struggling to type but any advice/thoughts as I feel drugged.

Note I’ve not had an allergic response like I normally do, no rash etc so the react is not normal.

I need the t3 to help me and this happens. Help.

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Cheekycharlie1981
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SeasideSusie profile image
SeasideSusieRemembering

Cheekycharlie1981

Is it the binding agents rather than the t3 itself?

Who knows. You can check the excipients that will be listed in the patient information leaflet, see if they differ from what's in your Levo. If there's some excipient that you've not come across before then it's possible.

What brand is your T3?

However, in reply to your previous post

healthunlocked.com/thyroidu....

SlowDragon suggested

Adding T3 ....starting slowly at 2 x 5mcg as split dose. Retesting bloods in 6-8 weeks

So maybe 10mcg all at once was too much, it's a powerful hormone compared to Levo, one practioner I consulted likened it to rocket fuel (although I never had any reaction to it).

I would have even suggested starting at 5mcg daily for 2 weeks to let your body get used to it and then increase by 5mcg increments.

SlowDragon profile image
SlowDragonAdministrator

BEFORE starting T3 we need GOOD levels of vitamin D, folate, ferritin and B12

Your previous posts show low vitamins

Have these been tested again recently?

Vitamin D at least around 80nmol and around 100nmol may be better

Folate and B12 towards top of range

Ferritin at least half way in range

What supplements are you currently taking to improve these

Add you on strictly gluten free diet

Personally I started T3 at only 2.5mcg twice a day (an 1/8th of tablet) and that was still a hefty whoosh for first few doses.

The tablets are so tiny anyway so hard to cut them up.

The heat I got through my body and the feeling of I’m falling was scary I thought I was a gonna faint. Now I’m in bed and my heads like I’ve been drugged, I’m not me.

It was mercury pharma brand and I take teva levothyroxine. The t3 does have lactose in something I should not have but I thought the sacrifice was worth taking the t3. It’s not the lactose that caused this though.

The endo says not to take the t3, I’m left not knowing what to do tomorrow. :( it scared me enough to call 999 as I’ve a 11 month baby to care for.

What other brands of t3 are their?

My last levels are on previous post and I supplement d, c, zinc, magnesium, b complex, iron. Mainly solgar brand.

What should I do? go back on levo 200mcg or try again or wait for endo to make an appointment even though he’d not see me sooner. :( I feel rubbish and fed up.

SlowDragon profile image
SlowDragonAdministrator in reply toCheekycharlie1981

Teva make Lactose free T3. It's the ONLY lactose free T3

Probably best to go back on Levothyroxine, recover for few weeks. Get FULL Thyroid and vitamin tests.

See or email Endo for new prescription of Teva T3

Get your self a craft scalpel and cut T3 up in to 1/4's

Then first few doses ....just roughly cut a 1/4 in half....it will be a speck of dust .....but at least you can start slowly. Adding second speck of dust mid afternoon

After 4-5 days ....see how it goes, increase to 2 x 1/4 (8-12 hours apart) tablet and stick at that dose for 6-8 weeks. Getting full Thyroid testing before considering adding any more T3

Cheekycharlie1981 profile image
Cheekycharlie1981 in reply toSlowDragon

Thank you for the plan. Really helpful.

SlowDragon profile image
SlowDragonAdministrator

Some NHS patients can get 5mcg tablets prescribed

sigmapharm.com/products/lio...

These seem to be lactose free.

Cheekycharlie1981 profile image
Cheekycharlie1981 in reply toSlowDragon

I can’t seem to open the links to see the ingredients

Cheekycharlie1981 profile image
Cheekycharlie1981 in reply toCheekycharlie1981

Sorted it it does not like mobiles.

shaws profile image
shawsAdministrator

Maybe if you try a quarter of the tablet initially and it could well be that you've been affected by the fillers/binders in it.

You could try taking one anti-histamine tablet one hour before you try again and if you don't react you would have to change to another T3.

Thank you all for your help and suggestions I’ll be trying to call my endo department but they never answer. Is it possible to react to t3 even though my body already produces it? It must be the fillers? Or is it that it’s a synthetic version of t3?

I was lead to understand pill cutting is not so accurate and to crush the pill into water and the extract a dose?

My gp won’t do my vit levels again nor my thyroid levels I’d have to nag the endo. But they don’t care about vitamin levels.

SlowDragon profile image
SlowDragonAdministrator in reply toCheekycharlie1981

Many hundreds, if not thousands, of thyroid patients have to use private testing to regularly retest vitamin levels

Even endocrinologists don't understand the relevance

Getting hold of some Teva T3 (or Sigma Pharma) and start very, very SLOWLY

This sort of scalpel, cuts very cleanly

amazon.co.uk/Mystery-Profes...

Cheekycharlie1981 profile image
Cheekycharlie1981 in reply toSlowDragon

Next week I am going to try and contact endo and request these two options if t3.

Does anyone know if you can react to t3 in the tablet?

Do you have ingredients list for teva? To be honest I can’t gave dairy, but I feel so ill, could teva be why?

Thank you all. :) feel better now.

I hate getting bloods done my good arm is agony I’ve had that many bloods drawn all cos gp, endo don’t request them all together.

SlowDragon profile image
SlowDragonAdministrator in reply toCheekycharlie1981

List of ingredients of all brands of Levothyroxine and Liothyronine

thyroiduk.org.uk/tuk/treatm...

I was on 200mcg levo and reduced to 175mcg levo and introducing 10mcg of liothyronine

I’m now scared to take it. I went all hot inside like something in my blood and then my head felt like I was closing down about to pass out.

My body certainly reacted to the t3 or fillers. It could be the ingredients or to much t3. People on here seem to think it’s to much t3. I was just following my endos advise, she wanted me on 20mcg to start.

Anyway I’ll stay off t3 till I can get an alternative brand and follow the advise on here.

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