Thyroid help

[plumber53]

hi all so can you help been suffering now for over 2 years

symptoms no energy always tired pain feet legs all over really hot so hot my eyes turn red sweaty fan goes on and off this goes on day and night if i go outside i get cold really quick really sensitive to heat and cold, cannot think straight like I'm not there can't focus dizziness blurred vision lack of concentration bit of acid reflux pressure head neck and ears neck so swollen back and front constant cold chest infections blood pressure increased last november to 180/100 really so fed up sometimes its like i don't what to carry on.

I've had my thyroid checked 3 times in 18mths and recently just had my IAG antibody and thyroid antibody checked but awaiting results.

my thyriod check came back as this is been this for 18 mths now but path lab keep on declining to test t3

Specimen

Specimen Type: Blood

Specimen Reference#: 1

Specimen Providers Comments: Request Intervention override

Collected: 04 Apr 2019

Received: 04 Apr 2019

Provider Sample ID: G,19.0740908.P

Pathology Investigations April 2019

Serum free T4 level 12.3 pmol/L [8.0 - 16.0]

Serum TSH level 2.39 mU/L [0.38 - 5.33]

Pathology Investigations November 2018

Serum ferritin level 43 ug/L [11.0 - 307.0]

Serum free T4 level 10.4 pmol/L [8.0 - 16.0]

Serum TSH level 2.21 mU/L [0.38 - 5.33]

29 May 2018Dr Frances Walters (Clinical Practitioner Access Role)Three Chequers Medical Practice (General Practice)

Test resultSerum C reactive protein level;Serum TSH level;Urea and electrolytes Report, Normal, No Further Action (Patient Informed)

Coded entryUrea and electrolytes (X77Wi)

Coded entrySerum sodium level (XE2q0) 138 mmol/L [133 - 146]

Coded entrySerum C reactive protein level (XaINL) 3 mg/L [0 - 4]

Coded entrySerum TSH level (XaELV) 1.82 miu/L [0.38 - 5.33]

Coded entrySerum creatinine level (XE2q5) 53 umol/L [53 - 97]

Coded entryGFR calculated abbreviated MDRD (XaK8y) 104 mL/min/1.73m*2

Coded entrySerum potassium level (XE2pz) 4.1 mmol/L [3.5 - 5.3]

Coded entrySerum urea level (XM0lt) 3.3 mmol/L [2.5 - 7.8]

Family history mother sisters all on thyroid medication

Any help would be much appreciated Dr said not my thyroid but i don't know so ill at mo can't think straight no more

[plumber53]

Hi thank you for your reply what should my T4 be just had thyroid antibodies checked awaiting results Dr has asked for T3 to be checked but path lab keeps overriding this asked Dr to try me on medicine but she said path results was satisfactory

What is NHS choices never heard of this before and also is that why my blood pressure gone so high sorry for all question at my wits end but thank you

[plumber53]

sorry but what is normal reading of TSH and T4 reading so i can compare normal to mine so i can confront Doctor so sorry asking you again

[shaws Administrator in reply to plumber53]

In the UK, the pity is that the endocrinology/doctors seem to have been told that we've not to be diagnosed as hypothyroid until the TSH reaches 10. This is high and if we were in some other countries we'd be diagnosed if TSH goes above 3+ with symptoms.

thyroiduk.org.uk/tuk/about_...

thyroiduk.org.uk/tuk/testin...

If thyroid antibodies are present in your blood, you should be prescribed regardless of TSH.

thyroiduk.org.uk/tuk/diagno...

[plumber53 in reply to shaws]

Thank you looking through the information you sent making a chart up of all test going to Dr tomorrow and the next day and so on until they listen to me 2 years have past with Dr prescribing all sorts and symptoms getting worst to a point now where I'm tired feel like crawling up and crying can't cope no more trying to work but i feel WHY i feel so ill love fallen out with friends family because i feel so ill and don't what to go out and be sociable because i hurt all over so no longer need to fight this basically Sod them I'm ill and are keep going to them until they listen and help

sorry for swearing just so low at mo

[shaws Administrator in reply to plumber53]

It comes as a great surprise but when you know you can improve and feel much better you can turn your health around. Many on this forum even source their own thyroid hormones and haven't looked back, although some may not like to do this and feel that will cause them even more stress.

Before levothyroxine was introduced by the NHS we were diagnosed upon our clinical symptoms alone (no blood tests then) and given a trial of NDT (natural dessicated thyroid hormones - the very original in use since 1892. It saved many lives and people gradually worked up to a dose which relieved their symptoms.

Nowadays blood tests have taken over the skill of doctors.

These replacements hormones are still in use today but removed by the NHS and recently T3 too.

[plumber53 in reply to shaws]

I've looked into getting thyroid medicine various sites but with no luck is there somewhere help sometimes your desperate for relief I've thought about it and if it was out there i would most certainly to feel human again but its so unfair of the nhs

[plumber53 in reply to shaws]

Hi all, Well doctors today a 20 something year old sat infant of me telling me my results was normal I told her that i have been told i possibly have Central Hypothyroid and looked into it on NHS choices and theres differently suggest this she said my TSH reading was normal my free T4 levels normal i produced a print off from the Thyroid uk where it states the correct levels she said that was not correct I said my TSH is rising above normal my Free T4 was rock bottom and once again i told her my symptoms how i was feeling, how my day was, day by day and she still insisting my levels are normal as thats whats stated on path report.

She would not listen i stayed calm the whole time apart from one moment when i felt totally frustrated and cried because i felt put down

She said that T3 would not be checked because my levels are brilliant OH REALLY

I left the surgery sat on the bench pouring down with rain and just sobbed could not believe an hour passed just sat there

After writing everything down finding lots out and in a 10 min appointment that she reminded me about several times i was just left empty no will to do a thing.

I don't know where to turn what to do next just been hiding or feel like hiding feel so terrible TOTALLY DEVESTED

[plumber53]

Hi thank you the Dr printed out path lab sheet asking please check T3 but over ruled

Well going to make appointment tomorrow morning with the Dr and ask her again and try to persuade her to she puts me on every other medicine which causes more problems instead of listening to me I'm sure they think I'm stupid looking for attention or something when i know my body my symptoms but they just look at the time like your 10 mins are up its mad and really frustrating

[plumber53]

Thank you {reallyfedup123]--{shawsAdministrator}

Well i think sometimes you get so down with the way you feel especially in you can't think straight and found this sight hoping praying for a response to how you feel and the illness thats getting worst with no answers i thank you both and will post tomorrow on out come

[plumber53]

OMG i did not know it can cause that did you fight nhs it should not come to that why oh why do we have to fight its so unfair we all deserve to be treated its so unfair and private its the same doctors why life we all deserve and should not suffer like this

[ter1461]

Can you please explain what Central hypothyroid is?

[MaisieGray in reply to ter1461]

ter1461 Primary hypothyroidism is where there is a dysfunction of the thyroid gland. Central hypothyroidism is where the thyroid is fine but the problem lies elsewhere: secondary hypothyroidism is where the problem is with the pituitary gland not secreting TSH, and tertiary hypothyroidism is where the problem is with the hypothalamus not secreting TRH. So for instance, one cause might be a tumour on the pituitary gland.

[JaneyP1]

Hi, so sorry to hear the problems here. Could you tell me where you get NDT from. I'm on 100mcg Levo and my face shape is changing, excess weight gain and chronic insomnia. I would like to try NDT to see if my symptoms improve. I'm new to this forum, but having read these comments, I'm going back to my GP for all the tests advised here!

[shaws Administrator in reply to JaneyP1]

Responses of where to source thyroid hormone replacements aren't permitted on the open forum.

Therefore if you would like information you'd have to put up a fresh post asking for a private message to be sent to you. Or click on the person's name which takes you to a private page.

It is against the guidelines to post information on where to source prescription medications without a prescription.

[plumber53]

Hi all, Well doctors today a 20 something year old sat infant of me telling me my results was normal I told her that i have been told i possibly have Central Hypothyroid and looked into it on NHS choices and theres differently suggest this she said my TSH reading was normal my free T4 levels normal i produced a print off from the Thyroid uk where it states the correct levels she said that was not correct I said my TSH is rising above normal my Free T4 was rock bottom and once again i told her my symptoms how i was feeling, how my day was, day by day and she still insisting my levels are normal as thats whats stated on path report.

She would not listen i stayed calm the whole time apart from one moment when i felt totally frustrated and cried because i felt put down

She said that T3 would not be checked because my levels are brilliant OH REALLY

I left the surgery sat on the bench pouring down with rain and just sobbed could not believe an hour passed just sat there

After writing everything down finding lots out and in a 10 min appointment that she reminded me about several times i was just left empty no will to do a thing.

I don't know where to turn what to do next just been hiding or feel like hiding feel so terrible TOTALLY DEVESTED