I haven’t posted on here in a while so please forgive me if I am repeating others posts!
I am still suffering from the symptoms of hashimotos, even though I’m on 100mcg thyroxine and according to my blood tests, my levels are normal (I’ve been diagnosed with hypothyroidism for 8 years but have had symptoms for what feels like 20-I’m 27). I’ve come to the conclusion that that’s the way it will always be but I need to start being more aware of the fact I have hashimotos and taking care of my thyroid.
I have started a gluten and soy free diet (also making sure I’m conscious about eating undercooked cruciferous vegetables, peanuts etc) but I’m really struggling to think of different recipe ideas! Also, I don’t know what sort of things I should have in the cupboard as alternatives.
Is anyone else in the same boat and have you managed to come to any conclusion?
Thank you for any replies, I really appreciate anyone’s help!
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louyoung92
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As you have Hashimoto's low vitamin levels are extremely common, especially if gut is affected and gluten intolerance
For full Thyroid evaluation you need TSH, FT4 and FT3 tested. Also extremely important to test vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common, especially if Thyroid antibodies are raised
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and fasting. Last Levothyroxine dose should be 24 hours prior to test, (taking delayed dose immediately after blood draw). This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)
Is this how you do your tests?
Do you have any recent blood test results and ranges you can add. Members can advise on next steps
Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or all vitamins
Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random
As to gluten free diet. There's loads of stuff we can eat. Any new diet just takes a bit of getting used
There are masses of gluten free websites, cookbooks and magazines
You can get some gluten free flours for making sauces and baking
If fairly recent then suggest you initially just get copies of results
You are legally entitled to printed copies of your blood test results and ranges.
UK GP practices are supposed to offer online access for blood test results. Ring and ask if this is available and apply to do so if possible, if it is you may need "enhanced access" to see blood results.
In reality many GP surgeries do not have blood test results online yet
Alternatively ring receptionist and request printed copies of results. Allow couple of days and then go and pick up.
You could be suffering from a conversion problem as many with Hashimotos do. I have Hashimotos and do have to take both T3 and T4. I take selenium as well and it seems to help with conversion, as well as digestive enzymes.
It seems you are on T4 alone. If not enough T4 is being converted to T3 you will have symptoms even though blood tests show normal or near normal.
Gluten free is good. But I was not able to find balanced thyroid hormones until the Dr switched me to NDT, which includes both T4 and T3.
Wow I never knew this! May I ask how you managed to get put on to both T3 and T4? I feel my drs are very reluctant to test for anything other than the basic and don’t really want to entertain any other idea.
I found a good Dr. (Here in the states) even here, I had to search and search until I found one who would listen and treat / heal until the patient feels better. We have something here called “functional Drs”. They truly do practice a healing art, and not a “paint by numbers” kind of medicine. It took almost 10 years and I had the best insurance the whole time. But I did find one.
Not sure where you are, but I understand that even in the UK it is possible to (with some difficulty) to find a Dr. that will prescribe NDT, dessicated pig thyroid which contains both T3 and T4. Drs here look down on NDT as well - they say it’s less “stable”, translation - more work for them. And I get that, however, until the medical community wants to get serious about prevention / finding a real cure for all the autoimmune diseases that are cropping up (of which Hashimotos is one - and you most likely have that - the majority of us do) then, they need to “first do no harm” and help the patient feel well. Give us the T3!
Until you find that Dr. - educate yourself / read all you can find on the particular conversion and digestive problems that go hand in hand with autoimmune Hashimotos. Selenium really does work somehow and helps with conversion. Digestive enzymes, Vit D3, and other vitamins and minerals really do work / help. Stay tuned here and keep asking questions - a lot of very knowledgeable people who have learned to “Heal thyself” share what they have learned, HealthUnlocked! Literally.
Wow that’s brilliant! I suppose I go in waves as to having the energy to go and speak up and when I just want to put up with it - I often feel like they just put up with me being there! Also, I’m in the UK.
Thank you for all of your help and taking the time to explain all of that.
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