Waiting for diagnosis : I have just joined your... - Thyroid UK

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Waiting for diagnosis

I have just joined your forum. i am a 45 year old mom of 4.I am about to have my blood tests done to check if I do, in fact, suffer from hypothyriod. My hair is falling out and i am completely unable to lose weight. In fact, have gained 15 kg over the last two years with no change in eating or exercise patterns., also exhausted all the time. I'm actually praying for a positive diagnosis (it sounds strange to want to bd diagnosed with hypothyroidism), but it would finally explain so much . It's highly frustrating when you are experiencing these symptoms and people tell you its because you are getting older or "it's all in your head".

As soon as I have the results for my blood tests, I'd like to post them here on this forum to get some feedback.

So glad to have found this forum.

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Hi Gblum and welcome to the forum.

We will be happy to interpret your results when you have them, please include the reference ranges as well as the results, ranges vary from lab to lab.

When booking thyroid tests, we advise:

* Book the first appointment of the morning. This is because TSH is highest early morning and lowers throughout the day. If we are looking for a diagnosis of hypothyroidism, or looking for an increase in dose or to avoid a reduction then we need TSH to be as high as possible.

* Fast overnight - have your evening meal/supper as normal the night before but delay breakfast on the day of the test and drink water only until after the blood draw. Eating may lower TSH, caffeine containing drinks affect TSH.

* When diagnosed and on thyroid meds, leave off Levo for 24 hours before blood draw, if taking NDT or T3 then leave that off for 8-12 hours. Take after the blood draw. Taking your dose too close to the blood draw will give false high results, leaving any longer gap will give false low results.

These are patient to patient tips which we don't discuss with doctors or phlebotomists.

If you don't have an early morning appointment, it's advisable to cancel and make a new appointment for no later than 9am.

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Thank you SeasideSusie 😊. I will definately do all of that ax I am desperate for a correct diagnosis. Thanks so much for your response🙏

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My late mom had thyroid issues as well as insulin resistance and extreme obesity because of this-which was really awful for her.

My late dad suffered from severe Rheumatoid Arthritis from a very young age.

These symptoms I'm having now have become steadily worse over the last year or so. Have also been under extreme stress due to the loss of my daughter and break up of marriage. Just constant, constant stress and adrenal overload ( on my nerves all the time, waiting for the next thing to have to deal witn). All of which have contributed to my symptoms, I'm sure.

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Thank you 🙏. I will go to the health store tomorrow fof thd magnesium glycinste and can do the oranges and red peppers 👍it's really comforting to have people who understand this, thank you 😊

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Thank you. This is really invaluable infofmation, I rwally didn't kniw any of this. Thank you

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It makes so much sense in terms of how run down I am. I've never felt so depleted as I have in the last while. Thank you.🙏

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Thank you so much for the info. I know I sound silly, I don't know muvh about this illness. What is NDT?

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Ok. Can you only get it over the internet? And what does it do?

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It sounds very promising. How do you know what doses to take?

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I can only go by what a doctor told me to take - half a grain NDT in the morning on an empty stomach and increase by half a grain every 2 weeks, and have thyroid testing after 6 weeks. He said I would know if I was taking too much :-/ If you have to go down the route of self-medicating come back and ask how much you need to take; people with more knowledge than me will advise.

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So sorry for you losing your daughter, it is the worst thing in the world to have to endure, the stress of that alone will play havoc with your health.

I hope you get some peace from this time in your life one day, try and be kind to yourself too if you can, once you get your meds sorted you will be stronger to cope with it. Best wishes.

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Thank you so much Dinglebell. Yes, it was probably the worst thing I have ever had to go through. I have 4 other children that j had to remain strong for, so I don't think I've really grieved properly.And possibly that grief turned jnwaec has just worsened this problem or brought it to surface.

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I’m so sorry for your loss 😢 What a really wretched time you’re having atm. Let’s hope the lovely people on here can get you well again and get you off the merry go round 😩

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Yes it seems like you haven't had a chance to grieve, and you have just had to get on with being a mum, good mum you are to be strong for your children.

I do think underlying health issues are triggered by stress (especially grief the worst stress of all).

Not many people will understand the enormity of losing a child, and the breakup of a marriage as well. That's a lot to be dealing with, along with everything else!

Thinking of you. x

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Sounds like Hashimoto's Autoimmune Thyroiditis and Hypothyroidism!

Do you know what tests you're having? If you have the blood form prior to test make a note of them. They may not do all and you could enquire about having the others done at the same time . Try for TPO & TgAb; FreeT3, FreeT4, TSH & TT4.

Ask to be tested for the following nutrients levels at the same time :

Vitamin D, B12, Folate and Ferritin.

Before starting Levothyroxine ask for a test to check your Adrenals.

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I will do that. I'm going to see my GP on Monday, so I will take this information along with me. Thank you

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I was diagnosed 10yrs ago after my 4th child. I was on my knees with symptoms and for a year I was told that ofcourse I was, I had 4 children under 6yrs. I have only ever wanted to be a mother I knew that I was more than capable of looking after my children. My doc was so blase about it all, he waited 3mths to finally diagnose me as Hypothyroid. It then took me a further 3yrs to understand that it was Hashimotos. In this time I my sister was diagnosed with Graves and then it emerged that my mum is Hypo but untreated and my Nan was also Hypo but medicated. Fast forward to today and I’m very unwell with suspected poor conversion which means I need more and more t4 to try an gain adequate t3. I’m now at a point where if I take anymore t4 I feel Hyper, so I’m stuck feeling unwell. My mum was 66yrs old. She is now officially the first in her blood line to reach this age. No one else in he blood line has lived past 65yrs.

I really hope that you can become well again. My children may all be teenagers now but they need me more than ever and I’m only half as good as I could be. If you think you have family history then I’d urge you to get testing such as DI02 testing and be very aware of your vitamin levels and diet. Get ahead of yourself now because if you become unwell throughout your journey it’s very difficult to get well again. For warned is for armed!

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Thank you Paula6. I know how demanding being a mom to 4 children can be! I also run my own business and am the only breadwinner so I really have to get well and stay on top form. It's tough to be a mom and provider when you're exhausted and overwhelmed all the time. I just want to get diagnosed , and on the road, hopefully, to recovery 🙏

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