Just got back from an appointment with the endo, I am so cross and upset, they have discharged me because there is nothing wrong, all my thyroid hormones are normal therefore nothing they can do!!
I said about my elevated levels of anti-TPO (>1000 range <100) and she said "it was explained to you last time and I'll explain it again anti-TPO just means that you have a slightly higher risk of going underactive sometime in the future (she emphasized the word slightly as though she really wanted to get this through to me), you haven't got thyroiditis and you haven't got hashimotos, you haven't got any type of autoimmune condition. There is no way the elevated levels of anti-TPO are causing your glands to swell or the tiredness or the lightheadedness or any of the other symptoms you've mentioned. What you are experiencing, I'm afraid to say is all in your head".
She went on to say that I should have my thyroid levels checked with my GP once a year, I stated that my doctors will not do the full thyroid blood test and that it's the T3's and T4's that matter and she replied with "the TSH is the best blood test to do because it will show abnormalities way before abnormal T3's and T4's show".
She refused to do blood test for aldosterone because my cortisol levels were fine and that means there is nothing wrong with my adrenals and refused to do an ultrasound of my throat because there is nothing wrong with my thyroid (in fact she said it's in perfect working order).
I got information about aldosterone and adrenals from stop the thyroid madness website which gave other tests which you can do at home, all of them I tried and all showed abnormalities, i.e. the fluctuation of your pupils when shining a light, the temperature readings and blood pressure readings, but this was dismissed. Has anyone else done these tests?
She said that she will write to my doctor to say this is in no way a thyroid problem.
So I'm not going to get any help what so ever from doctors so I was wondering if any of you good people could recommend anything I can do for myself to help make me feel better, apart from going gluten-free (which I adopted around 4 weeks ago) and taking a B complex to get my folate up. I unfortunately can't afford to keep having private blood tests done.
Sorry for ranting but don't know what to do now!!!