Latest results I need some advice please - Thyroid UK

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Latest results I need some advice please

Fox78 profile image
8 Replies

Hello All

Sorry to post again but I feel like I need some further advice as I feel like I am going mad and not sure which way to go next..!

So I have asked to be referred which has been agreed in the meantime I had some bloods done which are as follows

AB peroxidase 35

it doesn’t give me what the reference range is for this but I am assuming it’s within range as it came back no further action.. my antibodies were 85 on last testing so does this now mean I don’t have autoimmune thyroid as it’s come down?

Tsh 0.02 (0.27-4.2)

T3 4.9 (2.8-7.1)

T4 25.8 (9-26)

B12 423 (191-663)

Folate 4.4 (3.3-19.3)

I also take 2x500 metformin for pcos

Currently take 150 Levo

Completely do not feel right I feel like I get both hypo and hyper symptoms and still don’t really feel any better

Cold extremities

Bloating

Tired

Aches, pins and needles

Racing heart

Palps

Air hunger

Nightmares

Anxiety

Internal shaking

A mix of loose stools and constipation

Sore breasts and pain in left breast

Lack of periods or very lengthy cycles ( I am also on the mini pill this is my second month and I was hoping that would help with some of my pms symptoms)

I can’t loose any weight despite going to slimming world and just feel completely like I’m having a melt down as I can’t figure oi wvat is wrong!

Do you feel I am now over medicated based on these results?

Should I ask for a reduction in Levo?

Could this be related to cortisol or adrenal issues?

Any advice would be appreciated

Thanks

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Fox78
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SlowDragon profile image
SlowDragonAdministrator

As you have PCOS, it's highly likely you have Hashimoto's

verywellhealth.com/hypothyr...

thepcosnutritionist.com/res...

You need BOTH TPO and TG antibodies tested plus vitamin D and ferritin

Your folate level is very low as well

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also extremely important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if Thyroid antibodies are raised

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and fasting. Last Levothyroxine dose should be 24 hours prior to test, (taking delayed dose immediately after blood draw). This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Is this how you do your tests?

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or all vitamins

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels

Low vitamin levels affect Thyroid hormone working

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

Ideally ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first

Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

scdlifestyle.com/2014/08/th...

drknews.com/changing-your-d...

restartmed.com/hashimotos-g...

Fox78 profile image
Fox78 in reply toSlowDragon

Hi SlowDragon

Yes all tests are always at least 24hrs and first thing on fasting

They didn’t test vitamin d but have done previously and it was fine back in Jan my ferritin was above range slightly too the last time they took it so I definitely don’t think this is an issue

I do supplement vitamin d and also now folate too which also has b12 in it my b12 is also quite high in range

I’ve had a coeliac test done and it was negative

I’m looking to self medicate with t3 or if that doesn’t help then ndt to see if this improves the way I feel

I’ve spoke to a clinic in London who will do a private prescription for both so I’m going to get this organised asap

SlowDragon profile image
SlowDragonAdministrator in reply toFox78

Only 5% with Hashimoto's are coeliac

Over 80% find strictly gluten free diet helps or is essential

The ONLY way to know if that includes you, is to try it

Vitamin D needs to be at least around

Do you supplement magnesium?

Also read up on importance of magnesium and vitamin K2 Mk7 supplements when taking vitamin D

betterbones.com/bone-nutrit...

articles.mercola.com/sites/...

healthy-holistic-living.com...

sciencedaily.com/releases/2...

articles.mercola.com/sites/...

betterbones.com/bone-nutrit...

Do NOT supplement any vitamin K if you take any blood thinning medication

drsinatra.com/vitamin-k2-su...

Vitamin C and bones

healthimpactnews.com/2018/d...

The importance of sunshine

outsideonline.com/2380751/s...

B12 and folate on the low side. Supplementing a good quality daily vitamin B complex, one with folate in not folic acid may be beneficial.

chriskresser.com/folate-vs-...

B vitamins best taken in the morning after breakfast

Recommended brands on here are Igennus Super B complex. (Often only need one tablet per day, not two). Or Jarrow B-right

If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before any blood tests, as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

Do you supplement selenium?

Fox78 profile image
Fox78 in reply toSlowDragon

Can you recommend a good selenium and magnesium supplement as I don’t currently take either of these

SlowDragon profile image
SlowDragonAdministrator in reply toFox78

Everyone has their own favourites

See many of SeasideSusie replies about vitamins

Calm vitality magnesium powder is popular as it's cheap and easy to use. Good for helping improve constipation. Best to start on small dose as too much can cause diarrhoea. Helps with sleep so best taken in afternoon or evening (must be four hours away from taking any thyroid hormones)

Better You make magnesium flakes, great for bath or foot bath. Very relaxing and skin feels wonderfully soft after

Selenium.

vega yeast free selenium Or Solgar Yeast free vitamin E with selenium.

(candida is common hypothyroid problem, so avoiding yeast may be good idea)

silverfox7 profile image
silverfox7

There is a slight suspicion that you might be heading towards poor conversion as FT4 is highish in the range and FT3 lower. This should improve if you get your vits and minerals optimal. I would t change medication for two reasons-when addressing things you may not need it but going over to NDT or adding T3 can cause problems in some if conversion hasn't been addressed properly.

I had a conversion issues, corrected it and went on NDT. T4 was certingly letting me down plus I'd started many years earlier on NDT and preferred it so went back and had no problems switching over.

Fox78 profile image
Fox78 in reply tosilverfox7

Hi

Thank you both for the information

I was exactly thinking of doing just that and adding in some t3 as I feel it’s a conversion issue too

I have been in touch with a private clinic in London who will prescribe both t3 and ndt

Do you not think this is a good idea? I’d try anything to see if it does improve?

silverfox7 profile image
silverfox7 in reply toFox78

I would do it in steps as cheaper that way, see if the vits etc do their nod then think of changing/adding to meds if still got issues.

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