Hi just found this on Facebook
T3. Good news: Hi just found this on Facebook - Thyroid UK
T3. Good news
Having previously - and wrongly - blacklisted T3, it seems that all this CCG is now doing, is bringing itself back into line and beginning to belatedly conform to the 2018 RMOC guidelines ie doing what is required of it.
Here's the link
lowestoftjournal.co.uk/news...
Anyone in Norfolk CCG needing T3 .....
I wasn’t aware of this FB Page - excellent! 👍
Excellent news, hopefully the start of all CCGs conforming to current guidance...
Thank you for sharing. Great news. 😊
Thanks for the info, is this likely to role out to the rest of the UK?
I’m in one of these CCG’s.
I really hope the prescription I ordered for my T3 yesterday will be filled.
My endocrinologist has been excellent at writing to my GP after every appointment pressing the fact that I benefit from a combination of T4/3.
I'm one of the 2 main people in our Norfolk group campaigning against the Norfolk CCGs' 2016 decision to de-prescribe, or not allow, T3. It's been nearly 2 years of hard work, with frustration, anger and upset along the way. But we think our persistence (stubbornness!) sending them information and refuting the CCGs' documents, with media coverage in print and on radio, have made difference. We never thought they'd agree to getting T3 to Green status, after consultant initiation. We are also one of the groups collaborating with Lord Hunt and BTA, so we could use that kudos with our CCGs. We're asking for clarification on implementation, as the devil is in the detail, but we've come a long way so far.
Keep fighting people!!
I didn't know this FB page existed either thanks for letting us know !
I follow the invisible hypothyroidism on Instagram shes a mine of information and has published a book and blogs about her journey of a young woman with hypothyroidism and how shes got on top of it , inspiring young lady
Can you supply her name and book title-by PM if necessary? I don't use Facebook or Instagram. Thanks. irina