I never received my sons heel prick test results in a form of a letter but my Health Visitor delivered them in person and said my sons TSH was marginally raised but they weren't sure if it was excess hormones from me or my son (i am diagnosed with subclinical hypothyroidism ).
My sons peadtrician wrote in a letter that I mislead him about my sons newborn screening tests and they were infact normal. However, I never misled him as I was saying what the Health Visitor told me.
Do I have a right for this to be corrected as it is giving the wrong impression .
The peadtrcian reply is;
As I have left the NHS and no longer work in the UK, I am unable to issue any letters in this regard.
You can approach University Hospital Sussex NHS trust directlt and liaise with the patient advice and liaison (PALS) service to help you with this. There will be a due process in addressing it.They will need to approach me independently with full facts, circumstances this has risen , along with copies of the letters etc. So you will need to follow the due process.
Happy to do the needful if approached by the trust.
Written by
Stace268
To view profiles and participate in discussions please or .
A raised TSH would indicate a low thyroid hormone level.
There has been a lot of discussion around the testing of the newborn. Some sources suggest that they should test Free T4 rather than TSH. And some say any question whatsoever should see a repeat test. The precise timing of the heel test affects the results - too early or too late can affect the result.
If you send an email stating the exact circumstances, that should be included in his notes and would be there for future reference. In the circumstances, there seems little real benefit in doing anything more than that - but others may feel otherwise.
Unfortunately I can only afford legal aid and they do not get involved in this type if thing so I am trying to resolve it myself. I have a feeling PALS are useless from what I've read.
I am asking if I have a right to have a genuine mistake re misled my sons newborn screening results when I never even received a letter so how is thar even possible. I am not asking legal advice I know nobody here is legally qualified. Q is in relation to a conversation with a peadtrcian and a Health Visitor.
A complaint to PALS would be the appropriate first step. An alternative would be to attempt to evidence what the health visitor said to you. You could speak to your health visitor and explain the issue, and the consequence, and perhaps request a copy of the health visiting notes (through a subject access request (SAR) there will be details of how to do this on the trusts website.
It shouldn’t make any difference as to whether the HV has retired—what they said to you should be in notes that are held locally. You may want to look into making a Subject Access Request for your child.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Follow up to follow up of Referral letter **
Letter from Endo to GP I wasn’t meant to see
Sub-clinical Hypothryoid - trial project
Bum covering endo letter
How to ask the GP for a referral letter
