Good news: So I'm just back from the doctor and... - Thyroid UK

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unknown83 profile image
10 Replies

So I'm just back from the doctor and they agreed to put me on a trial of the drug used for underactive thyroid, 50 mg for two months(Levo??) I then have to go back for further tests.

I'm so pleased.

Can anyone recommend a good time to take it and if there is anything else I can take to support it?

Thanks!

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unknown83
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shaws profile image
shawsAdministrator

Take it first thing in the morning with a full glass of water and wait about 1 hour before eating. Taking Vitamin C alongside helps convert T4 (levo) into T3 the active hormone.

When you go for your blood test have the earliest possible and fast. (you can drink water). Leave about 24 hours between your last dose of levo and the test and take it afterwards. If you haven't had B12, Vit D, iron, ferritin and folate tested ask for these next time as we're usually deficient. Always get a print-out of your results with the ranges for your own records and so that you can post if you have a query.

I hope you feel better soon.

unknown83 profile image
unknown83 in reply toshaws

Thank you.

I take iron pills as well, do you think I should take them at different times?

I also read somewhere that a b12 supplement may also help symptoms?

Thanks again

greygoose profile image
greygoose in reply tounknown83

Iron should be taken 4 hours away from thyroid hormones.

You should get your B12 tested before supplementing. Firstly because you need to know how low it is so that you know how much to take. Secondly because if it is very low - below reference range - you might have Pernicious Anemia, and supplementing would skew the results.

Supplementing B12 helps symptoms caused by low B12 - which can resemble hypo symptoms. But your B12 needs to be optimal (1000) for your body to be able to use the hormone you are giving it. :)

shaws profile image
shawsAdministrator in reply tounknown83

greygoose has given good advice. If you've not had Vit D checked ask for this as well as ferritin and folate.

Heloise profile image
Heloise

Hi 83, I understand that in the UK it is difficult to finally get a diagnosis and then to be prescribed a hormone like levothyroxine so soon after. You either have a wonderful GP or are quite ill already. I hope it's the former.

Did they call it Hashimoto's thyroiditis? This is an autoimmune condition that can have many underlying causes. If possible you should learn as much as you can about your condition so you can be intelligent about your treatment.

As you take your T4 (levo) (thank you Shaws) you body will become accustomed and hopefully you will start feeling better but will need more levo since more people do. Those tests in two months (TSH, FT4, FT3) would be helpful but I guess it is uncertain whether they would allow the FT3 test. It is important because it proves whether the levo is actually working to alleviate symptoms.

This might help:

stopthethyroidmadness.com/m...

youtube.com/watch?v=nZ_CP7l...

unknown83 profile image
unknown83

Thanks everyone.

My levels were 4.9 and my t4 was 14 so this is a trial to see how I feel. My doc was lovely and has also sent me for a scan of my goitre as that's never been done. My b12 is low but ok. I take a decent multi vitamin so will just continue taking that.

Marz profile image
Marz in reply tounknown83

Never accept OK for your B12 - anything under 500 causes neurological damage - and as greygoose mentions it needs to be around a 1000. You need hard copies of your test results - to which you are entitled by law.

The amount of B12 in a multivitamin will NOT be enough to bring your levels up to the required level. I would suggest you take Jarrow Methylcobalamin B12 lozenges - either the 5000mcg or 1000mcg - keep them under the tongue until absorbed - thus avoiding any stomach issues. When B12 is low it can become a neurological condition.

I attended the B12 Conference at Loughborough University earlier this year - where Sally Pachlok spoke. She wrote the book - Could it Be B12 ? I believe she is on You Tube and they have made a film in the States about her life within the Medical Profession. Sadly Docs are not up to speed on B12 - or thyroid come to that :-( If you care about your health now and in the future - read as much as you can on the site below.

b12deficiency.info/signs-an...

To feel well you need your TSH to be 1 or under and the FT4 towards the top of the range. You will also need a FT3 test done next time to ensure you are converting the tablet of T4 into the Active hormone T3. Have they tested your thyroid anti-bodies ??

Please ensure you have the additional tests done suggested by shaws - Ferritin - VitD - Folate - Iron.

greygoose profile image
greygoose in reply tounknown83

Unknown, I take it you mean your TSH was 4.9. TSH is not a thyroid hormone, it is produced by the pituitary, but doctors mistakenly think it is a good indication of thyroid status. It isn't always. But a TSH of 4.9 is hypo - not borderline, hypo. The TSH of a person with no thyroid problems is between 0.8 and 1.25. When it reaches 2.0, that means that your gland is struggling. At 3.00, you are already hypo. But doctors Don't know any of that.

As for the FT4 - I take it it was FT, not TT - do you have the range? Always put the range when giving a result, otherwise, it is meaningless. :)

A B12 that is low is not OK. Another thing that doctors Don't know. They know nothing about nutrition or hormones, so never just take their word for anything. Research everything they say and everything they prescribe before taking it - and Levo is not a drug, it is a hormone - that is the only way forward with this disease. :)

eeng profile image
eeng

Your doctor sound lovely. He should be aiming for your TSH level to be 1 or lower, to make you feel well.

unknown83 profile image
unknown83

Thanks everyone. Sorry I'm new to all of this but it looks like it will become my life from now on so I'd better get researching!

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