I've just read Barry Durrent-Peatfield's book and he seems to suggest all hypothyroid patients would benefit from adrenal support. I wasn't completely convinced by the science but wonder if it would hurt to give it a try? What does anyone think? (Someone here suggested Adrenavive II - is it a supplement? legal?)
(Am on 100mcg levo, having increased to that from 25mcg, beginning in June 2018. Much improved in all manner of ways but cannot stay asleep at night (wake frequently) and can't exercise as it exhausts me afterwards - plus ongoing muscle pain unchanged since May last year.)
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Amanda
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Second advice, obtain your thyroid results from the GP, it could be your not on the correct dosage.
You are entitled to a copy of your blood results by law, go and ask the receptionist for a copy, you don’t need to see a GP for your results, don’t be fobbed off either, and don’t accept written one.
When you have them do a new post and remember to include the lab ranges as well.
When the GP tells you they are normal, or in range that means nothing in the thyroid world.
You need to test TSH, T3 & T4. It’s T3 that gives us the energy and keeps our metabolism going.
It could be your T3 is low and you are using it just to function everyday without having to use it for exercising as well.
I bet your GP has not tested the full thyroid panel? TSH, T3 & T4?
Perhaps they are only interested in your TSH results. Well if that’s the case, they are not helping you.
Thirdly - vitamins are very important to support the thyroid, iron, ferritin, vitamin D and B12. Have those been tested lately.
You can do private blood tests yourself, I use medichecks, some tests are finger prick so you can do them at home, you send the completed kit back and then you are emailed the results. Is maybe a good idea if you have not had a full thyroid panel done.
In Oct 18, my tsh 0.57 and t4 was 20. By Dec I was feeling clearly bad so upped my levo from 75 to 100. 6 weeks on results are as below. I could possibly go up a little - am seeing Endo in Jan - but just reading and thinking to check adrenals as possible other cause - especially of sleeplessness (low melatonin?).
As to vits, iron and D always fine but since it’s winter, I use d spray anyway. B12 and folate been slightly low so take decent combined pill daily.
I will restart vit c today as recommended. And also check adrenals. Thx.
Celtic Sea Salt is very helpful here too . As is Iron if labs are low . Vitamin "D" /K2 , B-12/folate , B-Complex , B-5 , B-1 . Gluten Dairy Sugar Soy Coffee Free is very helpful . Lots of rest and laughs .
Adrenavive is an adrenal glandular and it is perfectly legal.
However, adrenal support can be for low cortisol or high cortisol, what you take for each one is different, so it's essential to do an adrenal test first.
There is the one that Peanut has linked to with Genova.
Same test - 24 hour saliva - 4 x samples - tests both cortisol and DHEA. Very similar price. Regenerus notify you direct when results are read. With Genova they go to ThyroidUK who then send them on to you.
As mentioned a cortisol test is needed and as Seasidesusie said you need your DHEA testing as well.
My cortisol came back high, but, very low DHEA. I'm no longer on levo as I couldn't get on with it no matter how much I increased, despite, my results looking good.
Results mean nothing if you still feel awful.
Many including myself ditched the endo and GP and started to self medicate, but first you have to go the NHS a chance as in levo, which I did.
GP's and endo (not all) are just too obsessed with blood results as in TSH only.
Looking back on the endo notes he never tested T3, which to me said it all about how ignorant he was about the importance of T3.
I never realised how important T3 was until being on this forum and another thyroid forum. It controls everything from your weight to your state of mind.
You need to try going gluten free and stick with it, not just a few days for a few months to see if you feel any better. They do gluten free pasta in the free from section.
I think I may be wining the battle on my high cortisol, by upping my ashwaganda and also looking at my diet. I was eating far too much sugar, as in fruits. To say I feel a lot better is an understatement, I still eat fruits, but, avoid ones that have lots of sugar. I never feel hungry anymore either. I'm still not on the right dosage of NDT, but I feel so much better.
Before anyone can help further as said you need the cortisol and DHEA testing asap, don't rely too much on your endo to make you feel better as some of it, you have to research yourself and with the support on here, you will soon be feeling better.
I use gluten free pasta. I can’t taste much difference but then I’m not talian! I have to psyche myself up to make lasagne though because you have to pre-cook the sheets before making the dish and I find that a pain - especially if I let the sheets stick together and I have t try and separate them. After many years of using the pre-cooked stuff I find that very hard work, but as I absolutely love lasagne it’s worth it.
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