Just posting my results which are very similar to my previous thyroid results, nothing much has changed. I'm still borderline and inconclusive or with normal ranges and not feeling very well with another thyroid goiter.
My b12 is high...I had 3 injections last March in 2018, nothing since. Nearly a year.
I take vitimin D tablets one 1000iu per day.
I used to take folate 5mg but it did nothing last time so I stopped. I eat broccoli, salmon, almonds, mackerel, humous already, everything the medichecks doctor recommended. I have also ordered a folate RBC upon his recommendation so I'll see what that is soon.
I also take liquid iron with orange juice but he said my iron is fine.
I feel like I have hashimotos but it's not showing in my results.
Any further tests or information will be greatly appreciated.
Thank you
Sx
Written by
SunnyK
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As you have coeliac and B12 problems (was it diagnosed as Pernicious Anaemia?) then your gut looks badly affected
Vitamin D is clearly too low. Many of us with gluten intolerance or coeliac need much higher dose than 1000iu
Vitamin D mouth spray by Better You is good as avoids poor gut function. Suggest you supplement 3000iu for 2-3 months and retest. (You may need higher dose than this)
It's trial and error what dose each person needs.
Once you Improve level, very likely you will need on going maintenance dose to keep it there.
B vitamins best taken in the morning after breakfast
Recommended brands on here are Igennus Super B complex. (Often only need one tablet per day, not two). Or Jarrow B-right
If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 3-5 days before any blood tests, as biotin can falsely affect test results
Ferritin is low. Eating liver or liver pate once a week should help plus other iron rich foods plus vitamin C supplements to improve iron absorption
Retesting full Thyroid and vitamins in another 2-3 months
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and fasting. Do not take Levothyroxine dose in the 24 hours prior to test, delay and take immediately after blood draw. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)
You can buy the thyroid plus ultra vitamin test ahead of when you need it, when it's on offer
No I was not diagnosed with pernicious anaemia. I just had low levels but not deficient enough.
My gut is severely effected. I suffer with chronic constipation which has caused chronic fissures etc. My consultant reluctantly did a colonoscopy and much to his surprise found significant ulcerations but histology didn't come back with what he was expecting to be crohns or colitis so I'm left with indetminate colitis and no treatment. I'm now under another 2 consultants who are attempting to work together inorder to provide a treatment plan to get me out of pain and misery.
It takes over your life and I'm now house bound and jobless. I'm a completely different person to what I was prior to my thyroid goiter and half removal but I'm not finding any answers through my tests.
I will get the spray for vitamin D. I'm not sure why im not absorbing the iron. I have liver with cabbage as a meal and I really enjoy it. I feel my diet is great and it really annoys me when I see others who complain of the same symptoms or diagnosis and sit and eat a bag of sweets or bottles of coke. It makes it harder for doctors to believe me when they are used to that kind of attitude. I long to be normal and be able to go out socialising with a normal soft drink or alcohol (god forbid) and a packet of crisps. Not a chance.
Thanks for your advice. I'll up my vit d and hopefully feel and improvement.
You can have Hashi's with no raised antibodies. With your TPO at 22.5 (0.00-34.00) I'd be suspicious anyway.
The reports from Medichecks are written by doctors trained exactly the same as NHS doctors, all they seem to know about vitamins and minerals is that if it's anywhere in range then it's fine.
Ferritin is too low, it needs to be 70 for thyroid hormone to work, recommended is half way through range. Eating liver (max 200g per week), liver pate, black pudding and other iron rich foods should help raise your level.
You're not taking enough Vit D. 44.5nmol/L is the same as 17.8ng/L.
The Vit D Council recommends a level of 125nmol/L [50ng/ml] and the Vit D Society recommends a level between 100-150nmol/L [40-60ng/ml].
To achieve the recommended level, from your current level, the Vit D Council recomments supplementing at 4,900iu D3 daily (nearest equivalent 5,000iu).
D3 aids absorption of calcium from food and K2-MK7 directs the calcium to bones and teeth where it is needed and away from arteries and soft tissues where it can be deposited and cause problems such as hardening of the arteries, kidney stones, etc.
D3 and K2 are fat soluble so should be taken with the fattiest meal of the day, D3 four hours away from thyroid meds if taking tablets/capsules/softgels, no necessity if using an oral spray
Magnesium helps D3 to work. We need Magnesium so that the body utilises D3, it's required to convert Vit D into it's active form. So it's important we ensure we take magnesium when supplementing with D3.
Magnesium comes in different forms, check to see which would suit you best and as it's calming it's best taken in the evening, four hours away from thyroid meds if taking tablets/capsules, no necessity if using topical forms of magnesium.
Check out the other cofactors too (some of which can be obtained from food).
If you increase your dose of D3, retest in 3 months time and when you've reached the recommended level then you'll need a maintenance dose which may be 2000iu daily, maybe more or less, maybe less in summer than winter, it's trial and error so it's recommended to retest once or twice a year to keep within the recommended range. You can do this with a private fingerprick blood spot test with an NHS lab which offers this test to the general public:
As you possibly have Hashi's then an oral spray is recommended, eg BetterYou, who do a D3 spray, they also do a D3/K2 combined spray.
As for the folic acid, you might be one of those people who have reduced ability to convert it to the active for - methylfolate. You may do better with a methylfolate supplement.
Thank you seaside susie, I love your name too! I love taking myself off to the seaside especially when it’s winter and it’s rough at sea. It’s greatness puts a lot of things into perspective.
I’ve just ordered all suggested which is great. Thankful for medichecks and everyone on here.
When I had my scan for thyroid goitre, I asked if my thyroid was normal in texture and he was very rude and said what are you wanting from today? The scan results will be sent to your gp. I was dumbfounded, I did suggest that I am curious as to why I have all these problems and my thyroid keeps getting nodules. He also said that thyroid doesn’t feel pain so my pain is not associated with my thyroid and that it’s something else. I have tried to get hold of my scan but they will not let me have it. I got in contact with a private specialist from the list that Dionne sent last year and he said he would look at it if I could send it to him. Obviously I have been unable to do that.
Don't start all supplements at the same time, start with one, give it 2 weeks, if no adverse reaction then add the next one, etc. That way if you have a reaction then you will know what caused it.
Calm vitality magnesium powder is cheap and easy to use. Starting on a low dose and increase slowly until you get improvements. Too much can cause diarrhoea
Ultrasound scan of thyroid can help diagnose Hashimoto's
A trial of Levothyroxine once all vitamins are optimal might be good idea
Email Thyroid UK for list of recommended thyroid specialists
please email Dionne
tukadmin@thyroiduk.org
When you redo thyroid tests always make sure test is as early as possible in morning and fasting
Getting all vitamins optimal can help raise TSH so that you can get Levothyroxine prescribed
I’ve been put on codiene 30mg for the pain I experience which is obviously going to make my constipation worse but I think I get proctalgia fugax and there’s just nothing worse.
I’ve got the list thank you and I’ve got in contact with one of the specialists who was very helpful but money is an issue. I’ve been able to get a scan but I’ve not got my results I’ve just been told I have a goitre and they will monitor. Well that was a year ago so I’ve got to chase it up again. I have a new gp now and he has been really helpful so far with my gut problems etc. One thing at a time, even though I know they are all connected.
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