Adrenal advice

[ter1461]

Hi

I’m currently self treating my hypothyroidism hashis with NDT and T3.

Had appt with rotten endo as I’m wanting this put on my record and his advice was to come off everything and wait six weeks to give baseline or go in self treating myself.

Well today I’ve stopped all along with ACE but wanted to ask should I stop ACE to as I have or should I still carry on with that.

I e been feeling breathless today and thinking if the reason could be that what’s in my system isn’t receiving an support with the ACE.

Could this be right?

Thanks

[greygoose]

I think we would have to post your latest labs and ranges for good replies, but in theory, your endo's advice is dangerous rubbish! You should not stop your thyroid hormone knowing that you are hypo and you have Hashi's. Certainly not for six weeks.

Endos often play this silly game because they're out of their depth and don't know what else to do. But, it's not advisable to listen to them. Let them boost their flimsy little egos somewhere else!

[ter1461]

Because I’m self treating and tsh was at 2.8 when started FT3/4 bottom TPO 106. Although tsh was over 5 twice before over years. He didn’t say much on that, just what was before started medicating.

I feel I don’t have anywhere else to go with having s diagnosis. The hope I have is my new doctor as I’ve moved area is actually my old one from two years back who was good. They also test tsh and ft4/3 also in this region rather than just TSH

[Heloise in reply to ter1461]

hi ter, when was your tsh a 2.8? If it was recently, you should probably be increasing not stopping. As greygoose said, it would not be wise to stop, you may be out of T3 shortly. You should continue your adrenal cortex. By looking at your dosing and your current results, that should be enough to tell whether you need more or less of either one. It would be disastrous to send your TSH back up to 5.0.

[ter1461 in reply to Heloise]

My tsh was at 2.8 just before I started self treating back in October 2017 I meant. My tsh had fluctuated over many years up to 5 well before I started self treatment without a GP even mentioning it I meant also.

[Heloise in reply to ter1461]

Was that while being treated by your good doctor? Isn't it sad? Mine said that a tsh of 3 was okay and then I collapsed on the golf course. I pay little attention to doctors now and see them only if I need a prescription. I've also taken progesterone which your adrenals use a lot of, magnesium and even pregnenalone or dhea. I think all the hormones suffer when the adrenals suffer.

[ter1461 in reply to Heloise]

No Heloise that’s when I was sick of not being listened to that I had a thyroid problem. I wasn’t on anything.

My DHEA was good when tested adrenals. Should progesterone be tested? Have you heard if aldosterone needing treat also?

[Heloise in reply to ter1461]

I'm a practical person and would love to have every hormone tested but unless you are seeing a functional doctor and one that can test and prescribe, it is really difficult to do all that's necessary. I feel when one hormone is "off" the others may also be "off". I'm glad you bring up aldosterone because when I was pouring through medical books back in the dark ages, I decided I had an aldosterone deficiency because my symptoms lined up with those. There was something about my wrist joint and my ankle joints but he took a thyroid test only and the tsh was very high. Whether he should have gone further with aldosterone I don't know even now but I know when there is a cortisol problem you could be low in other hormones. Vitamin D is essential for those others to work. Adrenals will use additional progesterone as well. So, that is why I've used other hormones and pregnenalone seems to know which you are low on and they suggest it will be an equalizer but I just try them out and hope for the best. I'm a lot older than you so that may matter.

Someone suggested the SHBG sex hormone binding globulin can tell you if the T3 is actually being used. I haven't found yet whether that is true. Maybe a gynecologist would be helpful.

[Hidden]

You stopped an ACE inhibitor for hypertension or congestive heart failure and now you are breathless? That is probably why. I have not seen anyone else suggest stopping that sort of drug in preparation for thyroid testing.

Chances are your physician would not be pleased. No drugs for cardiac conditions should be stopped unilaterally unless you had an allergic reaction or you need a substitute drug due to manufacturing defect such as the presence of carcinogens, but even then one would need a substitute drug very quickly.

If you did not mean ACE inhibitor, I apologize for misunderstanding.

[ter1461 in reply to Hidden]

No it’s Adrenal cortex for Adrenals

[Hidden in reply to ter1461]

Sorry.

[Hidden]

Curious to know why you are taking T3 along with NDT; is there not enough T3 in NDT for you?

[ter1461 in reply to Hidden]

Following STTM protocol as I have low adrenals and minimise high RT3

[Hidden in reply to ter1461]

And is it working for you...?