Borderline 12

[B12jab]

Hi,please can someone give me some advice please, I started my first injection today my b12 is 282,I’ve been ill for so long with crushing fatigue but my worst symptom is being off balance constantly giddy like im in a moving ship,terrible brain fog a feeling of being in the room but not if that makes sense? Does anyone suffer this? And should I be taking folic acid please? Many thanks x

[LowB12]

My folate was low, as well as B12 but not that my GP would do anything about as ‘normal’ at 210 with range 200-800. I was advised, I think on this or the PA pages, to take Methyl folate rather than folic acid. I started sublingual B12 and felt a bit better, just started self injecting & hoping to see more improvements. I empathise with you ‘not in the room’ and ‘at sea’ feelings!

[B12jab in reply to LowB12]

I have been on ferrous fumerate for four months and my folate is now 23 it was 16, would you say my b12 at 280 is causing my problems? I had first injection today my doctor will only agree on loading doses

[shaws Administrator in reply to B12jab]

Were you checked to ensure you don't have Pernicious Anaemia rather than a B12 deficiency?

[LowB12 in reply to B12jab]

I couldn’t tell you. I just know it was the only thing I could treat, as well as restricting gluten to help myself. PA site may be able to advise more. There was a PDF I filled in relating to B12 symptoms and GP still said hands were tied as ‘normal’ bloods.

[SlowDragon Administrator in reply to B12jab]

Ferrous fumerate is to improve low ferritin and low iron. It won't help folate

For low folate you need a daily good quality vitamin B complex, one with folate in not folic acid. eg Igennus Super B complex, or Jarrow B-right

B vitamins best taken in the morning after breakfast

If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 3-5 days before any blood tests, as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

Have you had vitamin D tested?

Likely low too, if B12, folate and ferritin are all low

vitamindtest.org.uk

Local CCG guidelines

clinox.info/clinical-suppor...

Government recommends everyone supplement October to April

gov.uk/government/news/phe-...

The fact all these are low suggests you are hypothyroid and/or gluten intolerance or coeliac

Are you on strictly gluten free diet? If not ask for coeliac blood test and vitamin D testing

If coeliac test is positive you will have to remain on gluten rich diet until endoscopy. If negative then you can immediately try strictly gluten free diet

[SeasideSusie Remembering]

B12jab

You will be better off asking your question on the Pernicious Anaemia Society forum here on HealthUnlocked, they have more experience with B12. This is a Thyroid forum and we probably wont be able to answer your question as well as they can.

healthunlocked.com/pasoc