Borderline 12: Hi,please can someone give me some... - Thyroid UK

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Borderline 12

B12jab
B12jab

Hi,please can someone give me some advice please, I started my first injection today my b12 is 282,I’ve been ill for so long with crushing fatigue but my worst symptom is being off balance constantly giddy like im in a moving ship,terrible brain fog a feeling of being in the room but not if that makes sense? Does anyone suffer this? And should I be taking folic acid please? Many thanks x

6 Replies

My folate was low, as well as B12 but not that my GP would do anything about as ‘normal’ at 210 with range 200-800. I was advised, I think on this or the PA pages, to take Methyl folate rather than folic acid. I started sublingual B12 and felt a bit better, just started self injecting & hoping to see more improvements. I empathise with you ‘not in the room’ and ‘at sea’ feelings!

B12jab
B12jab in reply to LowB12

I have been on ferrous fumerate for four months and my folate is now 23 it was 16, would you say my b12 at 280 is causing my problems? I had first injection today my doctor will only agree on loading doses

shaws
shawsAdministrator in reply to B12jab

Were you checked to ensure you don't have Pernicious Anaemia rather than a B12 deficiency?

LowB12
LowB12 in reply to B12jab

I couldn’t tell you. I just know it was the only thing I could treat, as well as restricting gluten to help myself. PA site may be able to advise more. There was a PDF I filled in relating to B12 symptoms and GP still said hands were tied as ‘normal’ bloods.

SlowDragon
SlowDragonAdministrator in reply to B12jab

Ferrous fumerate is to improve low ferritin and low iron. It won't help folate

For low folate you need a daily good quality vitamin B complex, one with folate in not folic acid. eg Igennus Super B complex, or Jarrow B-right

B vitamins best taken in the morning after breakfast

If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 3-5 days before any blood tests, as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

Have you had vitamin D tested?

Likely low too, if B12, folate and ferritin are all low

vitamindtest.org.uk

Local CCG guidelines

clinox.info/clinical-suppor...

Government recommends everyone supplement October to April

gov.uk/government/news/phe-...

The fact all these are low suggests you are hypothyroid and/or gluten intolerance or coeliac

Are you on strictly gluten free diet? If not ask for coeliac blood test and vitamin D testing

If coeliac test is positive you will have to remain on gluten rich diet until endoscopy. If negative then you can immediately try strictly gluten free diet

SeasideSusie
SeasideSusieAdministrator

B12jab

You will be better off asking your question on the Pernicious Anaemia Society forum here on HealthUnlocked, they have more experience with B12. This is a Thyroid forum and we probably wont be able to answer your question as well as they can.

healthunlocked.com/pasoc

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