Is it time to change my doctor and Endo.

[sylus_911]

My previous comment was my doctor telling me my tsh levels were far to low and they needed to come up.Hes stopped my thyroxine 25mcg.My Endo has put me on a higher dose of Erfa,alternate days of 60mg to 65.Also he has recommended to my doctor that I should stop taking vitamin D.!!!! Although I had a blood test and it's fine, although I haven't got my print out yet.Ive up my dose of Ferritin as that just seems to be going down,the doctor has suggested an iron infusion.At the moment I'm not sleeping very well,very loose stools and feel anxious and shaking.Can someone please advise.

[shaws Administrator]

Yes - Time for a Change.

The only problem is nowadays that doctors like Dr Skinner and Dr Peatfield (trained around the same time) and the last of the doctors who treated patients and not a blood test.

Hopefully there are some compassionate doctors somewhere in the UK maybe if they or one of the families have a problem with their thyroid gland.

Quite a number of Endocrinologists used to prescribe NDT or T3 but they've been told not to do so anymore - never mind that the patient is worse on levothyroxine and feeling awful, losing jobs, unable to work, unable to think at times.

Can you post the results of your last blood test? Fine? is not a word to use if the patient has symptoms. We need 'optimum dose' or TSH of 1 or lower. Also include the ranges as this enables members to comment upon them/

[sylus_911 in reply to shaws]

Last blood test was I October.Tsh 0.06(0.34-5.60) originally was 0.01(0.34-5.60) t4 7.7(7.9-20.0)t3 4.9(4.00-6.60) Ferritin 32(11.307)Made a mistake with my Erfa Endo put my dose up from 60 to 75mg alternate days.Does that work?

[shaws Administrator in reply to sylus_911]

First of all before the introduction of levothyroxine (T4) alone we were all given NDT upon clinical symptoms alone - no blood tests at all just skill of doctors' knowledge.

Then blood tests were introduced along with levothyroxine which is T4 alone.

T4 is an inactive hormone - it has to convert to T3. Some cannot convert T4 sufficiently.

T3 is the Active hormone and it is this which is needed in our millions of T3 receptor cells to enable our body to function normally.

I don't understand, if we take NDT, why they are using blood tests which are for T4 alone. NDT contains T4, T3, T2, T1 and calciton. The problem comes when they try to adjust the dose to 'fit' into a scale which is for T4 only. I am puzzled - instead of doctors/endos concentrating wholly on the relief of clinical symptoms rather than the result of a test for the pituitary gland i.e. Thyroid Stimulating Hormone (TSH). Copy and paste the tinyurls onto a new page.These chapters were by one of our Adisers (deceased). He took one blood test for a diagnoses and thereafter it was all about clinical symptoms. He'd never prescribe levo - only NDT or T3 for thyroid hormone resistant paties.:

tinyurl.com/ycxpz565

tinyurl.com/ya5blrr2

tinyurl.com/y7ejh9sh

[sylus_911 in reply to shaws]

Thank you Shaws