Thyroid UK
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T3 Debate Change of Time

T3 Debate Change of Time

Lord Hunt tells me today that he thinks the debate in the House of Lords will probably start around 5.15 - 5.45pm instead of around 7pm tomorrow (20th June).

You should be able to watch it here: parliamentlive.tv/Event/Ind...

I have a meeting with him before the debate and will be attending the debate.

Let's hope that this debate brings change!

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Lyn, can people watch this on TV or listen on radio? If so, do you have the relevant info please?

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I've now put the link to the Parliament TV page on the internet -

healthunlocked.com/api/redi...

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Thanks Lyn. Fingers crossed that it brings the situation into the light more if nothing else.

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Seconded lynmynott: Thank you for all the hard work you do on our collective behalf.

After nearly 20 years of chronic illness on T4, my health improved and my life changed for the better aged 41 after adding T3 last summer, and it’s all because of you lovely lot!

I wouldn’t wish those lost years - or the irreversible damage they caused - on anyone. Let’s hope this T3 situation is resolved for the good of everyone in the U.K. with hypothyroidism. And there are an awful lot of us!

Good luck and let’s hope Hunt listens to you!

Thanks again for all your efforts,

Abi.

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Hi Abi, Can I use your comment to give to Lord Hunt tomorrow? Lyn

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Just to confirm - this is on tomorrows agenda - right?

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Yes, sorry forgot to put that!

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Thanks so much! One thing he might know about- a couple of online German pharmacies have told me they'll only accept UK prescriptions while we're in the EU. Will we be able to carry on buying from Europe after Brexit?

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This worries me. For all those that buy T3 and NDT. Perhaps less for NDT because most of that comes from America and so patients already have to pay import taxes and duties on top of shipping. But that could get worse if the ixxxt Trump slaps tariffs on medications. But T3 tends to come from Europe. So I expect the cost will rise and on top of that will be delays and customs charges. It's not going to be easy. Anyone who uses T3 from Europe would be wise to stock up in advance of the leave date. All imports and exports are going to be chaos for a while.

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I'll bring it up tomorrow.

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Much appreciated!

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Lyn, could I please make a plea for thyroidectomy patients. We always seem to get forgotten yet 20% of T3 should come directly to us from our non-existent thyroids.

Thank you and good luck with your meeting before the debate.

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Hi Hennerton, I am always mindful of thyroidectomy patients - I am one myself. :-) Seriously though, I have already mentioned this to Lord Hunt and will continue to do so in our campaign.

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Thank you, Lyn. I know we can trust you to do all you can for us and we are all immensely grateful. Your tenacity and wisdom are amazing. So often, however, we do not get a mention. It is so frustrating and until more is said about it, no one will understand that struggling without a thyroid is a constant battle - at least it is for me. Of course thyroid surgeons would like to keep it under wraps, as they will find it harder to peddle the fantasy of "one little white pill every day and you will be fine". I am sure all thyroidectomy patients have heard that...

Here's hoping for good news from Parliament!

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Exciting times, for all thyroid patients! Yes, well done for your hard work, all of you. Whatever the outcome, we really, truly, appreciate all the help and support, we are given by you warriors.

God knows, we are too often, left alone, fighting innuendos, or labels, that are still treating thyroid patients as suffering mental health problems, with little/no consideration to underlying physiological issues, that can be treated well with the correct med/dose.

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Thank-you. I will follow with interest

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thank you so much for all your hard work.

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Oh, I do hope so and will look forward to the debate.

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Lynn, you are a diamond, thank you again for waving our flag, again !

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Looking forward to this afternoons debate... 🙏🤞🙏

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Just finished listening and feel very optimistic. Great debate and excellent speakers. Hope this is the beginning of a huge change...

Sadly, once again, however, there was no mention of the additional issues of patients without a thyroid. It is such a powerful reason to need T3 and I cannot understand why it is never mentioned. Nevertheless, I am very happy tonight!

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Hennerton, I thought one of the Lords (I think it was Turnberg) said he'd had his thyroid removed due to Graves and is well on T4 only.

An aunt of mine had thyroid removed due to thyroid cancer in her 30's, and lived a long and active life (well into her 90's) on T4 only.

So, not having a thyroid is not necessarily a "powerful reason to need T3".

It would be interesting to see actual figures of how many patients taking T3 have had their thyroid removed, versus those who have a thyroid that no longer works or has been destroyed by autoimmune thyroid disease.

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Hansard version of the motion is available (currently in uncorrected form) here:

hansard.parliament.uk/Lords...

Sometimes it is so much easier to read than to listen! :-)

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Thank you so much for this link. I read it with huge interest and hope for the future.

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Quite agree but never likely to be a study on it.

I stand by my view that if 20% of our T3 is made in the thyroid, thyroidectomy patients will be short unless they convert well and have enough T4 and since there are several studies to confirm the problem for them, I believe it is a powerful reason for the necessity of T3 in many thyroidectomy patients. Others may do well without; they are fortunate and possibly there is a difference between patients who have thyroidectomy because of raging antibodies, as in Graves’, or for reasons of cancer. We are all so different - sigh!

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Just had a listen to this whilst on holiday in beautiful Northumberland (My plan to not even whisper the word thyroid for a week has gone to pot lol).

I actually had a little cry when I heard Lord Borwick describing the problems and symptoms in the middle of the House of Lords.

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Amazing how many of them can't pronounce hypothyroidism!

Lyn et al, thank you so much for all your work with this :) xx

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Just listened to the debate. So good to be feeling optimistic about the possible outcome of this. Thank you for all of your hard work. It is so very much appreciated.

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