no clue ?

[juls]

Hi everyone, not posted for a while but been trying to get answers by googling yeah as we do. So went to see endoctrinoligist today been a while but seen the same doctor way back in 2010 , Anyway try to keep this short he was looking at my MRI brain scan I had recently by a nueroligist, so what amazed me he said this is your piturity gland which he pointed it out ,not having a clue what I was looking at but what he said was there is an empty space there ? filled up with CSF well I asked of course to what he said back was you had piturity problems long time ago yes ...ERM yes ok but i got that sorted by medicatin C T found no tumour ? given bromcriptine as a remember to bring down my prolactin level which worked .right so now he said when they see a empty space means there could of been a prolactinoma which left that space ...so I have yes been googling what it could be and found in UK thyroid something called empty sella syndrome .. so I went only to get all my bloods tested properly instead of just my gp doing TSH ..now im being investigaed for this problem any one have some sort of idea or have had this problem ? also being sent for another ultra sound scan and a FNB ..least i am having everything sorted wow this doctor is great my god who would of thought he would be looking at my MRI I had for tia .. now hows that for competance finding this when he didnt order it that scan eh ...x

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[Hidden]

Never heard of a prolactinoma, or empty sella syndrome, but found this:

pituitary.ucla.edu/prolacti...

ninds.nih.gov/Disorders/All...

A prolactinoma is apparently a benign tumour (not cancer) but it can squash the pituitary and damage it, or even other parts of the brain if it gets too big.

I think they are saying that your pituitary has been squashed (because of the prolactinoma, which eventually disappeared?) to cause the empty space. Or maybe the "Empty" space is the prolactinoma which shows up empty on the scan?

Any problem with the pituitary can affect its production of TSH, so you also get thyroid problems.

Hope that makes sense.

[juls in reply to Hidden]

Makes a lot of sense Jnetti thanks for the link will take a look , I am hypothyroid this is why I was sent to endoctrinologist as having problems my GP only seems to want to do the TSH, so i asked her to send me to to see endoc to which he does all the tests thank god might get somewhere now. so after all the question about symptoms I have he brought up my mri from back in june from a small stroke I had back then, and you no what yes it was in the hypothalamus piturity below that it all seems to be conecting and making more sense then ever to all the problems ,I had thought my Thyroid was going haywire but he is a good doctor sending me for an ultra sound for my nodules and maybe a fnb on one which showed suspicious but this was interesting never heard of ESS wow. things we dont know really surprising isnt it..

[Hidden in reply to juls]

If they had done their homework they should have found out which kind of pituitary disorder it was, and that it wasn't your thyroid gland but your pituitary that was causing thyroid gland problems

[juls in reply to Hidden]

DOCTORS yeah should of done, mind you this was well over 20 odd years ago this happened. had Hasimotos since 2007 blody hell geting old. so many symptoms rearing its ugly head againnnnnn.. bloody headaches from hell hissing in my head like a pressure cooker going off only relief am geting is lying down cant be going on like this lifes for living not walking about like a bloody zombie .. anyway fingers crossed my main man dr james will pull some rabbits out that hat , im still wondering about the mri scan though why was he loking at that when he never ordered it hahaha oh well ill not worry about whys and ifs ehhhhhh . cheers x

[juls in reply to Hidden]

just read the first link and wow , so much information about prolactinomas ,i was told they found no tumour but still i was medicated with bromicriptine as my prolactin was 6,011 what ever that ment but i remember he said was off the chart ? So reading the link you sent me says if they find no tumour by CT they should of followed up with a test called macroprolactin which dic never did just banged me on bromocriptine well they worked to bring it down but now has me thinking like my endoc says maybe there was a prolactinoma there and it left this empty space the csf leaks into this space fils it up the piturity gland gets flattened so it shows up as empty .. baffled YESSSSSSSS X

[Hidden in reply to juls]

"my prolactin was 6,011 what ever that ment"

Meant a lot, that's for sure!

I missed what you said about CSF filling the space.

It all makes sense now. The initial treatment shrunk the tumour and it didn't return because it wasn't malignant (cancer), so you have this little hole (the pituitary is only abut the size of a pea, if I remember) that is doing no harm but the tumour (now gone) has squashed and damaged the poor pituitary. So the medics are trying to sort it out now