Current test results in my profile for ref.
So on the thyroid front I have an appointment with a thyroidy nhs endo in 3 weeks time. GP scared stiff of giving me a stroke so won't let tsh drop under 2, but I only want a bit more levo, so I'm hoping the endo isn't a total tool and plays the game. As a back up plan, hubby is under instructions to go levo buying while he's in Spain next week.
A year ago when my tsh was 2 for a while, (it's been up as far as 6.6 when on 75 mcg levo and down again to 2 since with dose increase to 100mcg) At tsh 2 last year I felt not 100% at all, but much better than I do now. I've not been well at all over the last 4 weeks or so. Worse than pre-diagnosis. Having got the 'surprise' low active b12 result back a month ago, I put it to my GP that this might be the reason.
His reply was that I don't have a high MCV, so that couldn't possibly be the case. and anyway, why would I think that 35 was low for active b12? Brain fog prevented me from remembering during the discussion that MCV hasn't been tested for 18 months. And then I gave him something to read about active b12 tests. He basically thinks I'm a hypochondriac, so occasionally humours me...
Of course, NHS won't test MMA (or is this just my GP?) and he basically disregarded the modern, accurate highly regarded Active b12 test, and sent off for total b12. He agreed to test anti-intrinsic factor Ab while he was at it.
Total b12 came back low but in range.
Negative for antibodies, but not the most reliable of tests. Good for confirmation if it comes back positive, but not much use otherwise. Could be atrophy due only to undertreated hashi's.
Meanwhile, I still feel like someone has removed the top of my skull and replaced brain with a jobby.
So I'm not sure what to do next. I sure I'm taking enough b12 in through diet alone, ergo there must be an absorbtion problem. Problem is, if I start self medicating, I'll be stuck with that as that will skew any future tests.
Option 1. Do nothing, see if it gets worse, get retested at some point. I only have symptoms that could also 'just' be hashi's at present.
Option 2. Pay to get MMA tested myself. If deficiency indicated, hope that GP will give injections.
Option 3. Start supplementation either injecting or those dermal patches.
Any other bright ideas or experience from the floor?