I am 21 years old and was diagnosed with an overactive thyroid and Graves Disease in mid 2016 and have been on different doses (currently 5mg daily) of Carbimazole since. I originally went to my GP for what i thought were worsening IBS-D symptoms and weight gain but he noticed I had a temperature and something wrong with my throat and after a blood test, realised my thyroid levels were insane. I was diagnosed with autoimmune thyrotoxicosis.
I had most of the classic symptoms like heart palpitations and hot sweats but also atypical ones - weight gain (with no increase in appetite) and lethargy. None of the doctors I have seen within the Endocrine department ever took this concern of weight gain seriously and since being on Carbimazole i have gained around 10kgs - in spite of dieting, regular gym, etc. After some reading online I found other people experienced this when on this medication and have found little to suggest they lose weight while being medicated (which doesn't give me much hope of losing significant weight).
My main concern is that I was gaining weight significantly BEFORE diagnosis and for someone who was overactive in every other way, the fact that I didn't drop any weight makes me think that something atypical was happening. Was something not being converted properly? Was I overproducing one hormone but not another?Doctors insist on treating this in a standardised fashion - medication for 1 year, regular check ups and they soon want me to think about radioactive iodine treatment - however I don't believe what I'm experiencing is standard. I have no intention of doing the radioactive iodine or removal as I do not want to do anything I cannot reverse at such a young age.
I still suffer with heart palpitations and breathlessness at times (and ongoing weight gain), but this is not taken seriously by doctors because I am otherwise 'biochemically' normal. Below I will list some blood test results, if anyone could explain the TSH levels, which often seem to be outside their 'normal' range I'd appreciate it.
Blood results from first referral to Endocrine:
Weight 81.9kg, T4 32, TSH 0.01 (Normal Range 0.3-4.5)
Blood results - June 2017 (5mg Carbimazole daily)
T4 15, TSH 5
Last blood test in April 2018 (5mg Carbimazole daily)
Weight 89.9kgs, T4 16, T3 5, TSH 0.01