So today I got the letter I have been dreading, after 10 months of being prescribed T3 by my GP (after a massive fight and seeing a private endo) they have decided to ‘review’ my prescription with a view to ‘changing’ me to Levothyroxine. They seem to have completely ignored the fact that I was on 150 mcg of thyroxine for 14 years feeling so ill I could barely function with a TSH of 33! To say I am upset and disappointed is an understatement! ☹️
T3 Being withdrawn: So today I got the letter I... - Thyroid UK
Are you able to get a private prescription and get it elsewhere?
It’s absurd. I’ve got details of one that my endo gave me if you need it. German pharmacy online.
Because someone allowed the price to go up 6000%. My argument is the cost of all the other medications, referrals, trials and benefits!
Coz they really do work !! My ar@e
ThyroidUK's article on where to obtain T3 with a prescription, near the end of the article
There are other German suppliers for private prescription
Current guidelines only allow NHS prescription of T3 if seen by NHS endocrinologist. HOWEVER guidelines also say you MUST be referred to NHS endocrinologist to over see withdrawal of T3.
See page 19
Get the list of recommended thyroid specialists from Thyroid UK. Some endocrinologist on there are NHS and recognise need for T3
Meanwhile get private prescription to cover the gap
And write to MP and Lord O'Shaughnessy
Fight it kitty. Mine was stopped by my ccg it took 10 months but it has been reinstated. I was given the impression that those who fight for it will get it, they know most will just accept it. It's bloomin hard work fighting the system but it can be done. My endo gave me private prescription for the 10 months that I filled in a french pharmacy.