Help please - Thybon 20 Henning : Can anyone tell... - Thyroid UK

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Help please - Thybon 20 Henning

Aurealis profile image
24 Replies

Can anyone tell me please - what exactly has to be written on a prescription in order to order T3 from the pharmacy in Germany?

(I have a GP T3 prescription for T3 at a U.K. pharmacy but they are having difficulty getting MP, the brand that I feel well on, and as it’s an electronic prescription, suspect I will need to jump through the GP appointment roulette to get another prescription and I’m getting dangerously low on supplies now. )

Is ‘Thybon 20 Henning’ the brand or German name for T3?

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Aurealis profile image
Aurealis
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24 Replies
jimh111 profile image
jimh111

‘Thybon 20 Henning’ is the brand name. I think it's OK to have 'liothyronine' on the prescription but not 'liothyronine sodium' as Thybon is 'liothyronine hydrochloride'. I have not obtained Thybon yet so don't rely on my advice!

Aurealis profile image
Aurealis in reply to jimh111

Thank you.

As I’m sensitive to brand changes should I try instead to get Sanofi Henning Thybon? Is this Liothyronine Sodium? and if so, where from? Is this the one you tried (saw your reply on another post 5 months ago)

jimh111 profile image
jimh111 in reply to Aurealis

I believe Thybon 20 Henning is the brand name and it is made by Sanofi. I suspect liothyronine hydrochloride is superior to liothyronine sodium. I found it more gentle and more effective, perhaps it has a slower release? I haven't been able to find any information on the phamacokinetics of liothyronine hydrochloride - i.e. how quickly it is absorbed and its effects on TSH.

Aurealis profile image
Aurealis in reply to jimh111

Thank you. I’ll just have to try it and see. I have several boxes of Teva T3 which is no good at all for me, so frustrating! My TSH is always undetectable so there will be no change there.

Quokka profile image
Quokka

My prescriptions say: private patient, liothyronine 20mcg, 100 tablets, to be taken as directed. They have my GP's name and address, and my name, address, date of birth, age and EMIS number (?!) German online pharmacies say they only last for 3 months from the date they're written. They're printed and signed on the white side of the NHS green presciption forms. I've successfully used them to buy several batches of Thybon Henning, though the company I used doesn't seem to be selling it any more. Thybon20Henning is the brand name for the 20 mcg tablets. Good luck!

Aurealis profile image
Aurealis in reply to Quokka

Thank you Quokka, especially appreciate the detail in your reply as I think I will have to hold GPs hand, so need to know what I’m talking about ...or else pay for an endo appointment too!

I just can’t cope with the stress of not knowing if the pharmacist will come up with anything in time! Have a holiday com8ng up and will hit meltdown before it if I don’t get a supply before then. Is the pharmacy you used the one that there is a link to on the thyroid U.K. site?

Quokka profile image
Quokka in reply to Aurealis

It is very stressful. I have 2 prescriptions in the post at the moment. One is to versandapo.de which I've used before. They've been sold, but emailed me to say they'd still accept my prescription. The other is mycare.de, from the Thyroid UK site. Hopefully should get something from one of them.

whispers profile image
whispers

Have you rung round all reachable chemists to see if anyone has them in? It might be easier to get a paper prescription for here if you find a supply

Aurealis profile image
Aurealis in reply to whispers

Thank you whispers. I haven’t yet, but I live near a bit city and the pharmacies all seem to be parts of big chains, I understand it’s independent ones that are most helpful.

The pharmacy that has my electronic prescription promised to only get MP but they got Teva instead and I refused it. Will find out today what they’re going to do. I suspect nothing.

The problem is that our GP service is not great either and I’m sure they’ll give me another paper prescription but it all takes time, they only give me three pots at a time, last time it took 3 days to get the prescription from GP. I have to take time off work to do all this. And then I have to go through it all again in a very short space of time. I just can’t relax at all any more.

NHS? In my opinion it’s already gone. I bet Theresa May isn’t going through this with her diabetes!

whispers profile image
whispers in reply to Aurealis

I have to agree with you though my doctors did generate a paper one straight away when asked, i still had to wait for the doctor to sign it and he was a bit perplexed as to why i couldn't just have the teva they offered (im only on t4 but didn't want to mess with brand changes) my chemist has told me that they can't order in specific brands, they just order and use what they are sent. yet i have seen on these boards numerous people who have said their chemist do mark on their record the preffered brand and they seem to get that brand. Perhaps the doctor could, in future specify the brand on the prescription, i think then the chemist can request it that way? Good luck

in reply to Aurealis

I am still waiting for my NDT from Thailand I have 72 days supply left with no thyroid.

I don't worry like if it arrives I will be pleased of course.

Aurealis profile image
Aurealis in reply to

Well done for keeping calm. Good luck!

mourneadventurer profile image
mourneadventurer

Thybon 20 Henning or Liothyronine Hydroch;oride will be sufficient for a German pharmacist to interpret. I use it daily alongside my Novothyral which is a combination T4/T3 tablet mostly used for prescribing in Germany. I've found the combination to be life altering.

As your TSH is not detectable have you considered getting your reverse T3 checked?

Aurealis profile image
Aurealis in reply to mourneadventurer

As I feel well I’m not sure I need my reverse T3 checked? Why do you think I do?

I haven’t heard Novothyrol before, it’s an NDT, perhaps I need to learn German and relocate? Are you importing your meds online?

mourneadventurer profile image
mourneadventurer in reply to Aurealis

Novothyral is a T3/ T4 combination tablet which is obtained over the counter in any German pharmacy provided you have a GP or endocrinologist prescription.

The reason I suggested considering getting reverse T3 checked was because of your below range TSH. My TSH was below range, T4 was in range and T3 slightly over range. It was only then that I discovered a significantly above range reverse T3 indicating my body needed to conserve energy, minerals and vitamins due to underlying occult infection that I was unaware of!

Aurealis profile image
Aurealis in reply to mourneadventurer

Useful to know about Novothyrol. How much does it cost?

My tsh has been suppressed for over 20 years, since I started thyroid treatment. It doesn’t come up if treatment is stopped either. T4 at bottom of range, T3 near top of range. It’s the only thing I feel well on so there doesn’t seem much point in looking for trouble.

Did you get rid of your occult infection? What is that?

mourneadventurer profile image
mourneadventurer in reply to Aurealis

Novothyral 75 contains 75mcg T4 + 15mcg T3 and Novothyral 100 is 100mcg T4 + 20mcg T3 Cost approx 36 euros for 100 tablets over the counter. If you use the search button on the forum you can read more information on it.

Occult (undetectable/underlying pathogens/infections I’m still working on by eliminating and replacing with beneficial organisms instead. As I was unknowingly clinically hypothyroid at cellular level my gut immune system was suppressed and all sorts of nasties weren’t destroyed. This zoo of nasties were depleting my minerals and vitamins making me ill. The gaps left in my mineral status were filled by heavy metals that I was expose£ to alongside herbicides and pesticides.

I am now improving my digestion, removing inflammatory foods, killing the pathogens, gently removing the toxic metals, herbicides and pesticides, boosting my innate immune system and remineralising.

A work in progress.

Aurealis profile image
Aurealis in reply to mourneadventurer

Sorry, I don’t understand. If it’s undetectable, how do you know it’s there?

mourneadventurer profile image
mourneadventurer in reply to Aurealis

Invivo GI Map Test identifies RNA of pathogens. A worthwhile investment.

blondpalomino profile image
blondpalomino

Hi,

have you tried Morningside liothyronine?

I was on Mercury,but they didn't have it at the pharmacy a few months ago,so they gave me the Morningside brand. I had headaches for a couple of weeks until I got used to it, but am fine on it now and get this one all the time. They don't seem to have any trouble getting it.

Aurealis profile image
Aurealis

I haven’t tried it but will if it’s dispensed. It seems as though, now I’ve eventually got it stable that any change is a big deal. Teva was a nightmare though.

blondpalomino profile image
blondpalomino

Hi,

I tried Teva levothyroxine recently as the health centre changed my tablets from having 3 x 25mcg (Wockhart)to 1 x 75 mcg. Unfortunately the only brand of 75mcg is Teva,so I had to try them for a month.I had diarrhoea,felt dizzy and was sweating a lot,so have managed to go back to having 3 x 25mcg again. I don't even want to think about having Teva liothyronine! Morningside are made in Leicester and have been going for about a year.Should be easier to get hold of than from abroad.I just request this brand from my pharmacist before I go in with my prescription and he gets them for me, as he doesn't keep liothyronine on the shelf as it is too expensive.

Aurealis profile image
Aurealis in reply to blondpalomino

Yes I think that is the problem, the U.K. available ones are available to buy with a private prescription but are extremely expensive. The imported ones are more sensibly priced.

blondpalomino profile image
blondpalomino

Hi,

yes, I am lucky to have a GP prescription for it, but as you say I had to jump through hoops to be prescribed it!

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