Hi, just joined and very much hoping someone can help.
I need to find out how to get Sanofi Henning Thybon liothyronine.
An endocrinologist recommended it and told me to get an NHS prescription. I am already taking liothyronine and urgently need a replacement supply as the NHS will no longer supply it free to the over 60s.
My GP and pharmacist have never heard of this company or brand.
Where can my pharmacist get it? How much does it cost?
Is there anything I need to have on the GP's prescription?
Thanks in advance for any advice.
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Fifteen
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Scroll down to Alternatively, you can try some pharmacies in Germany. This is perfectly legal and they are much cheaper than the UK T3.
I understand that the prescription needs to state the number of tablets as 100 (it doesn't come in blister packs of 28 or 30 like UK tablets) and the dose of the tablet, eg 20mcg
It worked out about £28 for 100 x 20 mcg tablets including posting the prescription to them and paying for delivery. I used bennewitz. It's better if you can get your doctor to prescribe 100 tablets (or 50) as they come in packs of 50 and 100. A NHS prescription is fine, perhaps your doctor will write one if you promise to import and pay for the tablets yourself.
I used bennewitz as well. They were v helpful. I had a prescription for 25mcg and they sent 20mcg but that’s ok. I felt confident as they are a reputable chemist 👩🔬
Yes you have to. Place the order and they send you an e-mail with the address to send it to (Bennewitz pharmacy). The prescription must state the same dose as the tablets and I'd advise getting the prescription to quote pack sizes. e.g. 50x 20 mcg liothyronine if you are getting Thybon Henning.
Susie, can you tell me where I can get Sanofi Thybon Henning tablets? I have an NHS prescription for them and need to find a pharmacy, presumably in Germany, to have the script dispensed.
Your endocrinologist should have provided you with a prescription. Not left you high and dry
If your NHS endocrinologist says you have clinical need you should be prescribed on NHS. Initial few months via endo/hospital. Then care and prescription is transferred to GP
Interesting and helpful. Shall look at the gene test. My GP owes me as he missed 2 different cancers and did not follow up when the hospital did not reply then kept postponing my operation!
The prescription has been withdrawn without prior consultation so your suggestion to write to politicians could also help. Thank you.
Thybon 100 Henning ist ein Arzneimittel, das als Wirkstoff das Schilddrüsenhormon Liothyronin enthält. Dieses hat die gleiche Wirkung wie das natürlicherweise gebildete Hormon.
The active ingredient is Liothyronin!
Sanofi Henning's Levothyroxin is inventively called L-Thyroxin Henning.
Thybon 100 Henning is a medicine that contains as active ingredient the thyroid hormone Liothyronin. This has the same effect as the naturally formed hormone.
You get Thybon 100 Henning to replace missing thyroid hormone and / or to relieve your thyroid.
Thybon 100 Henning is used:
for bridging the thyroid hormone deficiency phases in the context of diagnostics and the preparation for radioiodine therapy in thyroid carcinoma,
to replace (substitute) the missing hormone in hypothyroidism
concomitant, proven or suspected T4 / T3 transformational deficiency (generally in combination with levothyroxine),
for investigation of thyroid function (thyroid suppression test).
Whoops! I'm sure the Bennewitz website described it as levothyroxine but must be mistaken. They have now changed the results page you get when you search on 'Thybon' so I can't check. Clearly it is important not to mix up Thybon 20 with Thybon 100 as you will end up rather hyper. Thanks for pointing this out.
I don’t know who told you that the NHS will not supply liothyronine free to the over 60s but they’re talking nonsense. I’m 71 and receive an NHS prescription for liothyronine every month. Of course, as is usual these days, there have been attempts to take me off it and put me on the ‘alternative’ levothyroxin but I have fought them all the way. After receiving a letter from the practice manager at my local health centre telling me the liothyronine would be stopped, I corresponded with him, pointing out that having been stable on it for several years I was not going to allow anyone to ruin my health. I sent copies of the British Thyroid Association’s guidelines which say that if someone is stable on liothyronine they should not be taken off it. I also visited my MP and explained that what was happening was all about the cost and he wrote a letter to my GP. I was forced to see an endo at our local hospital and I made it clear to him that I was not going to come off a treatment which has served me well for so many years. The endo made the right noises while I was with him then, before seeing the results of a blood test, sent a letter to my doctor telling him I was thyrotoxic. The results of the blood test showed that this wasn’t true so I stayed on the same dose. If they can’t get you one way they’ll try another so I was given a 24 hour heart monitor and a bone density scan. I expect there was disappointment at my health centre because the result showed no problem with my heart and my bone density was very good. I don’t believe being on the correct dose of liothyronine causes osteoporosis, my sisters suffer from it and they don’t take thyroid replacement. If the liothyronine had been stopped, or if its taken off me in the future, I’d buy my own but still carry on the fight. My local chemist used to provide liothyronine to a handful of people, now it’s just me. So what I’m saying is please fight for yourself because then you fight for us all.
Impressive. Your energy and strength have encouraged me.
I do find my GP's behaviour totally unprofessional. Even though having it has changed my life for the better, he has been trying to find a way to stop this supply for some time, including seemingly misinterpreting blood results. He is not happy that I use a private endocrinologist for my testing.
He has not discussed this with me - I happened to see that it is no longer included in my list of medications.
You and others are giving me very worthwhile advice and information. Thank you
My GP and pharmacist have never heard of this company or brand.
If they have never heard of Sanofi, the company, they do not deserve their jobs. There are at least 234 of Sanofi's products listed in the UK with product licences from the MHRA.
(There could be other products produced by subsidiaries under different branding. I simply do not know.)
We keep reading that if we have any medicine questions, we should speak with our pharmacists because they are the experts at everything to do with medicines. You do exactly that. And you meet a wall of, in my view, indefensible ignorance.
If they don’t know the company, look it up.
If they don’t know the brand, look it up.
If they don’t know how to get hold of it, contact their suppliers and ask.
If they don’t know how to order specials, find out.
None of these steps is in any way difficult.
We then see doctors and pharmacists criticising patients for turning to support forums! My goodness, is it any wonder? Within five hours or so you have received information about the product, the possible suppliers, the costs, the best way of writing the prescription, the best way of reducing cost to the NHS. And if many of us were not at work, or doing the other things that we do, you might have received all that within an hour.
I totally agree with you. Sanofi is a very well known and respected brand as I know from my business dealings in the industry. I, too, was shocked by the pharmacist's ignorance.
Perhaps too many of the people we have to rely upon for our health needs have lost interest and cannot be bothered to provide the level of care we expect and deserve.
I've recently had 100 Thybon20Henning (20mcg tablets) delivered from mycare.de mycare.de/en/online-kaufen/... I sent a letter in English with my prescription to say what I wanted (not signed for or recorded as it goes to a PO box.) I have private prescriptions from my GP which cost the NHS nothing. Then I used their online order form- it' s in German but just the usual- name, address, etc. After 2 or 3 days they sent me an automated email telling me to pay, and giving their bank details. You have to add 17EUR for delivery. My T3 arrived within a week of payment.
Hi fifteen I get thybon 20, but through my own research of finding a local pharmacy that could get hold of it. It’s on prescription so I don’t pay for it, but I also have to stick with this brand as it’s the only one that doesn’t give me a headache!
I used bennewitz as well. They were v helpful. I had a prescription for 25mcg and they sent 20mcg but that’s ok. I felt confident as they are a reputable chemist 👩🔬
I suggest you phone and speak to Mr Torsten Spenke, the Pharmacist +49 3733 18070. I have found that he is usually available on Fridays.
Then send an email to him with a scan of your prescription.
Post your prescription (include a copy of your email). It cost approx £6 - £7 for postage, I think for speedy delivery. Best to post before midday, the Post Office told me.
Bennewitz sent an email when my prescription arrived setting out the cost (€30,40 for 100, plus postage €6,90). I always pay by credit card - I think that is what is usual.
Not sure if I can give you details of how to get Thybon Henning 20mcg on here so message me and I’ll let You know. 100 has just cost me about £27 plus about £7 for postage from Germany. You need to get Your GP to give you a prescription.
I am trying to source a supplier of LIOTHYRONINE 25mgs OD (special) SP tablets, they are made by the firm SANOFI in France.I used to be able to get these on my NHS prescription but they are no longer available. Does anybody have any ideas?
Elgar1 (love the name by the way), I have not found a supplier for Thybon Henning. I bought enough (from the German pharmacy) before 31st December to last me for this year. I too am looking for a new supplier. My GP will not prescribe it here . If you get any positive news in reply to your request, please let me know by private message.
I do not know how things have progressed, but there was a major shortage of Sanofi Cynomel a while back. Patients in France were getting a dribble of supply.
Maybe a pharmacy would be able to get Ace Cytomel from the Netherlands?
helvella - Thyroid Hormone Medicines
I have created, and try to maintain, a document containing details of all thyroid hormone medicines in the UK and, in less detail, around the world.
Now that the horrendous price increase scandal has been exposed, I wonder if the price for liothyronine on the NHS will go back to the original level. If so, I wonder if the clinical advice on prescribing it will be modified.
Cynical perhaps, but price of medication seems to have played a central role in this.
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Sanofi Henning Thybon...is it same as Liothyronine sodium tablets? 
Thybon henning 
