Hello All ..kind of lost right now trying to sort out what is happening to my body..
Previous elevated bilirubin July 2013 (35)..led to discovery of squamous cell carcinoma of the tongue
Hell year of treatment and recovery began with
Jan 2014 2 x chemo-cisplatin / rads 37x ..ALL clear scans up to today ..TYG
normal bilirubin October 2017
Hypothyroid Nov 2017
random hive like sores SPORADIC in different areas of my body..that came and went
immediate weight gain ..10 lbs
Today on much less food..slowly weight coming down
went on synthroid .025 mg dec/ jan 2018
MARCH increased to ..05 mg
TSH levels supposed normal or within range NOW
april 2018 elevated bilirubin 29, may 35 and now may again 41
MAY 14 ONCOLOGY RESULTS
lymphocytes .07 ..small sliver infection on finger taking weeks to heal
Very poor digestion ...fell bloated all of the time - FULL
no appetite ..easily out of breath when pushed hard ..
ct scans done again stomach , pelvis , chest ..all clear ..T
here are some of my latest numbers ..
I have thalasemia minor ( childbirth ) that skews some of my blood work
hemoglobin ABNORMAL 135...normal 140
white blood cells 4.4 ..normal 4-11
platelet 183 ...normal 150-400
mean platelet 10.5 ..normal 9.1-12.4
red blood cells 6.8 ABNORMAL normal 4.5-6.5
hematocrit .42 normal .42-.54
mean cell volume ABNORMAL 61.2 normal 80-95
mean cell hemoglobin ABNORMAL 19.9 ..normal 27-32
mean cell hemoglobin concentration 324 normal 320-370
rdw-cv ABNORMAL 17.3 ..NORMAL 11.5-14.8
neutrophils 3.1 normal 2-7.5
lymphocytes 0.7 ABNORMAL ..normal 1.5-4monocytes .4 normal 0.2-.08
eosinophils 0.1 normal 0.04-0.4
basophils ...ok
magnesium .84 normal .7-1.1
ast 26 ..normal 5-34
phosphate 1.08 normal .8-1.4
calcium 2.4 normal 2.2-2.62
MAY 22 DOCTOR RESULTS
bilirubin total 37 ABNORMAL...normal < 23
bilirubin direct ABNORMAL normal 9 <5
HEMOGLOBIN
129 - 165
135.0 g/L
NORMAL
HEMATOCRIT
0.39 - 0.49
0.43 L/L
NORMAL
RED BLOOD CELL COUNT
4.2 - 5.8
6.9 x 10*12/L
HIGH
MEAN CELL VOLUME (MCV)
80 - 98
63.0 fL
LOW
MEAN CELL HEMOGLOBIN (MCH)
24 - 33
20.0 pg
LOW
MEAN CELL HEMOGLOBIN CONCENTRATION
313 - 344
312.0 g/L
LOW
RBC DISTRIBUTION WIDTH
12.5 - 17.3
18.2 %
HIGH
WHITE BLOOD CELL COUNT
3.2 - 9.4
3.1 x 10*9/L
LOW
PLATELET COUNT
155 - 372
155.0 x 10*9/L
NORMAL
MEAN PLATELET VOLUME
4 - 14
9.7 fL
NORMAL
WBC NEUTROPHILS
1.4 - 6.3
2.1 x 10*9/L
NORMAL
WBC LYMPHOCYTES
1 - 2.9
0.6 x 10*9/L
LOW
WBC MONOCYTES
0.2 - 0.8
0.3 x 10*9/L
NORMAL
WBC EOSINOPHILS
0 - 0.5
0.1 x 10*9/L
NORMAL
WBC BASOPHILS
0 - 0.09
0.0 x 10*9/L
NORMAL
SMEAR:
Please see details
SEE DETAILS
SMEAR PLATELETS
Please see details
NORMAL
SMEAR RED BLOOD CELLS
Please see details
ABNORMAL
SMEAR RED BLOOD CELLS
Please see details
ABNORMAL
SMEAR RED BLOOD CELLS
Please see details
ABNORMAL
SMEAR RED BLOOD CELLS
Please see details
ABNORMAL
SMEAR RED BLOOD CELLS
Please see details
ABNORMAL
SMEAR RED BLOOD CELLS
Please see details
ABNORMAL
my oncologist believes there is NO relation between my thyroid and elevated bilirubin or digestion issues ???? what the f ### ???
beyond my experience and common sense....I CAN GOOGLE THE RELATIONSHIP EXISTS
WORLD CLASS CANCER CENTER ...I AM CONFUSED ??
he is ordering a gastroenterologist ..perhaps he said this is GILBERTS SYNDROME
ADDICT 9 YEARS IN RECOVERY drink , smoke, drug and sugar free 9 years ..VERY clean food intake ( program-weighed and measured )- whole grains, fruits and vegetables , yogurt are staples ...but I am wondering how much diet is playing a role here ...
please help ...I believe i need a thyroid specialist ..and am crossing my fingers that CANCER IS NOT LURKING somewhere else -billrubin /lymphocytes SO ABNORMAL
From what i am reading.. I should involve a endocrinologist NOW
I WELCOME ALL FEEDBACK HERE...
i FEEL VERY FORTUNATE TO HAVE FOUND YOU
SINCERELY,
MARK I
TORONTO , CANADA