NEWLY DIAGNOSED HYPO ; BLOATED / FULL -BILLIRUBIN AND LYMPHOCYTES ABNORMAL

[marcopolo813]

Hello All ..kind of lost right now trying to sort out what is happening to my body..

Previous elevated bilirubin July 2013 (35)..led to discovery of squamous cell carcinoma of the tongue

Hell year of treatment and recovery began with

Jan 2014 2 x chemo-cisplatin / rads 37x ..ALL clear scans up to today ..TYG

normal bilirubin October 2017

Hypothyroid Nov 2017

random hive like sores SPORADIC in different areas of my body..that came and went

immediate weight gain ..10 lbs

Today on much less food..slowly weight coming down

went on synthroid .025 mg dec/ jan 2018

MARCH increased to ..05 mg

TSH levels supposed normal or within range NOW

april 2018 elevated bilirubin 29, may 35 and now may again 41

MAY 14 ONCOLOGY RESULTS

lymphocytes .07 ..small sliver infection on finger taking weeks to heal

Very poor digestion ...fell bloated all of the time - FULL

no appetite ..easily out of breath when pushed hard ..

ct scans done again stomach , pelvis , chest ..all clear ..T

here are some of my latest numbers ..

I have thalasemia minor ( childbirth ) that skews some of my blood work

hemoglobin ABNORMAL 135...normal 140

white blood cells 4.4 ..normal 4-11

platelet 183 ...normal 150-400

mean platelet 10.5 ..normal 9.1-12.4

red blood cells 6.8 ABNORMAL normal 4.5-6.5

hematocrit .42 normal .42-.54

mean cell volume ABNORMAL 61.2 normal 80-95

mean cell hemoglobin ABNORMAL 19.9 ..normal 27-32

mean cell hemoglobin concentration 324 normal 320-370

rdw-cv ABNORMAL 17.3 ..NORMAL 11.5-14.8

neutrophils 3.1 normal 2-7.5

lymphocytes 0.7 ABNORMAL ..normal 1.5-4monocytes .4 normal 0.2-.08

eosinophils 0.1 normal 0.04-0.4

basophils ...ok

magnesium .84 normal .7-1.1

ast 26 ..normal 5-34

phosphate 1.08 normal .8-1.4

calcium 2.4 normal 2.2-2.62

MAY 22 DOCTOR RESULTS

bilirubin total 37 ABNORMAL...normal < 23

bilirubin direct ABNORMAL normal 9 <5

HEMOGLOBIN

129 - 165

135.0 g/L

NORMAL

HEMATOCRIT

0.39 - 0.49

0.43 L/L

NORMAL

RED BLOOD CELL COUNT

4.2 - 5.8

6.9 x 10*12/L

HIGH

MEAN CELL VOLUME (MCV)

80 - 98

63.0 fL

LOW

MEAN CELL HEMOGLOBIN (MCH)

24 - 33

20.0 pg

LOW

MEAN CELL HEMOGLOBIN CONCENTRATION

313 - 344

312.0 g/L

LOW

RBC DISTRIBUTION WIDTH

12.5 - 17.3

18.2 %

HIGH

WHITE BLOOD CELL COUNT

3.2 - 9.4

3.1 x 10*9/L

LOW

PLATELET COUNT

155 - 372

155.0 x 10*9/L

NORMAL

MEAN PLATELET VOLUME

4 - 14

9.7 fL

NORMAL

WBC NEUTROPHILS

1.4 - 6.3

2.1 x 10*9/L

NORMAL

WBC LYMPHOCYTES

1 - 2.9

0.6 x 10*9/L

LOW

WBC MONOCYTES

0.2 - 0.8

0.3 x 10*9/L

NORMAL

WBC EOSINOPHILS

0 - 0.5

0.1 x 10*9/L

NORMAL

WBC BASOPHILS

0 - 0.09

0.0 x 10*9/L

NORMAL

SMEAR:

Please see details

SEE DETAILS

SMEAR PLATELETS

Please see details

NORMAL

SMEAR RED BLOOD CELLS

Please see details

ABNORMAL

SMEAR RED BLOOD CELLS

Please see details

ABNORMAL

SMEAR RED BLOOD CELLS

Please see details

ABNORMAL

SMEAR RED BLOOD CELLS

Please see details

ABNORMAL

SMEAR RED BLOOD CELLS

Please see details

ABNORMAL

SMEAR RED BLOOD CELLS

Please see details

ABNORMAL

my oncologist believes there is NO relation between my thyroid and elevated bilirubin or digestion issues ???? what the f ### ???

beyond my experience and common sense....I CAN GOOGLE THE RELATIONSHIP EXISTS

WORLD CLASS CANCER CENTER ...I AM CONFUSED ??

he is ordering a gastroenterologist ..perhaps he said this is GILBERTS SYNDROME

ADDICT 9 YEARS IN RECOVERY drink , smoke, drug and sugar free 9 years ..VERY clean food intake ( program-weighed and measured )- whole grains, fruits and vegetables , yogurt are staples ...but I am wondering how much diet is playing a role here ...

please help ...I believe i need a thyroid specialist ..and am crossing my fingers that CANCER IS NOT LURKING somewhere else -billrubin /lymphocytes SO ABNORMAL

From what i am reading.. I should involve a endocrinologist NOW

I WELCOME ALL FEEDBACK HERE...

i FEEL VERY FORTUNATE TO HAVE FOUND YOU

SINCERELY,

MARK I

TORONTO , CANADA

[greygoose]

Hi marcopolo, welcome to the forum.

Do you have any thyroid results? Because 'in-range' means nothing. Certainly doesn't mean that levels are normal! So, if you could post the results and ranges, that would help people help you.

[marcopolo813 in reply to greygoose]

Thank you Greygoose ..i will ask for them today at my appt.

frustrated that my gp is staring at the liver closely ...this all began with hives / being cold / weight gain / hypothyroidism in nov.2017

[greygoose in reply to marcopolo813]

Well, if there's a problem with your liver, it's best to know. But he should be looking at the thyroid, too.

[Judithdalston]

To start with thyroid problems.....you only started levothyroxin in Dec/jan with 25 mcg, then went up to 50 mcg in March, 2018. TSH 'supposed normal..within range'. What is perceived as normal for doctors is not necessarily suitable for thyroid sufferers; TSH should be 1 or below, yours could be about 4 yet still be in range. You need the result plus range, and results of more than TSH, but T4 ,FT4 and FT3 too. Do you know if you are Hashimoto's hypothyroid with autoimmune antibodies ( percentage-wise it is the likely cause of your thyroid problems, but then percentage-wise most of us are female too!)? Hashimoto's notoriously combines with bad gut absorption, and limits our vitamin/mineral levels. Many people resort to going gluten free, even dairy free, to help with this, so diet can play a huge role for some. If you get the thyroid levels above tested with one blood draw, add B12, D3, folate and ferritin tests too, they are vital to good thyroid health at levels into the upper half of ranges. Look at SeasideSusie's posts for details. 50 mcg T4 tends to be a starter dose, and most would continue to add another 25 mcg after tests every 6 weeks or so. Don't know if it's any better in Canada but in the Uk many of us have to go down private blood test route to get the thyroid/ Vit/ min tests we want..costly but worth it as elsewise we don't get the full picture to start and maintain treatment. Your other results are abit overwhelming, don't know if anyone else on forum could help with this.

[marcopolo813 in reply to Judithdalston]

Thank you Judithalston.

I have very little Thyroid level data to share with you or anyone.

gp is focussing closely on liver..in the mean time I am uncomfortable physically and trying to stay sane with lymphocytes so low as well as bilirubin.

I will get more info today and will be requesting hematologist / endocrinologist/ gastroenterologist

thanks for requesting own lab work ...will inquire or seek a second opinion immediately

[SlowDragon Administrator]

Gilbert’s syndrome is pretty common - may be coincidental to thyroid disease. Levels can go up and down

Look at all historic bilirubin tests

Hypothyroid and gluten intolerance is common - especially if you have autoimmune thyroid disease also called Hashimoto’s diagnosed by high TPO and/or high TG thyroid antibodies

Important to test vitamin D, folate, ferritin and B12 too

[marcopolo813 in reply to SlowDragon]

Thank you SlowDragon .

Billirubin - yes - will continue to request history

Have read the symptoms of Gilbert’s .. really not the ones I am experiencing right now. Keeping an open mind though..., and will go through the testing process.

I don’t believe I am eating any gluten ...but am not perfectly versed in exactly what it is or isn’t .

Presently Brown rice / oat bran / potatoes only are my carbohydrates.

Dairy 1% yogurt / minimum cheese is my only dairy

Tons of salad and vegetables fruit

9 years eating this way

ferritin , viatamin D , Folate and b12

Will request . Thank you for your input here - it is very helpful.

Should I insist on endocrinologist/ hematologist given lymphocytes .06 and billirubin 41 ?

Lymphocytes that low is a big red flag from everything I am reading

Mark

[SlowDragon Administrator in reply to marcopolo813]

Would gather up as many test results as possible first