Thyroid UK
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Graves Disease: 21 year old struggling with a recent diagnosis

Hi

I’ve recently been diagnosed with Graves Disease and I feel like my life is over.

Although nausea doesn’t seem to be a common symptom, it’s the worse for me. It’s stopped me from working, although it’s gotten better, I feel it would still prevent me from working the best I can. Can people still work with Graves?

I also wanted to train as a musical theatre performer, I’m 21 years old and wanted to do so much. Now it seems I shall be unwell for the rest of my life and have no chance of training in dance or singing for it could make me worse with all the exercise and possibly heart issues, and the strain that will be put on my throat.

Has anybody ever been cured of Graves, or had it go away after a while without developing Hypothyroidism after? Is there anything I can do to help myself get over Graves?

How do people not feel depressed with all the food that you apparently can’t eat? I’ve heard that I should avoid iodine, but also that a leaky gut could cause thyroid issues, meaning I should avoid things that could cause a leaky gut. Thus, my diet must now be free of gluten, dairy, soya, processed, salt, beans, alcohol, fish, sugar limited meats...I even heard about avoiding potatoes too! Basically reduced to riceand fresh fruit and veg and some meat...

I can’t even eat with my family anymore. How do people deal with this? I hate to seem so negative about this, but it feels hopeless.

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Wow! Who have you been talking to? I've never heard of restricting food like that. There's no reason why you should avoid iodine at this point. And who said you can't consume fish beans and alcohol? Doesn't make any sense.

Now, first things first, how did they diagnose you with Grave's? What blood tests did they do? If you have the results, post them on here. I'm afraid there tends to be a lot of mis-diagnosis around when it comes to Grave's, so first of all, we need it confirmed. Then we can talk about food.

In the meantime, soy is always a good thing to give up, even if you don't have a thyroid problem. It's not good. You could try gluten-free, see if it makes your feel better. If not, eat gluten. It's OK.

And you certainly don't want to give up salt! Your whole body needs salt - especially your adrenals. And your adrenals are very important when you have a thyroid problem. So, don't give up salt.

But, as I said, let's take it one step at a time, starting with the lab results. OK? It's really not all gloom and doom. :)

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Hi Greygoose

I’ve mostly been looking online to be honest. My doctor didn’t tel me much about graves other than giving me a pamphlet about hyperthyroidism. I had a few friends suggest that I look up app about it and see if there are any diets that I could go on that could potentially help heal me. I guess I just panicked.

To diagnose me, my GP took a blood test that I had once before 5 years ago when I was feeling sick all the time - t4, t3 and TSH. He said, at the time that it all points to Hyperthyroidism. Then one day, maybe the 2nd time after the blood test, he said ‘i think you have graves.’ I’ve done as you suggested, giving up soy and gluten (which admittedly, I had quite a lot of...woops)

Thank you so much! 💛 everyone here has given me such hope so quickly! Thank you thank you!

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It’s strange though, I don’t have specifics, but I rang the doctors surgery today to ask for y most recent results and it turns out my thyroid hormones t3 and t4 are back to normal...

I haven’t heard back about the antibodies yet, but I’ll see soon hopefully

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Antibodies are very important - although doctors don't think they are! So you need to know which antibodies were tested and what the results were, with ranges. :)

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Your life certainly isn't over just because you have Graves, with proper treatment you can be as normal as you want to be.

I was early teens when I was diagnosed with Graves, so was my sister, hasn't stopped either of us living a normal life.

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Thank you Bantam12! I’m seeing an endocrinologist in just over 2 months, thankfully :) It’s amazing to hear of others that have it and have pulled through okay, I am glad for you both and grateful to you!

As you and your sister had it, could it possibly be hereditary?

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Hi DJBlack, Graves' should not limit your lifestyle in any way but it is important to get good treatment from an early stage. You will probably become hypothyroid in the long term and will need to make sure your doctors give you appropriate treatment. Some famous people have succeded after having Graves' including George Bush (not my favourite) and Gail Devers. So clearly having Graves' does not prevent exercise (assuming three Olympic Golds is good enough for you!).

It will really help to get hold of all of your blood test results and post them here. If you are in the UK you have a right to them but doctors in most countries will let you have copies. The only food restriction I've heard of is to avoid foods with high iodine content, basically don't eat kelp or seaweed. Everything else is fine, although a healthy diet is always a good idea, with the occasional treat.

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Haha, you’re right, Olympic golds are good enough for me! Thank you :) I don’t have the exact results yet, but I contacted my surgery today and they’ve said they’re in normal range - t3 and t4 anyway. I don’t know if it’s possible to have antibodies present and yet have the hormones back to normal or not.

Thank you for the advice about the diet! After I read this, I had a HUGE sigh of relief! I’m grateful :)

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Hi DJ, I have a family member who worked on his PhD while having Graves. He was on Methimazole for about two years and went into remission. I think this is stress related and if you are in the fight or flight state, your detox and repair mechanisms don't work well. Gluten or soy can also cause stress to your system. Maybe you can figure that out. It really turns out that the microbes in the body have a lot to do with whether you are going to get sick. It's hard to avoid toxins, we often have metal toxicity from amalgams or vaccinations. This very hard on the thyroid gland. I've posted Dr. Bergman's videos because he is a great teacher and know how the body functions. You can get better after you get stable with your carbimazole.

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This Bergman guy is not a doctor. He is a chiropractor (does any one knows the difference?) and in my notebook not to be taken seriously.

Did he even have Graves or Hashimoto himself? That would qualify his advices, but guess not.

He speaks as everything is really simple because he is not an endocrinologist or a GP. Had he know a little bit more about science he would be forbidden to be making these videos. These are the kind of info that messes everybody's life and don't help.

Just saying.

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He is a functional medicine doctor. Claudia, nutritionists, pharmacists and functional medicine doctors all do better at evaluating autoimmune patients because REAL doctors know very little to nothing about them. They are not teaching it medical schools and Dr. Mark Hyman announced they have just begun to address autoimmune conditions as a special category. Why do you think Alzheimer's and Autism have risen rapidly and no real treatment in sight? We all know it's because they are relying on pharmaceuticals as their best ally and when your body is already dysfunctional, drugs make it worse.

Yes, the difference is that chiropractors are nerve doctors. Autoimmune conditions are very often based in diseases of the nervous system.

Are you suggesting that having the condition gives you the ability to treat it? I think the thousands of people here would disagree.

You are entitled to an opinion but I'd really like to know how Dr. Bergman has "messed up everybody's life".

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Everybody who has lived with certain condition can speak about their own experience and help some people (in a forum like this one) see through their own condition. But there is a limit to what we can help and do. I can not offer any lights to someone with Hashimoto or Adrenal problems because all I can talk about is my own personal experience with Graves, Hyperthyroidism, Carbi use, RAI and life on Levo. There is a limit to the "damage" I could eventually cause.

However, these new holistic, functional and whatever "drs" like the one on the video are a serious threat, not only to the desperate people they pray on but to everybody else because they speak of science and medical doctors as an evil commercial endeavor who care nothing about the patient. He speaks of doctors as they were mean narrow minded uncritical people.

The man on the video has no scrupulous and no commitment to any medical science and his sole purpose is to make some money out someone else's field of work and for that purpose he has to lead you to believe real medical doctors are evil and know nothing about what they are talking about. This kind of video raises unfounded, undocumented suspicious and scares against the entire medical community while presenting not one single evidence. He uses bad information sources even when he is supposedly touching a reasonable topic. He cherry picks information from several sources, non medical sources, he distorts the information and makes jokes about medical doctors to make people believe in him, not on their doctor.

There are others like this man out there. Most of those are trained as chiropractor but wish to work as a medical doctor with their insufficient and above all unscientific training. All dangerously speaking against vaccines, medicines and doctors. I feel sorry for people who is in such a bad place right now that they have to get help from charlatans like this.

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Claudia, please just listen to a few of these scientists for a minute or two. You will see the difference between medicine and science which is where the research leads functional medicine. This has been a terrific series and you can see the basis for the recommendations which often differ greatly from conventional medicine.

humanlongevityfilm.com/epis...

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The real danger is the medications like statins being given to people who should not use them. It almost killed my 30 year old nephew from pancreatitis. Cholesterol is so necessary for the adrenals to make hormones and steroids just as Dr. Bergman points out. It's also necessary for the repair of the macula. Now they find it binds with vitamin D in the skin and then the D signals the liver that there is cholesterol sulfate available. Really the lack of knowledge in the medical field has already killed plenty of people and statistics prove it.

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Well, I'd rather listen to him and make up my own mind than put up with an NHS GP who doesn't even know the difference between T4 and T3, or which is the active hormone (most of them!).

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I wouldn't be overly concerned that chiropractors have not trained as physicians. Neither have nurses, radiographers or physiotherapists, but they have all studied for 3 or 4 years at degree level and we normally trust they possess sufficient medical knowledge to give us a considered opinion when we're in front of them as patients.

Expert patients - people like us - can sometimes forget that our anecdotal evidence is often just that: anecdotal.

It used to be believed that you needed to rest after a heart attack. Now they have understood that little piece of wisdom will double your chances of dying . But if I had not exercised after a heart attack on my doctors advice, I would be busy passing on that advice to others, believing it to be instrumental in my recovery. Because it worked for me (didn't it?) Personal experience is valid and very important but it remains anecdotal. Dr Bergman's 'opinions' do not have less value because he has not experienced a thyroid condition and has not studied to be a physician.

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And your experience just may help someone but I try to report actual research that's being done by ethical people.....not some drug company that has some profit motive.

We should be very skeptical and when drugs are priced at outrageous amounts, do you think they have the patient in mind?

I know you meant scruples and not scrupulous because that is really paying him a compliment but you probably didn't mean to, i.e. scru·pu·lous

ˈskro͞opyələs/Submit

adjective

(of a person or process) diligent, thorough, and extremely attentive to details.

"the research has been carried out with scrupulous attention to detail"

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In the US, chiropractors don't just treat backs, they are more like functional/alternative practitioners who are not constrained by allegiances to big pharma.

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Wow, it’s so inspiring to hear of people that achieved such great things despite any health issue. I know he doesn’t know me but he inspires me haha! Now you’ve said it, it’s definitely stress related! I can’t handle stress at all so it makes perfect sense. I was working an exceptional amount too, and my diet largely consisted of carbs and gluten...woops! Thank you heloise, for your enlightening comment!

Hmm, you’ve made me think...as I wanted to study at university level, probably dancing quite a bit, I’ll have to find a really good way to de-stress and handle pressure more before I go and study!

Thank you again!

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Dr Bergman, like many others, whatever their profession, have other people’s best interest at heart. I don’t know if what he’s saying is right or wrong, but I know he’s trying to help.

And considering his method doesn’t involve medicine, but a change in diet, I didn’t heart to try it. Actually, he’s the one that I first found out about avoiding all these foods and even though it was gluten that I should’ve avoided in the first place, when I listened to him and ate gluten free, dairy free, sugar free etc. I felt better immediately! Even though it was only gluten I needed to avoid.

But also, I’ve taken carbimazole for the last month, and that’s been helping to steadily bring my thyroid hormones back to normal.

I don’t know which it was that helped me, but whatever it was, there’s value in both methods I think, and cons of each.

But then again, I’m a passifist 😜

Thank you all, so much for your help and advice! You’ve given me such hope x

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Good to hear from you DJ. The notion of stress is fifty years old when Herbert Bensen wrote a book called the Relaxation Response. He studied this in India. I learned it from a doctor's site who 20 years ago constantly stressed to learn how to achieve this. It will clear the hypothalamus of the overload and then your body can heal. Now, many doctors are on this bandwagon and it's often called mindfulness. There are even devices you can use to help achieve it. I used to listen to Brain Sync tapes. (Ha,ha, yes, tapes). My daughter really found them effective. You just relax with headphones. There are even some on You Tube to give you an idea. I do believe this is better than any medicine.

I know some people feel it's a lifelong illness but if you watch Dr. Bergman (he has lots of videos) he believes in remission and so do some of the other naturopaths that we have learned from and if you really focus on everything it won't take forever. Keep posting.

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Thank you Heloise! I’ve heard of mindfulness, I’ll give it a look. Thank you 😊 I’ll keep posting

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My friend has Graves and has continued to be healthy and lead a very full and active life throughout her treatment and beyond. Don't feel that you need to give up on any of your dreams and try not to worry. There are lots of people to support you here.

If you're feeling stressed, maybe try some relaxation techniques like meditation, yoga, deep breathing, lavender baths, walking in nature which will also help with your physical wellbeing.

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That’s a good idea, I don’t do much to reduce my stress. Walks sound nice hehe! It’s also nice to hear that others have been alright and lived well, it is most encouraging to hear. Thank you, Josiesmum.

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Oh dear. Looks like your on a few fb groups and reading the wrong posts or getting wrong advice from people who don’t know enough about it. I would take your advice from this forum and do a little research from links posted untill your confidant enough to know what your own body is telling you is the only right way for you. Get your results from the surgery and post, that way you will be better helped. Good luck and please don’t worry.x

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You couldn’t be more right DeeD123! I found that my GP didn’t have so much info, so I went to the internet. Which, frankly, I knew that I shouldn’t have done...my mistake 😂 i shall try not to worry, it’s so comforting to know there’s other people that understand when I’ve never really had that. Thank you x

P.S I don’t know if your name is Dee, but I’m often called that too 😜

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It’s Diane but my partner always calls me Dee. You won’t go wrong following the advice here, Good luck to you sweetheart . X👍

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Hi djblack,

I am sorry to hear you are also going though this. Reading your post I certainly can relate to how you are feeling and you are not alone.

I was diagnosed with graves a year ago now and I was fine for the first 5 months then as my thyroid levels (still in normal range) crept towards hypo I began to feel really ill and unable to work. I have suffered quite a few side effects on carbimazole especially the nausea one I had for a while but I have noticed as my dose has dropped (I’m now on 2.5mg) the side effects do subside and you start to feel more yourself 😊

.. I think you have fallen into the same trap as me... googling something is way too easy!!....and it’s really hard to find the good news stories ....we are so desperate to heel ourselves we spend hours and numerous different google searches trying to find a cure then stumbling across the info that scars the living daylights it of you... please stop looking (I need to take a lead out of my own advise book!) and reading.... this site gives great advise and info 😊 speaking from experience it has given me really bad health anxiety and I feel I am now iller than what I would be through stress 🙄

I agree the diets out there r a mine field I have gone gluten soya sugar free and I have stopped drinking alcohol as I found it triggered bad palpitations !! (Can’t wait for the day I’m off carbimazole so I can have a glass of wine!!) I am not allergic to this food but it has really helped my digestion it is so much better 😊

Message me if you need 😀

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Hi DJBlack

I’m about a year into treatment for Graves’. When I was initially diagnosed - and especially while waiting for treatment - I too wondered whether my life would ever be the same, but I’m now pretty much back to normal.

Did the nausea start with the Carbimazole ? If so, that is a known side-effect, and if it continues to be a problem, discuss it with your endo, they may prescribe the alternative, known as PTU. Nausea isn’t often mentioned as a side -effect of Graves, but I found that for some reason some food made me gag, and my tastes changed for a while (I went off bread completely) but soon came back to normal. I think some of it may have been down to constant thirst - I got through gallons of iced water.

Realistically, in the early days especially, I got physically tired very quickly, but beyond the first month or so, it’s been a question of a bit less exercise, not no exercise - and now I’m pretty much back to normal.

I’d already taken early retirement, but have continued two fairly demanding voluntary roles throughout, and also completed the first part of a part time MA, all of which I would say adds up to typical full time equivalent, at least .

I’m not going to pretend this isn’t a long haul, and there have been some days where I’ve just arrived home and gone to sleep. Most of us find that stress doesn’t help, so try to avoid this if possible, and make sure you get plenty of rest. In general, I’ve managed to do most of the things I wanted to do.

As for food, I’m not sure where you’ve been getting your information, but there is no reason why you can’t eat a normal well-balanced diet. If you’re going to make any changes, look at reducing the amount of processed food and maybe soy (I confess to the odd Chinese meal...) If your thyroid is still very hyper, you may be losing weight in spite of eating more than usual, but because your metabolism is racing away, you actually need this food. Just keep an eye on your weight, and try to cut down as your weight comes back.

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Hi DJBlack,

First thing first! Your life is not ending. It has just started and it will be great because you are only 21 years old and you will get over Graves soon.

Yes, Graves sucks, I lived it, every symptom of it and I know it sucks. But it is not that bad. Peanut allergy, for example, is much worse! Can kill a person in one go. So, don't despair!

Bring some more info to the forum. Care to share you tests, please? How do you know you have Graves? Only blood tests? Did you have a scintillography? Do you have a goiter? How do you feel in general? I mean, how many of the symptoms which describe Graves disease do you have? Dizzy not a very strong Graves symptom as you know. Can you share your blood tests with us? People here are good and they can offer a lot of good guidance.

I would say you don't need to go into any diet right now. Or ever. On the contrary. Eat well because until you decide which treatment to take your accelerated metabolism needs proper fuel. Eat whatever you want and don't worry too much. Stress is a strong catalyst in the setting of a Graves clime, so avoid it.

EAT (freely, I mean avoiding what is bad and should be avoided by everyone), RELAX (can you be cared by someone? a family member? Move back into mum's garage?) and REST. Rest meaning SLEEP (if you can, as insomnia is usually a strong part of the Graves settings). Resting your exhausted body, exhausted by the intense work your metabolism is doing under a hyperthyroidism of Graves is the most important thing to do.

Things to look for are: heart pounding so strong it feels heart will explode? Maybe you will have just a mild tachycardia? Palpitations? Heart rate so fast you can't even sing in the shower? Pay attention at your every change in your heart's rhythm. Weird sensations in your eyes? Do they look different to you? Also, you may feel your bowels are more alive than ever and moving like crazy and all these are parts of the Graves setting. Don't worry. REST!

It is vital to REST under Graves, before any decision in treatment is taken.

Just don't believe the hype. You can NOT cure autoimmune with diet alone. Don't go buying books written by spirits or other non doctors giving absurd explanations for autoimmune diseases. Don't be easy pray. Don't start diets just because a facebook page say so. Just don't go into believing that it is all due to the toxic world we live in. Humans, as a species, are evolving all the time, in good and bad ways and it sure takes time and a lot of money to explain simple regular problems in the functioning of our complex body. Be patient.

Homework: talk to your family members, check your entire family history for thyroid problems and other AI diseases. Grandmothers, aunts, cousins and sisters most likely but check everyone. Anyone in your genetic pool might have had Graves before. Genes play a huge role in AI diseases even if some "healers" want to make you believe the contrary.

Hang in there. It will all be all right! We are here for you.

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Are you off the medicine now?

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Hi, may I ask you, what is the value of the antibodies Trab ( if you did)...

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Ok. Slow down. Drastically changing your diet will put more strain on your body.

Aim for Remission, it is the best case scenario and achievable.

Having an Endocrinologist with the same goal is important.

Keep your thyroid and keep track of your meds, dosage, symptoms etc and monitor your bloods regularly to know where you are at.

In my case, I was so sensitive to the Carbimazole that my bloods ended up being taken fortnightly and my dosage changed accordingly until Remission was achieved in less than 6 months from diagnosis.

As for long term Remission, we will see how it goes.

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Hi!

I think I had the beginning of Graves at the end of December. My TSH was 0.01 and antibodies 200, pulse 120. I am 52 and female. I didn't go to the doctor's. When my stomach stopped working I left out almost all animal foods. I eat about 30 grams of goat cheese.

No my blood test is back to normal, antibodies 150 and are decreasing.

I have read a lot and I have tried many things.

Now I take the following supplements: fish liver oil, which has natural A vitamin, D vitamin and Omega 3; calcium 20 per cent of daily need, make small spots with iodine on my skin (kelp caused autoimmune reaction); vitamin K2; natural sulfur as MSM, sometimes plantbased based zinc (when I start to scratch my head- zinc deficiency), when I started to wake up in the middle of the night I took iron.

It works.

I measured my blood sugar, blood pressure, temperature after every meal in order to find out how my body reacted to specific food or supplements.

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I forgot to write that I ferment, sprout and soak everything and I don't eat wheat and Soy. I would like to try natto but non GMO.

I think animal food causes autoimmunity.

And I don't think it's a good idea to live with pills for the rest of your life.

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Evea, how are your Iron and ferritin levels?

People with thyroid disease often have iton deficiency anaemia. Animal products are one of the richest forms to supplement for this deficiency.

Be careful not to overdo the supplements and the fermenting.

Many supplements contain iodine and that is something for you to avoid and not to supplement for if you have Grave’s.

I supplement based on my blood results. Thus only supplementing specifically for what my body needs.

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Hi!

My iron and ferritin are normal, the same as on animal protein diet. A bit low but within the normal range. I haven't taken iron much and I don't take multivitamins.

I use iodine on my skin. So body can regulate how much you need. Kelp makes me feel bad.

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Hello There DJBlack.

Seems like there is a lot of advice for you after only a day. This is a great forum, but so much advice, even good and great advice, can be overwhelming. Take a breath. We've all been there and while we each work out our own path, you too will find your way. Take another breath. I agree that you should post your results here, it will help and you will get a lot of advice and then decide how to sort it all out. BUT the most important thing is to calm down, educate yourself, and then make a plan and keep a journal of what works and what does not. Graves can result in awful brain fog, so a journal helps to keep things sorted out.

I'm from the theater myself, so understand, but get yourself healthy and then sort the rest out. First things first. I will give you the same advice someone gave me on a post: It will get better. Believe that. It's going to take a while and hard work to sort things out, but it WILL GET BETTER.

I spent 5 years knowing something was not right and seeking answers. Then my Graves was diagnosed and was so bad in 2015 that the constant nausea was the least of my problems because my brain was shutting down in order to save energy and survive. Problems breathing, walking, swallowing, sleeping, temperature regulation, you name it, I had it. Three years later and I am close (oh, so very close) to remission. We have done it, you can too.

Post your results, stay in touch, educate yourself, keep a journal, and TAKE A BREATH! You will indeed get through this and we will be here. One question, are you in UK, US or other? That will help people understand more. I am from the US, so my advice to seek Functional Medicine at the Cleveland Clinic / Dr. Mark Hyman (one of the best hospitals in the US) might not work for you.

R. (Seeking Answers was the name I created over 3 years ago. Same as you seeking answers here today.....)

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Did you attend the Cleveland Clinic? I've been wondering if the wonderful programs we've been shown are the same as the treatments they actually use on patients or are there different protocols they don't express.....maybe for good reason.

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Hi, first you've come to a great site, for support, knowledge, educated&informed, people who really respond, a staff of administration that can supply you with actual records/proof of information for what seems to be a LOT of "Dr., lacking empathy/knowledge as to what can/will/won't help us function/survive return to being "healthy"? Or happy?

By having these documents as validated proof, after being on this site, you'll start to feel better & become confident (not so out of control) of u r body. Become your own advocate for yourself. Knowing, how you feel "bad" wanting to return, "You old self" and have the proven documentation from this credited site, plus the silent members of it behind you when u speak w a good Dr. Your too young, to let this whip ya! Think? I came to this site feeling, horrific, curled up in a ball, for months, a wreck. Figured, no one I knew, understood me or my endless complaints, so I sent a post. I received, A LOT of intelligent, supportive replies right away. I did everything they suggested, I don't eat meat, but still, no alcohol, come on.....i changed the times I was taking added vitamins, stopped some, just a lot. Guess what? Sit down...that was 4 days ago and I feel GREAT! No lie, at first I thought whatever, did exactly, and it has continued working, it will for you to. I wanted to die, it was horrible for almost a year, and I have no one. Girl, just believe it'll workout, this site is full of so much help. Get into reading the site, everywhere all the other people like us who needed advise....youll be back, and it'll workout, cuz you'll know what the heck your body is doing. It's done/will do amazing things for you, be patient, be smart I can't wait to see u post, like me, to someone...🌻🍸🌠

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Hey. I found with mine that the fob map is way too restrictive. I still eat all the things I'm not meant to....just in moderation. And with the knowledge that I may suffer later. It will still take time but you will eventually work out your major triggers.

As for a cure, mine is under control without medication. I think it depends on the severity of your diagnosis.

Hope that helps. 😊

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Thanks Sara, that sounds so un-stressful! And it makes sense, that way seems much easier to determine your exact triggers! I’m glad yours is under control without medication :) stay well x

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Have you been diagnosed with Crones as well or just IBS associated with your Graves? My suggestion still applies but you may have to be a bit more careful.

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My GP hasn’t mentioned anything about Crones. He wondered about IBS in the beginning, but it was dismissed after it was discovered I had hyperthyroidism. I did wonder about IBS, but if it was, the only symptoms I get is nausea, gas and occasional bloating. He said he thinks it’s just graves, but I’m getting my stomach checked in a few weeks.

Do you mean I should be more careful with the food I eat?

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Not necessarily. The longer you have Graves the more in tune with your gut you will become. Eg... I love sweet mustard pickles but I have learnt that they trigger the leaky gut if I eat too much of it. I now know how much I can consume without it causing me severe issues. There will be some foods that you supposedly cannot eat that you WILL be able to eat in moderation. Hang in there. It gets easier.

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One more thing, ask your GP for printouts of all your test results and keep them in a file to help you keep track of any changes. Good luck x

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Hi josiesmum, that’s a good idea! I won’t have another test for while, but I might ask for my previous ones and see what the changes have been. Thank you x

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There’s so many wonderful comments here, I wish I could individually reply to you all. Hopefully I’ll get to, but until I do, thank you everybody so much for giving me hope. No hope was my biggest challenge by far, so thank you everyone 💛

I got my results of TSH and T4: T4 is 12.8 and TSH is 0.02.

My GP said my T4 was alright, but it was mainly that my TSH was too low, even though it’s improving.

I’ve yet to hear back about the antibody tests though.

It’s odd, my symptoms are just anxiety, which I’ve always had really, depression, which stems from isolation, not working and no hope I believe, so it may have nothing to do with it...tremor in my hands, watery eyes every now and then, mostly when I’m tired or it’s windy, nausea, lack of appetite - which is increasing since I eliminated gluten from my diet, and weight loss - which I associated with lack of appetite. My heart rate seems normal and I never get heart palpitations except mildly when I’m anxious, which I’m learning to control through CBT.

Does this sound typical of graves to anybody?

Some of you guys have made me wonder whether it is graves or not. My GP did say he ‘thought’ I had graves. Of course I may do, and it may be that the carbimazole I’m taking is working.

I’m wondering if I may have something like IBS or a thin stomach lining or something that would explain the nausea. As I generally feel alright, it’s only after I eat something disagreeable that I actually feel nauseous, i.e. gluten, soy/soya, dairy - maybe, lunch meat, too much chocolate, alcohol. What does anyone think?

If you’re still reading this far, THANK YOU! It means the world to me that you’re all here offering advice and help. I hope you all feel you have the same love and support x

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I also have graves for 22 years. I worked but it was a struggle everyday. I still get depressed. Graves can also bring on all health issues to. I will keep you in my prayers.

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