graves - Carbimazole : quick question for my... - Thyroid UK

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graves - Carbimazole

nooneimportant profile image
8 Replies

quick question for my fellow graves people

I’m on Carbimazole and I know I’ve mentioned it before but it’s starting to get a little bit weird now … I’ve very stupidly especially over the last few days took on a manual job that needed doing at home this burned approx 3500 calories a day (exercise etc I do daily I should usually be using approx 2200) and I should be starving hungry right?! My son practically inhaled his food whilst I picked at mine - we were working together on this project- he reminds me that it’s lunchtime, prods me about dinner etc I’m eating at times of day and not because I’m hungry because I’m never hungry it’s been on ongoing issue now for a good six months or so but it’s getting worse to the point that I’ve set reminders to eat … my ‘numbers are in range’ so any ideas why this is happening?

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8 Replies
pennyannie profile image
pennyannie

Hey there again :

It's not uncommon -

with Graves it is well documented that some experience an insatiable appetite and can eat for England and lose weight - in the process - and the converse also true -

Initially your metabolism and own, new, daily thyroid hormone production were disrupted by Graves disease attacking and taking control of your thyroid and making you ill -

On diagnosis the AT drug took control of your metabolism and thyroid hormone production and its been a waiting game while we wait for your immune system response to calm back down again and hopefully your thyroid reset itself without the need for any drugs.

You were initially hyperthyroid and now somewhere else between hyper and hypo - and likely with some hypothyroid symptoms - and loss of appetite but gaining weight sits in hypo land.

Do you have the list of symptoms that can be experienced when both hyper and hypo - as very well detailed - as a tick box exercise within the Thyroid uk website - thyroiduk.org ?

nooneimportant profile image
nooneimportant in reply to pennyannie

Apologies for delay my van broke down which caused some issues 🙄

This is a difficult one pennyannie as my symptoms for hypo and hyper have been pretty much exactly the same 😞😖

The only difference is my heart rate appears to go up when more towards hypo and down when hyper - I know that makes no sense but I’ve been back over my app and compared blood results to heart rate 🤷‍♀️

pennyannie profile image
pennyannie in reply to nooneimportant

No worries - sorry about your van -

Yes - it can be difficult - so monitor yourself on your heart rate if you find this the most reliable measure you have at this point in time.

Beefull8 profile image
Beefull8

Is your digestion ok? I have stomach issues which makes me not hungry as well and feel weak instead of hunger.

nooneimportant profile image
nooneimportant in reply to Beefull8

I’ve been a little less frequent and difficult to go recently but put that down to over exercising a bit

Beefull8 profile image
Beefull8 in reply to nooneimportant

That could make you less hungry. Gut health and digestion affect everything.

Milynda profile image
Milynda

yes. Mine did that but I gained about 20 lbs at the same time. Get your bloods checked.

nooneimportant profile image
nooneimportant in reply to Milynda

No weight gain for a while - been pretty stable but despite a clear calorie deficit no weight loss either 🤷‍♀️

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