Where to find T3?: I've been on T3 for a few... - Thyroid UK

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Where to find T3?

Indubitable profile image
2 Replies

I've been on T3 for a few years now and it's made a world of difference. It seems I'm one of those rare cases where the body isn't converting T4 to T3 as advertised.

Like so many others, it took a long, rocky road to get here and I know how lucky I was to get any at all. This said, I'm no longer receiving a sufficient dosage. (I did try and see if I could survive on the lower dosage. I could not.) I've gone back to eating the previous amount which is what my body needs, but I'm not far off from running out of pills. Going private and paying the inflated prices is simply not an option for me, so it's looking like my only viable alternative is to find someplace online to order them.

My primary concern is finding a trusted source to order from, so I'm reaching out here in the hopes of finding others who regularly place orders on some particular site or other and have received quality goods. Please feel free to send me private messages on the topic, as I can well understand how these aren't necessarily things you would feel comfortable discussing publicly. Any help on the matter would be truly appreciated.

I'm also interested in any specific advice on the topic of getting meds abroad. I have heard of people going on short holidays and coming back with half a year's worth of meds, but have been unable to replicate this myself. I suppose it helps to have friends or family out there who can scout things out and make connections with a suitable doctor or pharmacy ahead of time. Any help on this topic would also be greatly appreciated. I simply cannot face the idea of going back to insufficient T3.

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Indubitable profile image
Indubitable
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SlowDragon profile image
SlowDragonAdministrator

There's nothing on your profile, or any thyroid history.

Are you currently prescribed by NHS

Recent blood test results

Do you have Hashimoto's

Vitamin levels etc etc

Indubitable profile image
Indubitable in reply to SlowDragon

Thank you for your response.

I've had thyroid problems my entire adult life. I've only been receiving T3 for the past four years or so, and it's made all the difference. Like so many here, I've had to fight many a battle to keep receiving T3, and am one of the fortunate ones still being prescribed T3 by the NHS. The only endo I got to prescribe it is no longer prescribing it to anyone, and in the process I came very close to losing my prescription entirely. For the moment at least, I am still being prescribed it, though not at the dose I was previously on, nor at a dose that's quite sufficient for me.

All my latest blood results have been fine. The level of T3 that I can cope with and the levels that leave me feeling half dead are both within the 'normal range'. I've eaten T4 for most of my life but as far as I can tell it has never done anything other than make my blood tests look acceptable. Because of my recent tiredness (while trying the lower dosage of T3) I had blood tests for all the vitamins and the likes, but nothing was out of place there. I've had many series of extensive tests over the years, and nothing else is ever found to be wanting.

I have been diagnosed with Hashimoto's, though depending on which GP and which endo I talk to they seem to have wildly different ideas as to whether Hashimoto's is a thing and whether or not it is a thing outside of Japan. I did have a very high count of antibodies at the time. That was before ever receiving T3.

As almost anyone here would know, it's very hard to make sense of a thyroid problem that doesn't fit into the general narrative. I'm not new at this game, nor is there any doubt in my mind that my body needs a certain amount of T3 to function. It doesn't really matter to me what name my problem has, only the solution matters.

I haven't given up on my fight for T3, but I know that if I run out of meds before finding my way to a higher prescription I'll be knocked right back down to where I have no fight in me. I'm not some random person self-diagnosing based on what I've read online. I just want to eat the amount my body needs and what I've previously been prescribed, and unfortunately I'm currently unable to get that on the NHS. (Not because of what my doctors think is good for me, but because of the sheer impossibility of the bureaucracy surrounding the whole topic of T3.) The last thing I want is to order meds online from some dodgy site, but I don't really see an alternative right now.

I know I'm not alone in this. If anyone here knows where to get good quality T3 from, please do let me know. I can't go back to being brain-dead and drained of all life, I just can't.

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