Hi, I'm a newbie can you help?: Hi I'm a newbie... - Thyroid UK

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Hi, I'm a newbie can you help?

Traceycrete profile image
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Hi I'm a newbie to this site, what a godsend this has been to know that there are others out there who feel like I do. I have been hypothyroid for 3 years now and taking 50mg levo daily.have recently had bloods taken with Blue Horizon as couldn't get an apt with GP surprise!! Results being:

TSH 2.87 ( 115not fasting) Didn't know!

T4 total 104.0

Free T4 15.50

Free T3 4.17

Reverse T3 20.0

Antithyroid peroxidase 72.5 (Rec below 34)

Anti Thryroglobulin 316 (Rec below 115)

Serum folate 7.94 (rec 8.83-60.8) started supplements

Vit D 55(50-175)

Symptons started getting worse recently, so lethargic,foggy brain,joint pains, hot flashes, weight gain.

Blue Horizon are saying Hashimotos due to inflammation, wondering if its adrenal related as had a stressful year so far.

Have been reading a book by Anthony William called Medical medium (thyroid Healing) who suggests aloit of our problems are related to the EBV Virus??

Would appreciate hearing from anyone with similar experience.

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SlowDragon profile image
SlowDragonAdministrator

It's helpful if you add the ranges after each result. (Even for Medichecks results)

50mcg is only a starter dose, you are under medicated and need 25mcg dose increase.

TSH should be around one and FT4 towards top of range and FT3 at least half way in range when on Levothyroxine

Dr Toft, past president of the British Thyroid Association and leading endocrinologist, states in Pulse Magazine,

"The appropriate dose of levothyroxine is that which restores euthyroidism and serum TSH to the lower part of the reference range - 0.2-0.5mU/l.

In this case, free thyroxine is likely to be in the upper part of its reference range or even slightly elevated – 18-22pmol/l.

Most patients will feel well in that circumstance. But some need a higher dose of levothyroxine to suppress serum TSH and then the serum-free T4 concentration will be elevated at around 24-28pmol/l.

This 'exogenous subclinical hyperthyroidism' is not dangerous as long as serum T3 is unequivocally normal – that is, serum total around T3 1.7nmol/l (reference range 1.0-2.2nmol/l)."

You can obtain a copy of the articles from Thyroid UK email print it and highlight question 6 to show your doctor

 please email Dionne at

tukadmin@thyroiduk.org

Official NHS guidelines saying TSH should be between 0.2 and 2.0 when on Levothyroxine

(Many of us need TSH nearer 0.2 than 2.0 to feel well)

See box

Thyroxine replacement in primary hypothyroidism

pathology.leedsth.nhs.uk/pa...

NICE guidelines on How to introduce and increase dose (Ignore the testing after 4 weeks - it needs to be 6-8 weeks)

cks.nice.org.uk/hypothyroid...

Did you know you have Hashimoto's also called autoimmune thyroid disease diagnosed by high thyroid antibodies?

Hashimoto's affects the gut and often leads to low stomach acid and then low vitamin levels

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

Ideally ask GP for coeliac blood test first

amymyersmd.com/2017/02/3-im...

chriskresser.com/the-gluten...

thyroidpharmacist.com/artic...

scdlifestyle.com/2014/08/th...

drknews.com/changing-your-d...

thyroidpharmacist.com/artic...

Your vitamin levels are too low

Vitamin D aim to increase to around 100nmol. Better You vitamin D mouth spray is good as avoids poor gut function of Hashimoto's

You haven't added B12 and folate results

Traceycrete profile image
Traceycrete in reply to SlowDragon

Hi, I have listed as you said earlier my test ranges

TSH- 2.87 (0.27-4.20)

T4Total 104.0 (66-181)

FreeT4 15.50 (12.0-22.0)

Free T3 4.17 (3.1-6.8)

Reverse T3 20.0 (10-24)

Vitamin B12 459 (145-569)

Folate 7.94 (8.83-60.8)

Ferritin 130.0 (13-150)

Anti-thyroidperoxidase72.5 (34 or less)

Antithyroglobulin 316 (115 or below)

Does this make any sense? I am supplementing folic acid 400ug and taking a probiotic daily.

I also take Rabeprazole 20mg for hiatus hernia. Wonder if this is preventing absorption due to low acid in stomach.

SlowDragon profile image
SlowDragonAdministrator in reply to Traceycrete

Your vitamins are surprisingly good, but your TSH is too high, needs to be under one. FT4 too low, should be near 19-20, TT4 nearer 160 and most importantly FT3 needs to be at least over 5.

Make an appointment and request 25mcg dose increase in Levo and request coeliac blood test before changing to strictly gluten free diet

Gut issues may improve with changing to gluten free diet

Lots of posts on here about hiatus hernia

healthunlocked.com/search/h...

Traceycrete profile image
Traceycrete

Thankyou slowdragon, fingers crossed my appt goes well tomorrow.

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