Liothyronine stopped - which way to turn

[BBLYTH]

Hi All,

I recently moved to Lancashire from London and my new GP has told me they won't prescribe me any more Liothyronine. (I was on a T4/T3 combo - I have Hashimotos) I know this has happened to many of you and I think it's just awful. I have sent an email to my local MP but no reply yet.

My brain is like scrambled egg, I'm exhausted, I have a clonking headache and my bones ache - I'm not sure which way to turn.

I do have some 2 types of Cynomel from overseas but neither of them seem to help!!! I thought the UK Liothyronine was meant to be weaker than the overseas ones but perhaps that isn't the case.

Challenging my doctor seems overwhelming and I just don't feel I have the strength to go that route - getting it in the first place was difficult enough!!!

I'm wondering whether seeing a private doctor to get a private prescription might be a solution. Does anyone have any recommendations or idea of costs of getting Liothyronine or NDT on a private prescription?

Thanks for your help.

[Ridgebacklover]

A uk script can be filled in the EU, many people have got from France at much reduced cost, I get mine from Germany but took trip first to establish relationship with pharmacy get 200 20mcg sent to me for around £60 . Well worth trip as over here £230 for 28!!! Good luck

[BBLYTH in reply to Ridgebacklover]

Thank you Ridgebacklover. Sounds perfect but how do you get the script?

[jimh111 in reply to Ridgebacklover]

Is your UK script for 'liothyronine' or specifically for Thybon Henning? i.e. do we need a different script to order from a German pharmacy? (I thought we had to get a special script on a 'named patient' basis).

[Aurealis in reply to Ridgebacklover]

Is that a private prescription from GP?

[Ridgebacklover]

No, your GP can just write out script for Liothyronine 20mcg X 100 and you can contact a pharmacy in Munich (that's where we went) explain situation they speak very good English and they will mail meds to you. I paid with debit card.

[BBLYTH in reply to Ridgebacklover]

Thank you Ridgebacklover. I'll give it a go and if successful, may PM you for details of the pharmacy.

[SlowDragon Administrator]

You can order private prescription online from Germany. Thybon Henning is 20mcg Liothyronine- 100 tablets for 31 Euro plus 8 Euro p&p

You need private prescription to read

Liothyronine 20mcg x 100

They only make 100 tablet or 50 tablet boxes

It's only available with prescription

versandapo.de

Pm me if you need to know more

But if you were originally diagnosed by NHS endocrinologist as having clinical need for T3 you should fight to get this recognised.

british-thyroid-association...

[BBLYTH]

Thank you SlowDragon. Very helpful. 😊 The NHS only gave me T3 because I pushed them to - the endo had to recommend it for my GP to prescribe it. 😩 But I was doing fairly well on it!

[GKeith]

I am in the U.S. We can't get T3 from any GP's; only endo's can prescribe T3. Seems strange you get it prescribed by a GP?

[NWA6 in reply to GKeith]

GKeith an Endo has to initiate T3 and then a GP can prescribe.

[GKeith]

Okay. That can't happen in the U.S. An endo has to write a prescription here, which I think is better because too many GP's know absolutely nothing about the endocrine system, therefore don't really even know how much T3 is proper to prescribe. The best "doctors" to have are those who have actually experienced being hyper or hypothyroid themselves, or had someone in their family who has, thereby forcing them to actually use their medical degree(s) to actually learn something and enable them to help others in the same fashion; something Jesus Christ and all other religious leader(s) I have come to study and know call for in (all) their doctrines. But, then, the world calls for materialism and money and possessions, inordinately, and, too many times, these things hypnotize humans and carry the day as humanity suffers on, on this desecrated land mass we call earth. Peace be upon you.