Updating my current situation.: Hello everyone... - Thyroid UK

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Updating my current situation.

Guled profile image
12 Replies

Hello everyone. It is more than 2 years since I posted hear. Am still in the hypothyroid roller coaster. On top of the hypo and allergies I am suffering from I have been diagnosed with ME, PTSD and sleep apnea. Have been using full face mask since december of last year.

I have had hypothyroid symptoms since i was a teenager and I have been on low thyroid medication the last 18 years, I will be 50 this coming august. I use the combination therapy of T3 and T4 to treat my hypothyroidism, I take 100 mcg T4 and 10 mcg T3 two time a day, also take medication for PTSD and allergies. I also take Dr Wilson Adrenal rebuilder two tablets a day plus mineral and vitamin supplements.

How am i doing with this treatment. Not bad but not good either. The adrenal rebuilder has helped a little bit so did the sleep apnea treatment.

Luckily I have a doctor who is supportive. I will post some blood tests soon.

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Guled
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ShootingStars profile image
ShootingStars

Hi Guled. I look forward to seeing your results and the ranges. Aside from the latest labs, can you also post some of the previous ones? Thank you for the update!

Did you get your thyroid antibodies checked to determine if the cause of your hypothyroidism and symptoms is or is not autoimmune? The tests are called TPOab and TGab. If you have Hashimoto's and you are not addressing the autoimmunity, then that could be why you are still not feeling well after all of this time.

Guled profile image
Guled in reply to ShootingStars

Thanks for the reply ShootingStars. Yes i have Hashi I will try and find old tests and post them hear. I will be seeing my doctor on monday and will take some tests and will post the results hear too.

Guled profile image
Guled in reply to Guled

I want to thanks all those that responded to my post hear 2 years ago. I dint respond to them. I was in a really bad situation those days, hey i have an under functioning thyroid... cant be blamed.

shaws profile image
shawsAdministrator in reply to Guled

Don't worry. When we feel really unwell, the first thing that concerns us is 'when will I feel well again.

Do you know that blood tests have to be at the very earliest, fasting (you can drink water) and allow a gap of 24 hours between your last dose of levo and the test and take it afterwards.

Ask GP to test TSH, T4, T3, Free T4, Free T3 and thyroid antibodies. B12, vitamin D, iron, ferritin and folate. (the ones he or lab wont do, you can get through one of our two private labs who do home pin-prick tests.

Guled profile image
Guled in reply to shaws

Good i will ask for all of the above tests. I have an a appointment monday 8,30 this is the earliest i can get. Is 8 30 early enough??

Kipsy profile image
Kipsy in reply to Guled

Yes- 8.30am is a good time.

shaws profile image
shawsAdministrator in reply to Guled

Yes as Kipsy has stated. 8.30 a.m. is fine. :) I believe doctors have been directed that a TSH and T4 is sufficient but we don't if we are having symptoms.

LAHs profile image
LAHs in reply to Guled

Hi Guled,

Regarding the time to get your blood tested, here is my (probably irrelevant) story. I won’t bore you with why but I have to travel a long way to my blood testing clinic, it is an almost 3 hour drive. So I start out on my journey without any breakfast which, for me, is a disaster it’s the one meal a day I just cannot miss. By the time I have arrived at the clinic I am almost out of my mind with starvation and the fatigue of the journey. I get the test done, I immediately gulp down my meds and then start the count down for the cruelest one hour of all, I cannot eat for another hour! But at least I am heading home at this point and, forget breakfast, it is now lunchtime so I have the perfect excuse to pull off at a wonderful steak house in a hot, dusty little town in Steinbeck country. A steak, a glass of wine, followed by ice cream with chocolate sauce is my reward for going to a lot of trouble to get things right the first time. I only do this once a year now, but it is worth the trouble.

Guled profile image
Guled in reply to ShootingStars

Hi there. Hear are some old blood tests, Folate and B12 are not included in this old tests but are included in the test i took last week awaiting results.

SANTI.TPO >100 958

FR T4 11-23 17,1

FR T3 T3 3,1-6,3 6,5

FERITIN 20-300 216

IRON 9-34 19,1

IRON SATURATION 15-57 39

TSH ,20-4 >0,01

VITAMIN D3 50-150 75

HBA1C 5,3%

BS 6

Guled profile image
Guled in reply to ShootingStars

Hi again ShootingSatrs. In your last reply to me you asked if i was addressing my autoimmunity wich is sky high as you ca see in the blood result. I will like you to give me tips on how to achieve that. I do take minerals like Manganese, Zinc, Selenium, Magnesium, Vitamin C 4 mg 3 times a week, Vitamin B Complex and D3 drops 3000 IU day. My diet is not optimal i eat normal food, some times much sugar.

ShootingStars profile image
ShootingStars in reply to Guled

Hi Guled. Thank you for posting your results. When I was diagnosed, my TPO was about 200 points higher than yours. The treatment for Hashimoto's is thyroid medication. No of the doctors that I saw would give me medication because they thought my levels were all normal, even though I had very high TPO. It took me months to find a doctor who would treat me. By then my TSH was almost 8, FT3 and FT4 were at the bottom, and my TPO had increased more that 6 fold.

It is not easy to lower antibodies. Sometimes it can be done but it will not happen quickly. If you do the right things, you should get your antibodies to lower. The only problem is, if you are exposed to too much stress or any illnesses, these will make your antibodies go up. "Supposedly" selenium can help decrease antibodies. I say supposedly because there are only a few studies that support this theory and the ones that had positive results were a combination of selenium and inositol. If it helps at all, taking selenium will not override outside forces that cause your antibodies to increase. Things like exposure to environmental toxins, any kind of illness, molds or other fungi, substances that your body reacts negatively to. Despite doing everything possible to lower my antibodies, the mine have ever been was 900 something, but remember, mine went up over 7K because I did not take medication when I was diagnosed. I've taken selenium and inositol for years. It did not prevent my TPO from going back up starting last fall when I was sick for awhile and then had other illnesses. I

Things you can do to give your thyroid and body the best chance at not continuing to have sky high antibodies: 1) Make sure you continue to take thyroid medication with a goal of reaching euthyroid status and optimal levels of FT3 and FT4, or which ever level you find that you have the least amount of symptoms. 2) With autoimmune disease, it's recommended to follow an autoimmune diet. Your interpretation may vary, but at least go gluten free. No cheating on any gluten. Limit your dairy or quit it completely. Same with soy. Soy, dairy and gluten are all inflammatory foods and with Hashimoto's you want to discourage inflammation. 3) Remove goitrogenic foods from your diet. They inhibit thyroid function. 4). Remove nightshade foods from your diet. They are inflammatory. 5) Take 200 mcg selenium and inositol every day. 4) Limit all types of stress in your life. 5) Get up and move and exercise every day. Don't over do strenuous exercise. If you enjoy going to the gym and working out hard, make sure that you take days off here and there to recover. 6) Listen to your body. If you don't already, you will start to see the types of things it reacts negatively to and that give you an autoimmune response: foods, various types of stress, not enough sleep, certain people, certain situations, certain tasks. 7) Limit your intake of sugar. 8) Don't eat processed foods very often. 9) Do everything in your power not to get sick. Avoid being around people who are sick. Take precautions in public to not acquire viruses. If you start feeling any sort of illness coming on, do not wait to go to the doctor.

Your Vitamin D is low in the range and might be giving you some symptoms. With your lab range, a good target is the top of the range, between 130 and 150.

Guled profile image
Guled

Good Ok.

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