I had thyroidectomy 15 months ago and as most of you know it's been a nightmare and to make matters worse and down right scary several times I have had issues with horrible,horrible neck spasms, stiffness and pain and today has been the first time that this horrible pain has swallowed my upper body I can't even run my hands down my ribs or chest without grimacing. I had my levels done and those had been fine and I feel fine that was until I woke up this morning.
Is it possible to develope fibromyalgia this late after thyroidectomy ?
Do you have some test results to show? Do the test include also minerals and vits like D3 B12 folate, ferritin?
What is your substitution treatment and approach on taking it?
More symptom specific, have you had your parathyroid function evaluated after TT? Calcium...mentioned spasms mighta point in that direction.
Also, vit D3 levels might be important, it happened to me that I started having joint stiffness, swelling and muscular pain. Correlated or not, in the same interval after TT as you are now. Found out d3 level was deficient and after starting appropriate dosage found relief in quite a short time (weeks)
Please take the above as it is, a non medical opinion.
Hi here are my recent test results..... Endo will NOT TREAT based on RT3 numbers. I'm in the US on 100mcg synthyroid and 15mcg Cytomel. I take Calcium and Magnesium, zinc and selenium.
I agree that RT3 is not a reliable factor, but it's an indication.
It doesn't look bad, but if I were you I would be looking on a slight increase on the T3 side, considering the rather higher RT3 and lowish FT3. Gradually, from 15 to 20 and then, if necessary, to 25.
If you tolerate t3 well shouldn't be a problem. I'm a 37 YO male, 87 kg and do well on 136.5 T4 coupled with 27.5 T3
Please keep in mind that I have identified at least 4 factors impacting hormone uptake and usage:
-administration. On an empty stomach, at least one hour before food, tea, coffee or at least 2 after (even 4 if a greasy, larger meal) Impact of food & beverage on absorption could go to 40%
- you've mentioned training...mind that intensive and/or frequent one is using T3 a lot, probably faster than you can replenish
- fasting is affecting metabolism and peripheral conversion
- seasonality is real. Colder periods demands a slight increase
Nevertheless, what has been said previously stands, parathyroid function needs investigation and while looks good the supplementation of vitamins should be reviewed (how much) and monitored (test results). D3 first
Hi Caesar's, thanks for your reply I appreciate it. I do take my synthyroid (100mcg) at 4:15am and 1st cytomel (5mcg) at 7:30am and next (5mcg) cytomel at 10:30am and I take the last one 1:30 or 2pm. I often wondered if I should up my T3 to (20mcg) instead of 15mcg and I do tolerate T3.
I think you should try but also would suggest to take this to your doctor as well. It would probably flat line your TSH result and most likely end up discussing it with her/him anyway. T3 supplementation does this thing to the TSH levels...
Another thing that u would try is adding the first t3 dose (and probably the supplementary one, if you decide to go for it) on the early T4 dose. Might boost your energy and fits best on the overall hormones daily production patterns.
Personally I don't have an issue with the T3 and sleep. I take my t4/t3 combo in 2 doses, latest even before the night sleep and very rarely i get bother by it.
Yes I'm the same person BATTY and Canyouhearthat for some reason my BATTY acct switched to Canyouhearthat and I cant seem to get the BATTY account back? I use to take my T3 with Synthyroid in the morning but it seemed to leave me deflated much sooner...maybe I will try again.
If you decide to up your T3, it would make sense to add it to the early first dosage. I am sometimes feeling the running-on-empty sensation you're recalling and then my night dose goes in earlier. The marvel of the t3 is the instant effect
You are going through a very rough time my lovely. Do you know what your ranges are for your thyroid levels by any chance? GP's tend to say "Fine" but if you are not feeling it, can be soul destroying.
I have only a partial non working gland, so have been on medication all my life. So basically the medication does everything that the thyroid should have done and should be doing.
My current dose is 200 mcg of T4 thyroxine (This is likely to be increased if my next results are the same as the last), 20 mcg of T3 Lithyronine. I also now take Vitamin D supplements, iron supplements for pernicious anaemia and have B12 injections for B12 deficiency.
I ache everywhere sometimes and often suffer with spasms in my legs if not hydrated enough. But I do ache all over when I am due a B12 jab.
Anaemia and vitamin B12 deficiency have similar symptoms as thyroid and sometimes, not all walk hand in hand with it.
Due to being messed around (long story), I now suffer with oedema too, so need to take diuretic every day. Getting comfortable shoes is a nightmare.
So my advice is to go back to your GP and demand new tests and also ask to be referred back to a Specialist. How you are feeling is not right and you need your quality of life. If we haven't got that, it will lead to depression. Never get the results from a receptionist as they are only reading from a script. You will need your ranges when you are given the results.
As a veteran of medication issues, I get so angry at these so called GP's, they think everyone with a thyroid condition is the same, but someone without a thyroid, is different than someone who needs help with their thyroid function, it is as simple as that.
The havoc it can bring to our daily lives is horrendous and no one really knows what it is like unless they have a problem.
If you can post your medication and ranges, someone might be able to offer more advice of what to do. I am not good on levels etc but I totally empathise on how you are feeling at the moment.
Hi, I had a TT 7 years ago now and have had huge problems so I really sympathise. Don't be fobbed off by being told bloods are in range but find out what they are and as people have said post here for advice. I was told my calcium levels were fine but I had symptoms of low calcium including seizures yet was told it was all in my mind. Eventually my GP started prescribing me supplements as was not happy with consultants advice. I have found my calcium and vitamin D levels need to be mid range. I kept a diary of symptoms, medication dose and blood levels to try to find where I felt best and had fewest symptoms. I have a very helpful GP but it was and still is a fight at times.
Also I have found that replacement of thyroid hormones is not as straight forward as you are led to believe and a small change in dose can make huge differences for me. I get really bad neck stiffness and pain when over or under medicated so find out your levels and try to determine where you feel best. Good luck and hope you feel better soon.
Hmmm really interesting about neck pain. My necks the reason they found my nodule and despite being told 90% are benign it wasn’t. I still get bad necks but put it down to discs but wonder if it could be medication related. I’ll have to keep a record. 😀 Thanks for getting my mind turning over. Slow as it is. 😂
My sympathy and prayers for you . You made a great choice by joining our Great Forum . Ask questions . No question is stupid . Everyone is so Nice and Very Helpful . We all started out the same way . READ ! READ ! And READ some more . To Get Empowered !
I had TT as well . I can tell you from my own experiences that being dosed by T4 Only is a very Big Mistake . First the T4 meds work well then as if the same meds that you thought was heaven sent turns against you . So It feels .
I would Very Much Suggest that you get Nutrients up to par before you start with any T3/NDT . T3 can unmask adrenal fatigue . And can cause other symptoms .
Selenium ,B12/folate , Iron (ferritin labs needed) Vitamin "D", "C" , B-Complex magnesium . I highly recommend that you read SeasideSusie's Excellent vitamin posts . So Very Valuable .
Get to Know your lab results FT3 FT4 TSH RT3 and your NUTRIENTS Results too . Journal your Symptoms . They are Very Telling and will help you get to your "Sweet Spot" .
SlowDragon has Great Posts on Gluten free diet . Very Helpful for lots of Thyroid Patients . You don't even realize how Very Helpful it is .
Wishing you Wellness and Success in Your Next Steps .
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Need a little help with Test results - Hypothyroid
little worried
I need answers
Is my GP doing the right thing here? what are the risks for me with excess levothyroxine?
Please help!
