I have only just joined and this is my first post.
It seems I may have Hashimoto's disease - enlarged thyroid with confusing blood results. I started the Hashimoto Protocol over a month ago - and am now in phase 2 the Adrenal Recovery phase. I have eliminated gluten, sugar and dairy, and am in the process of eliminating all grains. However contrary to what I thought might happen, I have been feeling worse and worse as each week on the programme / protocol.
I would really appreciate any thoughts or comments. Many thanks.
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gerard33
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Hi! What is "the Hashimoto's Protocol"? The protocol for Hashimoto's is and has always been thyroid hormone replacement. AIP diet is recommended. It can take 6 months to a year or more to get your thyroid hormones up into optimal range, which is where you'll have the least hypo symptoms. What medication are you taking?
Fixing your gut or adrenals are separate, yet related issues. They will not fix your hypothyroidism, symptoms or your autoimmune problems. Due to the low thyroid hormones with Hashimoto's, you'll need to supplement either T3, T4, or both, depending upon your blood results. The blood results that you need are: TSH, Free T3, Free T4, and thyroid antibodies TPO and/or TG.
Oh that. It doesn't cure Hashimoto's or necessarily eliminate symptoms, but it might help. Thyroid medication is the only thing your hormones back into optimal levels and then symptoms subside. There is no cure; it's a lifetime disease. I sure wish there was!
The Hashimoto Protocol as described by Izabella Wentz may solve the thyroid issue. The principle being that the thyroid is being attacked by an auto-immune response. The auto immune response is probably triggered by a Leaky Gut. Cure the Leaky Gut and the thyroid is no longer under attack and may recover.
Right. Izabella Wentz still takes thyroid medication, so the protocol certainly didn't cure her. The key word is "may". Or, may not. There is no solid evidence. I'd love to know exactly how people measure that they actually have a leaky gut, and how do they measure when it's been "cured"? There are no legitimate studies confirming her assumptions. Improving the gut and digestion is always a good idea. She is a marketing genius, tho.
Totally agree. I am from USA. This seems like more needless suffering. Have never heard of this here. 4 of my family members are on levothyroxine and doing fine. Nobody really worries about it. Very interesting, but I would question it. My son who is 29 diagnosed with Hashimotos at 4. Has blood work every6 months to adjust. Thyroid supplement if needed. It is not like regular medicine. He needs levothyroxine to make his thyroid work properly or he could have serious organ damage along with the rest of us. That is what endocrinologist here says.
Me too. For some reason she's got people from elsewhere thinking she's going to cure them. No one here has ever heard of her.
No body worries about Hashimoto's? Those of us with it and autoimmune response certainly do. It can cause horrendous autoimmune response and hypothyroid symptoms. Thyroid medication doesn't cure Hashimoto's because Hashimoto's is your body attacking and trying to get rid of your thyroid. Some people, but not all are hypothyroid with Hashi's. That's where the thyroid medication comes in: to combat the hypothyroidism.
Which organs do you mean could get damaged? The thyroid? Taking thyroid medication won't prevent the thyroid damage caused by Hashimoto's, but it can slow down the speed of the damage. Some people only need levothyroxine. Other people need levo and liothyronine. I just depends on your own individual body.
Hi gerard33. Have you got an official diagnosis of Hashimotos? Do you have any blood test results that you can post on here for feedback? Are you taking any thyroid medication?
Welcome to our forum. If you copy and paste the above information onto your Profile, so that members, in future, can read and see your history. It also saves asking you the same questions.
Sometimes we do feel worse before improving. When your next blood test is due always get the very earliest, fasting (you can drink water) and allow 24 hours gap between last dose of levothyroxine and the test and take afterwards. This allows the TSH to be at its highest as doctors are apt to only look at the TSH. It drops throughout the day and may mean an reduction in your dose which you dont want.
As you have thyroid antibodies present you have an Autoimmune Thyroid Disease, also called Hashimoto's. It is the antibodies which attack your gland and they wax and wane until you are hyplthyroid but treatment is the same. Usually a 50mcg starting dose, with an increase of 25mcg until you feel well. I realise you are following a protocol which might be different from what we do normally.
To reduce thyroid antibodies going gluten-free can do this so that you wont have hyper sensations when they attack your thyroid gland.
Your doctor should test B12, Vit D, iron, ferritin and folate as deficiencies can also cause symptoms. Everything has to be optimal.
Have you had your reverse t3 checked? I had to switch to t3 only (I can't convert t4 into t3) and feel so much better. But without my diet, I'd feel horrible no matter what. Some people feel better just eliminating gluten, but others need to eliminate all gluten and foods that cross react with gluten, also, dairy, soy, corn, sugar, grains. I do believe symptoms subside with diet, mine have. If I eat sugar, gluten, or anything I have an allergy/sensitivity to, hashimotos is enraged, horrible symptoms. I do believe in remission or greatly reduced symptoms where you could lead a normal, happy life.
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Help required please (underactive)
Help sourcing supplements from isabella Wentz book. Hashimoto's protocol 
Dr John Lowe protocol
