Thyroid UK
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Worrying? Shocking? Video of NHSE Board Meeting, discussing the Consultation findings with Bruce Keough

Found this by chance; and I posted it on ITT FB page.

england.nhs.uk/publication/...

The video of NHSE board meeting discussing the Consultation findings, starting at 52mins. Sir Bruce Keough tries to summarise: "all around the NHS there are endeavours to deal with efficiency, cost effectiveness and value for taxpayers and patients.... ROUTINE prescribing - this is not a ban on medications, in medicine it is dangerous to ever say never.... L-thyroxine (T3) is an expensive version of thyroxine..." 😮😡. Someone asked 'over 2,000 of the 2,600 respondents were female, is there an issue around inequality?' BK: "Nothing there gives me concern." Then: 'Approval of recommendations for 18 items considered to be relatively ineffective, unnecessary, inappropriate or unsafe.' So at the board meeting, Liothyronine was not understood by the board, or even by Sir Bruce Keough.

So the NHSE Board weren't aware of what T3 is. Give me strength.

ITT members were shocked at the ineptitude, to say the least.

Can we ask for another consultation, like a second referendum on Brexit?!

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Bruce Keogh has retired. Let's hope his successor, Professor Steve Powis, is competent. But I won't hold my breath.

en.wikipedia.org/wiki/Bruce...

england.nhs.uk/2017/11/nhs-...

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Neither will I, as my cynicism has grown so much recently. I fear the Board hadn't a clue what they were agreeing to. And I'd rather like a re-count!

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The bits that shocked me the most were

1) the fact that lots more women replied to the consultation than men was considered to be unimportant and irrelevant.

2) In connection with T3, there wasn't a single mention of the difference in price between UK T3, and T3 from other parts of the world.

The bit about them not understanding the difference between T3 and T4 doesn't surprise me. They are probably just repeating what endocrinologists have told them. And many people on this forum have reported dreadful consultations with endocrinologists who make it clear they think women with thyroid problems are just a bunch of whingers.

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I haven't read the article, just this thread. I am sitting here on my own and when I read this bit

"1) the fact that lots more women replied to the consultation than men was considered to be unimportant and irrelevant."

My jaw dropped and I did a sharp intake of breath, woke my dog up!!

I can't write what my real thoughts are but.... I am struggling to know exactly how to interpret that!

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I think they would probably say that more women are interested in their health so this result was to be expected. Perhaps the "more women" thing is true of all consultations.

It does then mean that our input is downgraded in importance, of course.

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Is there a way of finding out the names and positions of the people present?

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In the video it gives the name of the Chairman Professor Sir Malcolm Grant

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There is a contact point that could be made use of.

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Lol. Expensive version of thyroxine. I am sorry I can't stop laughing. It's hilarious. Awful that they don't even know what they are talking about but that stupidity is just priceless. And these people make calls in UK/NHS!

They obviously have not even bothered to take a quick look what T3 really is! Even a monkey can Google it if no other type of information is near by.

But same here in Finland. Endos spread a rumour of T3 being doping and that's how it's now seen. There are medical students who truly believe that effect of T3 is like doping effect and it only lasts for a short period in the beginning of the treatment and then when body compensates the production of T3 the effect wears out. Ummm what? :P

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The question that has to be asked of endos suggesting that taking T3 is like doping... If it is that good why do people seek treatment for hyperthyroidism?

Also, say the reference range is 3.1 - 6.8, if one person has a Free T3 level of 3.1 and someone else has double that, i.e. 6.2, why is it bad for the person with the lower level to raise their Free T3 to match the other person's Free T3?

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Exactly. I can't even understand where the doping effect nonsense started. I find it just naive. Another explanation coming from endos is that T3 is so tasking to start and monitor. I am like what for they get paid then?

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